PLATINUM2023

KIDNEY CANCER ASSOCIATION

Unstoppable Together.

aka KCA   |   Houston, TX   |  kidneycancer.org

Mission

The Kidney Cancer Association's mission is to be a global community dedicated to serving and empowering patients and caregivers, and leading change through advocacy, research, and education. Our vision is to be the universal leader in finding the cure for kidney cancer.

Ruling year info

1995

President and CEO

Ms. Gretchen E Vaughan

Main address

2777 Allen Parkway Suite 424

Houston, TX 77019 USA

Show more contact info

EIN

36-3719712

NTEE code info

Kidney (G44)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our vision is to be the universal leader in finding the cure for kidney cancer. Our mission is to be a global community dedicated to serving and empowering patients and caregivers, and leading change through advocacy, research, and education. The KCA promotes scientific advances through two annual research symposiums and a robust grant program, participates in legislative advocacy, and seeks to be a source of education and resources for patients, caregivers, and anyone impacted by kidney cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Support and Empower

SUPPORT AND EMPOWER: We are dedicated to patients and caregivers, providing information, guidance, and support resources to all communities.
• Patient Navigator Program: Receive one-on-one support with our Patient Liaison including help finding a specialist, questions during treatment, local support services, financial information, and more information about a diagnosis.
• Just Diagnosed Toolkit: For newly diagnosed patients, our Just Diagnosed Toolkit is a step- by-step guide and includes a list of questions to ask your doctors.
• Access more resources online to support and empower you and your family. Contact the Patient Liaison for 1-on-1 support or request a printed version of the Just Diagnosed Toolkit. +1-800-544-3KCA I [email protected]

Population(s) Served

EDUCATION: As the first and largest kidney cancer advocacy group, the KCA is the only organization to promote scientific advances and education globally. The KCA provides opportunities for healthcare professionals through:
Symposiums
• International Kidney Cancer Symposium (IKCS Europe) – Spring
• International Kidney Cancer Symposium (IKCS North America) – Fall
• Continuing Medical Education (CME) programming: Free accredited sessions for healthcare professionals to further their kidney cancer education and clinical knowledge.
• Mentorship Program: Leading kidney cancer specialists are paired with promising physicians to expose them to research and clinical practice and contribute to their success.

Population(s) Served

RESEARCH: Funding research has been a pillar of the KCA’s mission since the organization’s inception. The KCA funded $1.375 million in research grants in the last fiscal year.
o Advanced Discovery Award (ADA) : Two $500,000 grants awarded to scientist/clinician teams proposing new research that will make an immediate impact in kidney cancer.
o Young Investigator Award (YIA) : Four $75,000 grants awarded to promising researchers planning to pursue an investigative career in kidney cancer.
o Psychosocial Focus Award : One $75,000 grant awarded to researchers investigating the psychosocial issues facing people impacted by kidney cancer.

Population(s) Served

ADVOCATE: The KCA is active in legislative advocacy efforts, specifically by encouraging individuals to contact their congressional leaders through our letter-writing campaigns. Through our online advocacy portal, individuals write their representatives and the House Committee on Appropriations to advocate for more government-funded research. As part of the Defense Health Research Consortium, we work to protect and enrich government funding for medical research programs. Government funding for kidney cancer has grown steadily from $10 million in 2016 to $50 million in 2021.

Population(s) Served

Where we work

Affiliations & memberships

Strategic Cure Alliance 2022

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of conference attendees

This metric is no longer tracked.
Totals By Year
Related Program

Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of patients benefited by Patient Assistance Fund

This metric is no longer tracked.
Totals By Year
Related Program

Support and Empower

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Patient Assistance Fund was launched in 2021

Number of registrations/attendees at Patient Events

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Research & Education - The KCA is committed to supporting healthcare professionals, fostering professional collaboration, and funding research that advances our understanding of kidney cancer. This work is critical in moving the needle in kidney cancer care to improve the lives of patients and families affected by the disease.

Patient & Care Giver Support - Finding support throughout your kidney cancer journey can be challenging. The KCA has several resources to patients and their care givers get the support and information they need through our patient programs:
* Just Diagnosed Toolkit
* Patient Liaison
* Patient Navigator Program
* Online Community Support
* Patient Assistance Program

The KCA's strategies are to further the reach of KCA programs that benefit patients, caregivers, and the KCA community, build our health care provider network, and increase collaborations to benefit patients.

Programs that help make this happen include:

Research - KCA awards research grants annually

Education - KCA hosts two research symposiums annually – the International Kidney Cancer Symposium: North America (fall) and the International Kidney Cancer Symposium: Europe (spring) for healthcare professionals to advance their knowledge in kidney cancer. KCA also offers free Continuing Medical Education sessions online.

Patient & Care Giver - KCA has programs and resources for various stages of the kidney cancer journey from the Just Diagnosed Toolkit to finding Clinical Trials and much more. We have a full-time Patient Liaison on staff to help guide patients and care givers to the resources they need.

The KCA has hired staff with the expertise and passion for the mission to build-out our programs. The KCA has endowment funds to help ensure the organization is sustainable well into the future.

The KCA:
* awarded $1,375,000 in research grants in fiscal year ending 10/31/2020 and again in 10/31/2021.
* launched and expanded the Patient Assistance Fund program
* launched KCA Connect: Care to Share, a virtual monthly support group
* launched Project Echo for community practitioners to participate in virtual education and mentorship provided by world-renown kidney cancer experts

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

KIDNEY CANCER ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

KIDNEY CANCER ASSOCIATION

Board of directors
as of 03/29/2023
SOURCE: Self-reported by organization
Board chair

Dr. Bradley Leibovich

Mayo Clinic Cancer Center

Term: 2021 -

Noah Buntman

Ronald Bukowski, MD

Tessa Churchill, MD

Craig DePriester

David Perry, Esq.

Daniel George, MD

Jamie Graves

Ryan Natzke

Shelley Robson

Laura Wood, RN

Ruben Ybarra

Mahul Amin, MD

Brian Shuch, MD

Joel Stern

Laurence Albiges, MD, PhD

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/9/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 03/31/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.