PLATINUM2024

Bone Health and Osteoporosis Foundation

Healthy Bones, Build Them for Life

aka BHOF   |   Arlington, VA   |  http://www.bonehealthandosteoporosis.org

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Mission

Established in 1984, the Bone Health and Osteoporosis Foundation (BHOF) (formerly National Osteoporosis Foundation) is the nations leading health organization dedicated to preventing osteoporosis and broken bones, promoting strong bones for life, and reducing human suffering through programs of public and clinician awareness, education, advocacy, and research. BHOFs mission to educate people about bone health throughout the lifespan will ensure that more people will know what to do at every stage of life to build and maintain strong bones to prevent osteoporotic fractures.

Ruling year info

1985

Principal Officer

Ms. Claire Gill

Main address

251 18th Street South, Suite 630

Arlington, VA 22202 USA

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Formerly known as

National Osteoporosis Foundation (NOF)

EIN

36-3350532

NTEE code info

Nerve, Muscle and Bone Diseases (G50)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Osteoporosis is called a silent disease because there are typically no symptoms until a bone is broken. It is a disease that is associated with pain, disability, reduced quality of life and independence, and death due to complications from fractures. In the U.S. nearly 84 percent of older Americans who suffer bone breaks are not tested or treated for osteoporosis, significantly increasing their risk for secondary fractures. Osteoporotic fractures are responsible for more hospitalizations than heart attacks, strokes, and breast cancer combined. Despite being a treatable disease, osteoporosis remains underdiagnosed and untreated in the U.S.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Education and Awareness

BHOF provides community audiences, patients, and care partners with the latest information on osteoporosis prevention, detection, and treatment to prevent bone loss and fractures by offering a wide variety of programs and resources.
Your Path to Good Bone Health Online Patient Education Tool
In response to feedback from patients, healthcare providers and care partners indicating how daunting it can be for patients to understand the medical terms and key steps to take to prevent and manage osteoporosis, BHOF designed the new Your Path to Good Bone Health website. This patient education tools innovative design is welcoming and easy to use. It places patients in the drivers seat throughout their osteoporosis journey to learn from quick reads, videos, and podcasts. It also helps patients more easily navigate BHOF materials and links to other key resources.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new champions or stakeholders recruited

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

Bone Health and Osteoporosis Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Bone Health and Osteoporosis Foundation

Board of directors
as of 04/11/2024
SOURCE: Self-reported by organization
Board chair

Ms. Kathleen Shoemaker

Retired

Term: 2023 - 2025

Robert F. Gagel, MD

University of Texas MD Anderson Cancer Center

Barbara Hannah Grufferman

C. Berdon Lawrence

L3 Partners, LLC

Andrea Singer, MD

Georgetown University Hospital

Thomas F. Koinis, MD

Duke Primary Care

Joan M. Lappe, Ph.D., RN

Osteoporosis Research Center, Creighton University

Meryl S. LeBoff, MD

Brigham and Women's Hospital

Frederick R. Singer, MD

John Wayne Cancer Institute

Ethel S. Siris, MD

College of Physicians and Surgeons, Columbia University Medical Center

Kenneth W. Lyles, MD

Duke University and VA Medical Centers

Sally Fullman, PH.D.

Project Healthy Bones

Karen Kemmis, PT, RN, DPT

Joslin Diabetes Center and University Endocrinologists

Joshua Wing, MSN, CRNP, RNFA

Andrews Institute for Orthopaedics and Sports Medicine

Laila Tabatbai, MD

Houston Methodist Hospital

Nicole Wright, PH.D.,MPH

University of Alabama

Ann Vu

ZimVie, Inc.

Organizational demographics

SOURCE: Self-reported; last updated 4/11/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/11/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.