Leukemia Research Foundation, Inc.

A world without leukemia

Northfield, IL   |  https://leukemiarf.org

Mission

Our mission is to cure leukemia by funding innovative research, and to support patients and families.

Ruling year info

1954

Executive Director

Mr. Kevin Radelet

Board Chair

Blake Brandwein

Main address

191 Waukegan Road Ste 105

Northfield, IL 60093 USA

Show more contact info

EIN

36-6102182

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Cancer (G30)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2021, 2020 and 2019.
Register now

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Leukemia does not discriminate. It can happen to anyone, regardless of age, gender, or race - at anytime. Leukemia is the second most prevalent blood cancer in the United States. While leukemia survival rates have increased over the past 75 years, much work still needs to be done. Funding research is the only way to discover the ultimate cure. At the same time, supporting those with a leukemia diagnosis is critical. The need for patient education is widely recognized in the medical community. Well-educated patients are better able to understand and manage their own health and medical care throughout their lives. The financial costs of cancer care are a tremendous burden to people diagnosed with cancer, their families, and society as a whole. The economic toll of cancer can be profound.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Grant Program

The Leukemia Research Foundation’s Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.

Population(s) Served
People with diseases and illnesses

The Leukemia Research Foundation is the nation's largest nonprofit focused exclusively on funding leukemia research to accelerate the development of new and better treatments and an ultimate cure. Leukemia is a complex disease with numerous subtypes that differ in clinical presentation and treatment response. Our grants fund a broad range of topics so researchers can investigate leukemia from every angle. With millions directed toward research, we are on the path to finding a cure – and won't stop until we do.

Population(s) Served

Through our patient-centered approach, access to leukemia experts, and nationwide partnerships, our support programs help patients and their loved ones navigate every step of their cancer journey. Our goal is to provide leukemia patients and their families with a single and trusted source for information, education programs, and support services and connect them with other credible organizations and resources.

Population(s) Served
People with diseases and illnesses
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Related Program

Leukemia Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Each year, the Leukemia Research Foundation provides one-year grants of up to $100K to help fund research projects. The numbers for each year are the number of grants awarded.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Vision: A world without leukemia.

Mission: Our mission is to cure leukemia by funding innovative research, and to support patients and families.

1. Advance science
-Identify optimal outcomes to demonstrate science advancement
-Increase research funding
-Expand portfolio of research grant program(s)

2. Cultivate strategic leadership
-Attract new members and enhance the role of the Board of Directors, Medical Advisory Board, and Patient Advisory Committee
-Develop a culture of learning and development

3. Expand our reach
-Increase our network of patients, caregivers, donors, researchers, and healthcare professionals
-Identify strategic partnerships and build new relationships

4. Enhance value
-Obtain regular feedback from stakeholders
-Better understand our audiences and their needs
-Develop targeted programs and communications

Cancer is costly: physically, emotionally, and economically. Funding research to find a cure is the only permanent solution. The ability to translate science from laboratory research into effective therapies is vital. The rate of progress in cancer diagnosis, treatment, and prevention must continue until the disease is conquered. Over seven decades, the Leukemia Research Foundation's capacity to provide these programs grew out of the dedication of countless volunteers committed to finding a cure. Today there are 23 active chapters that comprise the underpinning of the Leukemia Research Foundation Within these chapters, hundreds of volunteers conduct a variety of fundraising events every year to raise funds to support our programs.

In addition to the important event-focused chapter work, the Leukemia Research Foundation relies on the support of everyday people from around the country who long for a world without leukemia. Financial support from individuals, corporations, foundations, and other giving entities are necessary to reach our goals and are pursued through a variety of traditional philanthropic methods including direct mail, sponsorship, cause-marketing partnerships, grants, major gifts, employee giving, and much more. Legions of non-chapter volunteer groups nationwide, who are intensely dedicated to the goals and purpose of the Leukemia Research Foundation, also join forces by conducting various large and small fundraising events in their local area. The L

The Leukemia Research Foundation maintains a modest reserve account in case of emergency, but is committed to distributing annual charitable contributions for their donor's intended use in the year in which they are received.

The Leukemia Research Foundation's leadership is made up of people who have coped with, firsthand, the death of a loved one, or have personally survived a leukemia diagnosis themselves. As a result, the Fundation's policy and governance is based upon personal experience as well as true compassion with the hope that in the future no one will experience what they, themselves have endured.

As the nation’s largest nonprofit focused exclusively on funding leukemia research, the Foundation has invested in more than 600 research projects worldwide to accelerate the development of new and better treatments and an ultimate cure for leukemia. Through its patient-centered approach, access to leukemia experts, and nationwide partnerships, the Foundation’s support programs help patients and their loved ones navigate every step of the cancer journey. With more than $80M raised in support of its mission, the Leukemia Research Foundation is on the path to finding a cure.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    The Leukemia Research Foundation provides one-year grants of up to $100K to new investigators – researchers within seven years of their first independent faculty-level position. Projects must focus on leukemia or myelodysplastic syndromes. Through our patient-centered approach, access to leukemia experts, and nationwide partnerships, our support programs help patients and their loved ones navigate every step of their cancer journey. Our goal is to provide leukemia patients and their families with a single and trusted source for information, education programs, and support services and connect them with other credible organizations and resources. Our Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    After administering a patient survey and conducting individual interviews with social workers who refer patients, the Leukemia Research Foundation made changes to our Patient Financial Assistance Program. The program was converted from providing reimbursements for medical/pharmacy expenses to a grant program, which provides a lump-sum payment that can be used for any necessary expenses during treatment and disease management. Patients and social workers provided feedback that the reimbursement was cumbersome for patients and it did not cover needed expenses, such as transportation to treatment, lodging during a transplant, or basic needs expenses. After changing the program, we have received feedback that the new program is easy to use and much more helpful to patient participants.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    In the provided example of how the Leukemia Research Foundation made changes to the Patient Financial Assistance Program, the feedback we received from patient program participants taught us what patients need, what would be most helpful to them in their time of need, and what they experience as they are diagnosed and going through treatment. Their input shifted our expense category rules, making our program much more flexible and beneficial to patients.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

Leukemia Research Foundation, Inc.
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Leukemia Research Foundation, Inc.

Board of directors
as of 07/13/2022
SOURCE: Self-reported by organization
Board chair

Blake Brandwein

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/25/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data