PLATINUM2023

The Children's Heart Foundation

Placing Children at the Heart of Research

Northbrook, IL   |  www.childrensheartfoundation.org

Mission

The Children's Heart Foundation's mission is to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.

Ruling year info

2003

President & CEO

Gail Roddie-Hamlin

Main address

5 Revere Drive, One Northbrook Place Suite 200

Northbrook, IL 60062-1500 USA

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EIN

36-4077528

NTEE code info

Heart and Circulatory System (G43)

Medical Specialty Research (H90)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Independent Research Funding

Each year, researchers from around the world answer The Children's Heart Foundation’s independent call for research proposals. Then in the fall, our Medical Advisory Council (MAC) reviews and scores each proposal based on scientific integrity and significance, investigator credibility, and relevance to The Children's Heart Foundation's mission. Recommendations from the MAC are forwarded to our Board of Directors for final approval.

Population(s) Served
Caregivers
Families
Children and youth
People with diseases and illnesses

The Children’s Heart Foundation partners with the American Heart Association to fund Congenital Heart Defect Research Awards. This collaborative investment of funds provides support for investigators who are actively conducting research directly related to advancing the prevention, diagnosis, and treatment of CHDs, which directly aligns with The Children's Heart Foundation's mission.

Population(s) Served
Adults
Children and youth
People with diseases and illnesses

The Children's Heart Foundation funds the American Academy of Pediatrics' educational ​Pediatric Cardiology Research Fellowship Award. This Award promotes the understanding of cardiovascular disease in children. The grant provides research support for an individual who has demonstrated aptitude for basic science or clinical science research during their pediatric cardiology fellowship. The award represents a tremendous opportunity for junior faculty in pediatric cardiology to gain research experience.

Population(s) Served
Children and youth
People with diseases and illnesses

The Children’s Heart Foundation has committed $1.5 million in funding over the next five years (through 2023) to Cardiac Networks United (CNU), an integrated, collaborative pediatric and congenital cardiovascular research and improvement network. Formed in 2017, CNU is a “networks of networks” providing infrastructure for discovery and improvement work to participating networks which is scalable to accommodate a diverse group of collaborative partners and data sources. View all of CNU's collaborating networks here.

Leaders from across the country collaborate to form Cardiac Networks United with the goals of accelerating scientific discovery and improvements in congenital heart care. The initiative brings together data, expertise, and resources spanning several congenital heart networks and includes nearly two-thirds of U.S. congenital heart programs (85 hospitals). The network is led by C.S. Mott Children's Hospital pediatric cardiologists Sara Pasquali, M.D. and Michael Gaies, M.D.,

Population(s) Served
Children and youth
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of US Dollars Spent on Research Funding

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families, Researchers

Related Program

Independent Research Funding

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Please note, the numbers for 2020 were affected by the COVID-19 Pandemic.

Goals & Strategy

SOURCE: Self-reported by organization

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

The Children's Heart Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Children's Heart Foundation

Board of directors
as of 03/15/2023
SOURCE: Self-reported by organization
Board chair

Tamara Thomas

No Affiliation

Kevin Slawin

Martha Hauber

Jim Bolotin

Lori Jones

Dr. John Costello

Tawanna Nishibayashi

Kathryn Osteen

Sally Powers

Danielle Pradas

William Roach

Dr. Jennifer Romano

Kelly Wittich

Betsy Peterson

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/30/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 11/30/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.