LUNGEVITY FOUNDATION

Find it. Treat it. Live.

Chicago, IL   |  https://www.lungevity.org

Mission

The mission of LUNGevity Foundation is to have a meaningful and immediate impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer.
In order to accomplish our mission, LUNGevity funds the most promising research into the early detection and successful treatment of lung cancer as identified by our board of leading scientists. LUNGevity also supports the largest national grassroots lung cancer network.
We hope to inspire the nation to commit to ending lung cancer.

Ruling year info

2001

Chief Executive Officer

Andrea Ferris

Main address

228 S. Wabash Avenue Suite 700

Chicago, IL 60604 USA

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EIN

36-4433410

NTEE code info

Cancer Research (H30)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

LUNGevity envisions a world where no one dies of lung cancer. Today, the 5-year survival rate for lung cancer lags far behind most other cancers at just 17%, and both federal and private funding are disproportionately low for the nation's #1 cancer killer. Stigma and lack of awareness prevent the disease from receiving the funding it needs, and leaves patients without the support they deserve.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Funding and Conducting Lung Cancer Research

Research saves lives. Strategic investment in lung cancer research will ensure patients the same promise that is now available for breast, prostate, colorectal, and other cancers — earlier detection, more effective treatment options, higher quality of life, and thousands of lives saved.

LUNGevity-funded researchers are working on finding a better way to detect, diagnose, and treat lung cancers and prevent their recurrence. We fund translational research to move knowledge as quickly as possible from basic discovery (“bench”) to treating patients (“bedside”). Funding translational research means that discoveries in the laboratory can be translated into clinical practice — to change outcomes for lung cancer patients.

 
Whether we are supporting early-career scientists or established
researchers, we work with top lung cancer experts to identify and
fund promising and innovative research into the early detection and targeted
treatment of lung cancer.

Population(s) Served
People with diseases and illnesses
Caregivers

LUNGevity Foundation’s Lung Cancer Support Community (LCSC) is a dedicated social network offering support to anyone touched by lung cancer. Created in 2002, LCSC is the largest online lung cancer support network providing users with an extensive message board, the latest lung cancer information, 24-hour support, a card circle program, and notice for lung cancer events and advocacy opportunities that fund LUNGevity’s lung cancer research.
 
 The Survivor Resource Center is a hub for survivors at any stage of their lung cancer journey looking for support, information about the disease, treatment options and other resources that can help make coping and living with lung cancer easier. LUNGevity’s Survivor Resource Center is the first online resource wholly devoted to lung cancer survivors.
 
LifeLine Support Partners are lung cancer survivors or co-survivors (family members and caregivers) who have walked the lung cancer journey and have come out the other side. They volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone.
 
Being a caregiver is both a rewarding and challenging experience. Caregivers willingly and selflessly devote their time to care for their loved ones battling lung cancer, while often neglecting themselves in the process. The Caregiver Resource Center offers resources available to help caregivers be the best they can be, including ways to ask for help from friends and family, to get support from other caregivers, and to get real help with end-of-life issues.

Population(s) Served
People with diseases and illnesses
Caregivers

LUNGevity offers a collection of scientifically-vetted educational tools and materials for patients, caregivers, and healthcare professionals, both in print and on its website, www.lungevity.org

Population(s) Served
Caregivers
People with diseases and illnesses

Where we work

Accreditations

Charity Navigator 4-Star Rating 2020

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of educational materials shipped and downloaded each year

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with diseases and illnesses, Academics

Related Program

Lung Cancer Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Due to the COVID-19 pandemic, shipment of materials was suspended in March of 2020.

Number of patients, caregivers and healthcare professionals reached via email

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with diseases and illnesses, Academics

Related Program

Lung Cancer Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Return on investment of the research we fund

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Funding and Conducting Lung Cancer Research

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Dollars of follow-on funding earned for each dollar of research we fund. Please note that most research was suspended in 2020 due to the COVID-19 pandemic.

Number of patients surveyed on treatments and the patient experience

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Funding and Conducting Lung Cancer Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

LUNGevity believes that with increased funding for research, greater awareness and empowered survivors, we will see the day when lung cancer is a chronic, treatable disease.

LUNGevity is addressing these issues by developing and implementing programs that 1) accelerate research that patients value, 2) empower patients to actively engage in their treatment decisions, and 3) identify patient preferences and challenges in areas such as treatment options and enrollment in clinical trials. We represent the patient voice through our many strategic partnerships, advisory board service and collaborations with industry, government agencies and other nonprofit organizations.

