CHILDRENS LEUKEMIA FDN OF MI dba The Blood Cancer Foundation of Michigan
Supporting Patients and Families
Programs and results
What we aim to solve
Every 90 minutes-amounting to 18 per day in our state alone, someone in Michigan receives a blood cancer diagnosis, producing a seismic and life altering shift for the patient and family. Long, strenuous, treatment protocols, side effects and longer treatment duration often cause enormous and long-lasting emotional, social, and financial strain. One in every 21 is a child. Throughout the experience, people face huge decisions and changes in their lifestyle. Beyond coming to terms with a life threatening illness, they have countless roles and responsibilities related to parenting, their relationships, and work. They're concerned about threats to their health, independence and ability. They may have treatment side effects, no way to get to appointments, financial worries, a need to stop working, or feel isolated and depressed.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Social-work-based Emotional Support
Personalized case management
Personal in-office or virtual support
Ongoing phone calls or emails
Support groups
Community resources for caregiver support
Financial Assistance
Customized financial roadmaps
Help planning for cancer-related expenses
Connect with outside resources
Patient Reimbursement Fund*
For treatment-related expenses not covered by insurance (prescriptions, transportation to treatment for patients and caregivers)
Special Needs Grant*
For urgent one-time needs (housing, utilities, emergency car repairs)
Education and Resources
Access to extensive resource library
Information on diagnosis, coping, financial and emotional issues, etc.
Referral services
Stepping Stones resource kit for newly registered patients
Holiday Toys Program
Holiday Toys Program
Wish list fulfillment during the holidays for pediatric patients and their siblings, as well as children of adult patients (18 and under)
Social Support
Fun experiences and opportunities to connect with other patients and families throughout the year
Holiday parties (Valentine’s, Halloween, Christmas)
Ticketed events (movies, sports, concerts)
Family outings (bowling, skating, dinner, horseback riding, cider mills)
Where we work
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of patients enrolled in CLF's service
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Social-work-based Emotional Support
Type of Metric
Input - describing resources we use
Direction of Success
Holding steady
Context Notes
Through disease information & resources, emotional support, financial help & events & fun, we currently help approx. 3k families maintain their quality of life while dealing with often severe illness.
Total dollars paid either on patient's behalf as a special needs grant or directly to patients as reimbursements.
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Financial Assistance
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
Patient Reimbursement Fund help cover the costs of prescriptions & transportation Special Needs Grant, a grant to help cover unexpected life expenses, such as car repairs, utility shut-offs etc..
Number of children receiving holiday toys from our Holiday Toys program.
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth
Related Program
Financial Assistance
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Holiday toys are provided for pediatric patients and all children (18 and under) under guardianship of adult patients
Percentage of patients reporting that they are very satisfied with our services
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Patient satisfaction surveys are completed every other year. On alternating years, satisfaction surveys are sent to healthcare professionals.
Number of participants actively attending or engaged in support programs
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Number of patients attending monthly blood cancer support group
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Social-work-based Emotional Support
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Number of patient support case management hours provided
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
CLF’s mission is to improve the lives of people affected by cancer, now, with our Patient Services Program. Master's level social workers deliver resources in four distinct areas to bring immediate and ongoing support to ensure family sustainability over time:
1. Disease Education
2. Emotional Support
3. Social Support
4. Financial Assistance
What are the organization's key strategies for making this happen?
1. Education: Empowering patients and families with online and on-site resource materials-including a 150 page new patient binder aptly named, "Stepping Stones", answering questions and helping patients talk through terms and information. Referring to the exhaustive list of hundreds of organizations in which we have grown our connections since 1952.
2. Emotional Support: Providing ongoing, customized relationship with our Patient Service Professionals, in person or by phone, to help patients, caregivers, and family members cope with ongoing life changes and stress caused by the disease.
Caseworkers provde the friend role, can help patients connect to mentors that have been through similar journeys, and let them know about support groups that are offered for free in many areas throughout the state.
