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Well Spouse Association

When one is sick, two need help

Freehold, NJ   |  http://www.wellspouse.org

Mission

Well Spouse Association, a nonprofit 501(c)(3) membership organization, provides peer support and advocates for people caring for a chronically ill and/or disabled spouse or partner. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.

Ruling year info

1993

President and Board Member

Laurel Wittman

Main address

63 W Main St Suite H

Freehold, NJ 07728 USA

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Formerly known as

Well Spouse Foundation

WSF

EIN

36-3651073

NTEE code info

Nonmonetary Support N.E.C. (P19)

Counseling Support Groups (F60)

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Chronic illness changes relationships. Almost 6 million people in the US care for an ill or disabled partner. When spouses or partners transition to caregiver and patient roles, they often face the loss of that singular intimate relationship and the companionship it brings. Spousal caregivers spend more hours caregiving each week, doing more intense tasks, and with less outside assistance, than other types of caregivers. The financial impacts of caregiving are different for well spouses from other types of caregivers too - often the partner with illness and the caregiver must give up paid employment. Caregiving for your wife, husband, or partner impacts the decision to have children, the way children are raised, and where and how one lives, works, and retires. There are few areas of life that are left untouched by chronic illness and caregiving in partnered relationships.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

WSA Programs and Services

WSA coordinates a network of peer support groups throughout the US and Canada attended by members who are all spousal caregivers or well spouses.
WSA publishes "Mainstay", a quarterly newsletter circulated to 1,600 people. Mainstay is written by and for our members and is dedicated to the issues faced by well spouses.
We produce and host webinars and symposia on topics of interest to well spouses.
WSA produces an annual National Conference and several regional respite weekends each year.
WSA maintains an active social media presence for 24x7 support and for people who cannot attend our events. This includes our website, which hosts a online forum for members, an active Facebook group, a Reddit subreddit, and a Twitter feed.
WSA also provides continuing support for members whose spouses have died.

Population(s) Served
Adults
Caregivers
Widows and widowers
People with diseases and illnesses
People with disabilities

Where we work

Awards

Rosalynn Carter Caregiving Award/Nat’l Quality Caregiving Coalition 1994

Rosalynn Carter Caregiving Institute

Caregiver Award 2000

Health Insurance Plan (HIP) of NY

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability. We provide support whether you identify as a caregiver or not. The diagnosis doesn't matter to us, and you don't even need to know the diagnosis at all. What matters is that you feel you need support from a community of people who understand. We are an inclusive and welcoming community - no matter your age, partnership arrangement, sexuality, orientation, gender, or religious beliefs.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Well Spouse Association
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Well Spouse Association

Board of directors
as of 11/19/2023
SOURCE: Self-reported by organization
Board chair

Jerry Bishop

No affilation

Term: 2025 - 2023

Terri Corcoran

No Affiliation

Lawrence Bocchiere III

No Affiliation

Robert Mastrogiovanni

No Affiliation

Al Kozin

Barry Appelbaum

Jane Lupo

Laurel Wittman

Tatiana Durbak

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 10/27/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

Transgender Identity

Sexual orientation

Disability