Foundation for Nager and Miller Syndromes

Established a Medical Advisory Board to enhance the care of those affected.FNMS programs include a tollfree number for phone support.FNMS webpage provides an abundance of information, photos, and related links. FNMS holds the largest lending library on Nager and Miller anywhere. Excellent 12 pg. newsletter published yearly with articles and member photos. Initiated and support genetic research on synds. through the Univ. of Maryland and Johns Hopkins. We hosts international conferences which bring families and professionals together for the purpose of education and support. FNMS provides needy families with interpreters and financial assistance to travel to conferences. Out of necessity FNMS hosts fundraisers to finance the various FNMS services. FNMS provides scholarships to Camp About Face. FNMS assists health care professionals and students and teachers in their studies or project reuqests on Nager and Miller syndromes to help increase knowledge about sybdromes. FNMS created a Networking List of all known families from around the world with Nager and Mller so they may contact one another for support and information.