3. Social Support: CLF provides opportunities for patients young and old and their families to get out and have fun in social settings with others who have been where they are. It's opportunity to get away and be with each other, at no expense to themselves. It can be an uplifting and strengthening experience to be in a clean, supportive community of like-minded individuals and we have numerous stories of life-long relationships developing as a result of free, CLF gatherings. At the request of our patients and their loved ones, we have initiated new teen-focused outings (all are still welcome) and caregiver-oriented ticket give-a-ways; so, all involved in recovery from cancer receive our support.
4. Financial Assistance: Providing support in two areas - the Reimbursement Fund supports travel, prescriptions and OTC medications, and our Special Needs Grant provides for unexpected expenses that arise and threaten treatment, including housing, automotive repair, utility payments, etc.
What are the organization's capabilities for doing this?
Children's Leukemia Foundation of Michigan (CLF) is built upon a legacy which began in 1952 by a group of parents who had endured the loss of a child to Leukemia; and, vowed that no family ever walk the path they had, alone. It became incorporated and began supporting adults and children in 1957. At present, the non-profit, all-volunteer Board of Directors consists of 16 highly successful, committed and engaged Business owners, lawyers, executives and doctors who connect deeply to the success of CLF's mission and strategically support the direction of the Foundation. Heidi Grix, CLF's President and CEO since 2014 is a profoundly compassionate and equally experienced leader in both fundraising and family services Executive Director who spearheads the CLF team in conjunction with Melissa Antoncic who leads the master-level Patient Service Caseworkers and Outreach team across the state. She, with a team of five, match over 100k in patient aid to patient families in need while dedicating time to make over 6700 annual phone calls, attending over 50 CLF funded patient-community events. Melissa also hosts a cancer support group monthly. The remaining educated, experienced staff of 4 administer, coordinate and champion the marketing, the Events, the donations and the offices located in Farmington Hills and Grand Rapids, Michigan.
Because CLF is 100% reliant on philanthropic funding from its donors and the grants which it receives we are indebted to our donors who believe in and serve our mission to aid patients and their loved ones emotionally and practically from the diagnosis, through treatment and beyond..
We are among a small group of charities receiving a maximum rating of 4 stars from Charity Navigator for strong financial health and commitment to accountability and transparency
What have they accomplished so far and what's next?
Currently, CLF supports more than 3,200 families across Michigan, and is experiencing a surge in requests for services.
We currently serve 80% adults and 20% pediatric patients. Our Holiday Toys program, gifting toys to any child within a patient family has increased nearly 37% over last year.
Approximately 35% of our more than 3000 current patients and families live within 80% of the median income for the state of Michigan, before diagnosis. Our interventions help keep these families from falling through the cracks as treatment wears on.
Gifts to CLF over the FY between 2018-19 enabled us to provide more than $113,000 in financial assistance to over 450 patients and families whose finances were stretched precariously thin across the state of Michigan. This is nearly double what we distributed in 2017 and was the highest level of financial support CLF has ever been able to provide.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
CHILDRENS LEUKEMIA FDN OF MI dba The Blood Cancer Foundation of Michigan
Board of directorsas of 09/08/2023
Mr. James (Jim) H. Berline
B E R L I N E
Term: 2004 - 2022
Mr. William J. Royce
Dynatrace
Term: 2017 - 2023
Heidi Grix
President, CEO, The Blood Cancer Fdn of Michigan
James Berline
BERLINE
Eric Dresden
Wallbridge
Gary . Gonzalez
CEO, Gonzalez Design Group
Stuart Best
JD
L. Kate Gowans
MD, Division Chief, Pediatric Hematology / Oncology
Bradley Evans
Matthew J. Richter
Alidade Capital, VP Investor Relations
Kristen Palazeti
Private Wealth Advisor, VP, Rockefeller Capital Managment
Tameka Lewis
The Hope Foundation
Peter M. Marantette
General Manager, Reserve Wine and Food
John E. Lallo
CPA, Executive VP, Orka Business Solutions
Kevin M. Whitlock
President, Tedder Whitlock
Claudia Rast
JD, Shareholder, Butzel Long
William J. Royce
President, Detroit JetLinx
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
Transgender Identity
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 09/07/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.