LUNGevity has gained the reputation as the go-to organization for those seeking access to lung cancer patients. Our senior management team is comprised of seasoned professionals with deep experience in the nonprofit sector. LUNGevity's reach is expansive due to participation in our Breathe Deep grassroots events program in 47 cities across the country, our survivor educational conferences, including HOPE Summit, our highly engaged online lung cancer communities, and our affiliation with the nation's leading experts in thoracic oncology.

We are a trusted partner to a wide range of organizations and government agencies, and respected for our understanding of the unmet needs of people affected by lung cancer. LUNGevity actively seeks partnerships with other advocacy organizations, health care providers and institutions, government entities and the corporate world. LUNGevity has established many rewarding relationships with corporations that support the Foundation's work and these relationships are increasingly about collaboration and less transactional in nature. As a nonprofit, we are in the unique position to bring together two important stakeholders, advocacy and industry, to partner on solutions to benefit those affected by lung cancer; these initiatives are proving to be ongoing and effective.

Research saves lives. Strategic investment in lung cancer research will ensure patients the same promise that is now available for breast, prostate, colorectal, and other cancers — earlier detection, more effective treatment options, higher quality of life, and thousands of lives saved.

LUNGevity research is 100% patient-focused. We conduct and fund research that has potential to revolutionize outcomes for those diagnosed with lung cancer.

With our strategic approach to translational research in two priority areas—finding lung cancer early and treating it more effectively—our research speeds breakthroughs to patients so people can live longer and better lives.

LUNGevity builds on the success of these research programs by partnering and collaborating with other organizations to make the greatest progress in advancing science for patients. LUNGevity collaborates with organizations like Stand Up To Cancer and American Lung Association to fund large, multi-institution early detection projects.

LUNGevity ensures research is impactful by partnering with patient groups like ALK Positive, a group of 1,000+ ALK-positive patients and their caregivers in 41 countries who are raising significant funds for research into their specific biomarker.

LUNGevity’s Patient-Focused Research Center (Patient FoRCe) is changing the paradigm in lung cancer from assumptions being made about patient preferences to evidence-based conclusions about what patients value.

LUNGevity is researching new ways to reduce health disparities in lung cancer through our Community-Based Participatory Research program, which brings together researchers and community stakeholders as equal partners in the research process.

Education and Support: The organization has helped thousands of people affected by lung cancer find the support and information they need to navigate a lung cancer diagnosis. We've matched patients and caregivers with mentors, provided lists of questions for meetings with healthcare providers, convened survivors and caregivers at educational conferences to learn about advances in medicine and ways to live better with lung cancer, and updated our constituents on the latest research and treatment advances by our awardees and other researchers. And by building and mobilizing the lung cancer community through our social media, events and conferences, we are helping to make lung cancer a national priority.

With all the educational and support resources that LUNGevity can provide patients and caregivers, we are working hard to “reach the unreached" when they need help the most. There is anecdotal evidence that most lung cancer patients aren't handed materials with educational and support resources at the time of diagnosis; we know from studies that educated patients have better outcomes. LUNGevity is working with industry and healthcare providers to solve this challenge.

Financials

LUNGEVITY FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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LUNGEVITY FOUNDATION

Board of directors
as of 8/2/2021
SOURCE: Self-reported by organization
Board chair

Alexander Stern

Lazard Ltd

Term: 2020 - 2023

Andrea Ferris

LUNGevity Foundation

Paul Stern

Dow Chemical Company

Alexander Stern

Lazard

Andrew Stern

Five Points Partners, LLC

Peter Babej

Citibank

Charles Rudin

Memorial Sloan-Kettering Cancer Center

Lynne Doughtie

KPMG

Tom Galli

Lung Cancer Survivor

Michael Marquis

Vogue, a Johnson & Johnson Company

Andre Owens

WilmerHale

Nichelle Stigger

Teacher/Lung Cancer Survivor

William "BJ" Jones

Biohaven Pharmaceuticals

Jennifer Kashatus

DLA Piper LLP

Michael Kolodziej, MD

ADVI Health

Michael Parisi

Guidemark Health

Robery Winn, MD

VCU Massey Cancer Center

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 4/29/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/29/2021

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.