PLATINUM2022

CHILDRENS LEUKEMIA FDN OF MI dba The Blood Cancer Foundation of Michigan

Supporting Patients and Families

aka the Blood Cancer Foundation of Michigan or BCFM   |   Farmington Hills, MI   |  http://www.bloodcancerfoundationmi.org

Mission

To provide and promote compassionate, personalized support to patients and families in Michigan affected by leukemia, lymphoma and other blood related disorders.

Ruling year info

1954

President

Ms. Heidi Grix CFRE

Main address

PO BOX 2477

Farmington Hills, MI 48333 USA

Show more contact info

Formerly known as

CLF

EIN

38-1682300

NTEE code info

Cancer (G30)

Alliance/Advocacy Organizations (Y01)

Counseling Support Groups (F60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every 90 minutes-amounting to 18 per day in our state alone, someone in Michigan receives a blood cancer diagnosis, producing a seismic and life altering shift for the patient and family. Long, strenuous, treatment protocols, side effects and longer treatment duration often cause enormous and long-lasting emotional, social, and financial strain. One in every 21 is a child. Throughout the experience, people face huge decisions and changes in their lifestyle. Beyond coming to terms with a life threatening illness, they have countless roles and responsibilities related to parenting, their relationships, and work. They're concerned about threats to their health, independence and ability. They may have treatment side effects, no way to get to appointments, financial worries, a need to stop working, or feel isolated and depressed.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Social-work-based Emotional Support

Personalized case management
Personal in-office or virtual support
Ongoing phone calls or emails
Support groups
Community resources for caregiver support

Population(s) Served
Adults
Children and youth
Caregivers

Customized financial roadmaps
Help planning for cancer-related expenses
Connect with outside resources
Patient Reimbursement Fund*
For treatment-related expenses not covered by insurance (prescriptions, transportation to treatment for patients and caregivers)
Special Needs Grant*
For urgent one-time needs (housing, utilities, emergency car repairs)

Population(s) Served
Caregivers
Older adults
Seniors
Young adults
Children and youth

Access to extensive resource library
Information on diagnosis, coping, financial and emotional issues, etc.
Referral services
Stepping Stones resource kit for newly registered patients

Population(s) Served

Holiday Toys Program
Wish list fulfillment during the holidays for pediatric patients and their siblings, as well as children of adult patients (18 and under)

Population(s) Served
Families
Caregivers
Children and youth
Non-adult children

Fun experiences and opportunities to connect with other patients and families throughout the year
Holiday parties (Valentine’s, Halloween, Christmas)
Ticketed events (movies, sports, concerts)
Family outings (bowling, skating, dinner, horseback riding, cider mills)

Population(s) Served
Children and youth
Adults
Caregivers
Children and youth
Adults
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of patients enrolled in CLF's service

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Social-work-based Emotional Support

Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Context Notes

Through disease information & resources, emotional support, financial help & events & fun, we currently help approx. 3k families maintain their quality of life while dealing with often severe illness.

Total dollars paid either on patient's behalf as a special needs grant or directly to patients as reimbursements.

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Financial Assistance

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Patient Reimbursement Fund help cover the costs of prescriptions & transportation Special Needs Grant, a grant to help cover unexpected life expenses, such as car repairs, utility shut-offs etc..

Number of children receiving holiday toys from our Holiday Toys program.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Financial Assistance

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Holiday toys are provided for pediatric patients and all children (18 and under) under guardianship of adult patients

Percentage of patients reporting that they are very satisfied with our services

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Patient satisfaction surveys are completed every other year. On alternating years, satisfaction surveys are sent to healthcare professionals.

Number of participants actively attending or engaged in support programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of patients attending monthly blood cancer support group

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Social-work-based Emotional Support

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

CLF’s mission is to improve the lives of people affected by cancer, now, with our Patient Services Program. Master's level social workers deliver resources in four distinct areas to bring immediate and ongoing support to ensure family sustainability over time:
1. Disease Education
2. Emotional Support
3. Social Support
4. Financial Assistance

1. Education: Empowering patients and families with online and on-site resource materials-including a 150 page new patient binder aptly named, "Stepping Stones", answering questions and helping patients talk through terms and information. Referring to the exhaustive list of hundreds of organizations in which we have grown our connections since 1952.

