Mother and Child Alliance (MACA)

Healthy Babies come from Healthy Moms

aka Pediatric AIDS Chicago Prevention Initiative (PACPI)   |   Chicago, IL   |  www.motherandchildalliance.org

Mission

Mother and Child Alliance (MACA) reinforces a safety net during and after pregnancy for moms, babies, and their providers to prevent HIV and other serious, costly pediatric infections in newborns. We strengthen disparate prenatal and postpartum systems of care in Illinois and across the U.S.

Ruling year info

2003

Executive Director

Ms. Anne Statton

Main address

4101 North Broadway Suite 124

Chicago, IL 60613 USA

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EIN

36-4432079

NTEE code info

Public Health Program (E70)

AIDS (G81)

Hot Line, Crisis Intervention (F40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

24/7 Illinois Perinatal HIV Hotline

The 24/7 Illinois Perinatal HIV Hotline was established in 2003 to provide clinical and social service providers with access to immediate medical and social service consultation for the care of pregnant women living with HIV, 24 hours a day, 7 days a week. The Hotline is housed at Prentice Women’s Hospital of Northwestern Memorial Hospital and is funded by the Illinois Department of Public Health.

Population(s) Served
People with HIV/AIDS

1 in 4 babies born to moms living with HIV can get HIV during pregnancy, childbirth, or through breastfeeding. That risk can be reduced to less than 1% if the mom is screened and treated optimally before delivery.

Many women do not know their HIV status before they get pregnant. An early screen is important because it gives care providers more time to provide optimal treatment. The third trimester screen is important because it is possible to contract HIV during pregnancy.

MACA leadership, volunteers, partners, and supportive legislators helped to develop an important part of the HIV prevention safety net by passing the Illinois Perinatal HIV Prevention Act to ensure good process around pregnancy to help prevent illness.

Population(s) Served
People with HIV/AIDS

Case managers help prepare women for a healthy pregnancy, healthy birth, healthy baby, and a healthy life.

MACA provides a specialized case management program designed for women who need extra support during their pregnancies for managing HIV. We are in process of expanding our program for preventing congenital syphilis.

Coordinated services funded primarily by the Illinois Department of Public Health ensure our moms get the help and support they need to ensure a healthy birth and receive postpartum care for disease-specific interventions.

Population(s) Served
People with HIV/AIDS

Prenatal classes offered with a unique focus on HIV in pregnancy. Proven to help support pregnant women better prepare for a healthy delivery and newborn care.

Classes are open to the community by referral to ensure confidentiality.

Generally delivered in 3 sessions of up to 4 hours each. Partners and close family members are welcome so all can learn together about HIV, pregnancy, and parenthood.

Conducted throughout the year as needed with class sizes ranging from 3 to 10 women plus families and support staff.

Population(s) Served
People with HIV/AIDS

Where we work

Awards

Dance Marathon Recipient 2006

Northwestern University Dance Marathon

Exceptional Case Management Services 2007

Centers for Disease Control and Prevention

Jonas Salk Health Leadership Award 2010

March of Dimes

Healthy Chicago Award 2013

Chicago Department of Public Health

Advocate of the Year 2005

AIDS Legal Council of Chicago

Shining Star Partnership 2004

Levy Cares

Healthy Chicago Award 2013

Chicago Department of Public Health

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Average number of service recipients per month

This metric is no longer tracked.
Totals By Year
Population(s) Served

Young adults, Ethnic and racial groups, Parents, Social and economic status, Health

Related Program

Perinatal Enhanced Case Management Program

Type of Metric

Context - describing the issue we work on

Direction of Success

Holding steady

Context Notes

We are counting the number of pregnant or parenting persons served within a given year, not necessarily the number of pregnancies.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    We serve pregnant and postpartum persons living with HIV, predominantly persons of color, most of whom are Medicaid-eligible. Our client focus for case management services are provided free-of-charge and in the community to reduce barriers to accessibility. Our hotline serves clinicians that might diagnose pregnant or postpartum persons and their newborns with HIV to connect them with state of the art advice and treatment recommendations. Callers can access services in English 24/7 and in Spanish during normal business hours. We also focus on strengthening prenatal and postpartum systems of care for persons living with HIV.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    During the COVID-19 pandemic, many clients did not have either computer access or enough computers for children to attend school and for parents to also be able to access medical services at the same time. We used flexible funding from one donor to provide laptop and desktop computers to over 30 families. We intend to continue to provide basic computer equipment where needed to our clients to help reduce the digital divide in our metro area.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    We have always been strongly impacted by the people that we serve and do our best to provide them services in the way that it is best for them to receive those services. We have done home visits outside during the pandemic, over a video chat to assess the safe sleeping arrangements for baby, provided text messages for medication adherence support, provided a peer service to support and combat isolation and loneliness. We are "known" for our focus groups where clients can openly share their experiences with various community groups and providers to improve how services for parenting persons living with HIV are provided in a culturally competent manner.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to identify actionable feedback,

Financials

Mother and Child Alliance (MACA)
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Mother and Child Alliance (MACA)

Board of directors
as of 9/20/2021
SOURCE: Self-reported by organization
Board chair

Ilana Rosen

Discovery USA

Term: 2019 - 2022

LeSherri James

Howard Brown Health Center

Emily Miller

Northwestern Memorial Hospital

Chardai Johnson

BMO Harris Bank

Nicole Lynch

The Hartford

Angel Ortiz

Business Technology Partners

Stephen Schrantz

University of Chicago Hospitals

Stephanie Schuette

National Dairy Council

Taly Kanfi

Epsilon

Damon Newman

Edward, Maxxon, Mago & Macaulay LLP

Stephen Schrantz

University of Chicago

Ilana Rosen

Discovery, USA

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 03/25/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Non-binary, Not transgender (cisgender)
Sexual orientation
Gay, Lesbian, Bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 03/25/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.