ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
One Mission: End AHC
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Alternating Hemiplegia of Childhood
Find a cure and treatment for AHC
Grant Program for Families
This program was established by the AHCF Board as a way to alleviate some of the financial challenges faced by those with AHC and their families.
Biennial "Family Meetings"
AHCF hosts a Biennial conference for AHC children, adults and their families in which they have an opportunity to meet the leading AHC researchers and clinicians from around the world, learn about the most up to date ideas for activities of daily living with the disorder and bond with other families and children with AHC. This is vitally important since it is such a rare disorder and otherwise parents would not have this opportunity.
Where we work
External reviews

Photos
Videos
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
Board of directorsas of 11/08/2022
Mr. Joshua Marszalek
AHCF
Term: 2019 - 2023
Joshua Marszalek
AHCF
Sharon Ciccodicola
AHCF
Vicky Platt
AHCF
Gene Andrasco
AHCF
Bill Gerber
AHCF
Katelyn Wilson
AHCF
Kate Byrne
AHCF
April Hawk
AHCF
Stephen Henderson
AHCF
Heather Gates
AHCF
Cate Cohen
AHCF
Heather Gates
AHCF
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
Sexual orientation
No data
Disability
No data