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ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

One Mission: End AHC

aka AHCF   |   Southfield, MI   |  ahckids.org

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Mission

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Through research, education and family support, we have ONE MISSION: END AHC

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients.

Ruling year info

1997

President

Mrs. Vicky Platt

Main address

2000 Town Center Suite 1900

Southfield, MI 48075 USA

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Formerly known as

Alternating Hemiplegia Foundation

EIN

38-3225425

NTEE code info

Specifically Named Diseases (G80)

Fund Raising and/or Fund Distribution (H12)

Single Organization Support (H11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Alternating Hemiplegia of Childhood

Find a cure and treatment for AHC

Population(s) Served
Families
People with disabilities

This program was established by the AHCF Board as a way to alleviate some of the financial challenges faced by those with AHC and their families.

Population(s) Served
Families

AHCF hosts a Biennial conference for AHC children, adults and their families in which they have an opportunity to meet the leading AHC researchers and clinicians from around the world, learn about the most up to date ideas for activities of daily living with the disorder and bond with other families and children with AHC. This is vitally important since it is such a rare disorder and otherwise parents would not have this opportunity.

Population(s) Served
Families
People with disabilities

Where we work

Videos

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

Board of directors
as of 05/01/2024
SOURCE: Self-reported by organization
Board chair

Mrs. Vicky Platt

AHCF

Term: 2023 - 2026

Vicky Platt

AHCF

Gene Andrasco

AHCF

Bill Gerber

AHCF

Heather Gates

AHCF

Cate Cohen

AHCF

Heather Gates

AHCF

Kathy Sharo

AHCF

Lynn Egan

AHCF

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 5/1/2024
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Gender identity
Female

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 05/01/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.