2. Emotional Support: Providing ongoing, customized relationship with our Patient Service Professionals, in person or by phone, to help patients, caregivers, and family members cope with ongoing life changes and stress caused by the disease.
Caseworkers provde the friend role, can help patients connect to mentors that have been through similar journeys, and let them know about support groups that are offered for free in many areas throughout the state.

3. Social Support: CLF provides opportunities for patients young and old and their families to get out and have fun in social settings with others who have been where they are. It's opportunity to get away and be with each other, at no expense to themselves. It can be an uplifting and strengthening experience to be in a clean, supportive community of like-minded individuals and we have numerous stories of life-long relationships developing as a result of free, CLF gatherings. At the request of our patients and their loved ones, we have initiated new teen-focused outings (all are still welcome) and caregiver-oriented ticket give-a-ways; so, all involved in recovery from cancer receive our support.

4. Financial Assistance: Providing support in two areas - the Reimbursement Fund supports travel, prescriptions and OTC medications, and our Special Needs Grant provides for unexpected expenses that arise and threaten treatment, including housing, automotive repair, utility payments, etc.

Children's Leukemia Foundation of Michigan (CLF) is built upon a legacy which began in 1952 by a group of parents who had endured the loss of a child to Leukemia; and, vowed that no family ever walk the path they had, alone. It became incorporated and began supporting adults and children in 1957. At present, the non-profit, all-volunteer Board of Directors consists of 16 highly successful, committed and engaged Business owners, lawyers, executives and doctors who connect deeply to the success of CLF's mission and strategically support the direction of the Foundation. Heidi Grix, CLF's President and CEO since 2014 is a profoundly compassionate and equally experienced leader in both fundraising and family services Executive Director who spearheads the CLF team in conjunction with Melissa Antoncic who leads the master-level Patient Service Caseworkers and Outreach team across the state. She, with a team of five, match over 100k in patient aid to patient families in need while dedicating time to make over 6700 annual phone calls, attending over 50 CLF funded patient-community events. Melissa also hosts a cancer support group monthly. The remaining educated, experienced staff of 4 administer, coordinate and champion the marketing, the Events, the donations and the offices located in Farmington Hills and Grand Rapids, Michigan.
Because CLF is 100% reliant on philanthropic funding from its donors and the grants which it receives we are indebted to our donors who believe in and serve our mission to aid patients and their loved ones emotionally and practically from the diagnosis, through treatment and beyond..
We are among a small group of charities receiving a maximum rating of 4 stars from Charity Navigator for strong financial health and commitment to accountability and transparency

Currently, CLF supports more than 3,200 families across Michigan, and is experiencing a surge in requests for services.

We currently serve 80% adults and 20% pediatric patients. Our Holiday Toys program, gifting toys to any child within a patient family has increased nearly 37% over last year.

Approximately 35% of our more than 3000 current patients and families live within 80% of the median income for the state of Michigan, before diagnosis. Our interventions help keep these families from falling through the cracks as treatment wears on.

Gifts to CLF over the FY between 2018-19 enabled us to provide more than $113,000 in financial assistance to over 450 patients and families whose finances were stretched precariously thin across the state of Michigan. This is nearly double what we distributed in 2017 and was the highest level of financial support CLF has ever been able to provide.

Financials

CHILDRENS LEUKEMIA FDN OF MI dba The Blood Cancer Foundation of Michigan
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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CHILDRENS LEUKEMIA FDN OF MI dba The Blood Cancer Foundation of Michigan

Board of directors
as of 11/08/2022
SOURCE: Self-reported by organization
Board co-chair

Mr. James (Jim) H. Berline

B E R L I N E

Term: 2004 - 2022


Board co-chair

Mr. William J. Royce

JetLinx

Term: 2017 - 2023

Heidi Grix

President, CEO, The Blood Cancer Fdn of Michigan

James Berline

BERLINE

Eric Dresden

Wallbridge

Gary Gonzalez

CEO, Gonzalez Design Group

Stuart Best

JD

L. Gowans

MD, Division Chief, Pediatric Hematology / Oncology

Bradley Evans

Matthew Richter

Alidade Capital, VP Investor Relations

Kristen Palazeti

Private Wealth Advisor, VP, Rockefeller Capital Managment

Tameka Lewis

The Hope Foundation

Peter Marantette

General Manager, Reserve Wine and Food

John Lallo

CPA, Executive VP, Orka Business Solutions

Kevin Whitlock

President, Tedder Whitlock

Claudia Rast

JD, Shareholder, Butzel Long

William Royce

President, Detroit JetLinx

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/6/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data