Mission
Vision: A life free of cutaneous lymphoma Mission: Eliminate the burden of cutaneous lymphoma by; • Promoting awareness • Providing education • Advancing patient care • Fostering research
Ruling year
1999
Chief Executive Officer
Ms. Susan Thornton
Main address
PO Box 969
Warren, MI 48090 USA
Formerly known as
Mycosis Fungoides Foundation
EIN
38-3443135
NTEE code
Cancer (G30)
Cancer Research (H30)
Counseling Support Groups (F60)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Patient Educational Events
Through both in person and online we offer over 20 educational events annually; hour long virtual as well as evening, one day and two day in person programs for people affected by cutaneous lymphomas
Online Learning Center
The Foundation has a robust online learning center located within our website. This includes vetted electronic educational publications, videos and articles, along with stories of help and hope, treatment center and clinical trial listings.
Research
Through our Research Awards Program the Foundation supports research and researchers in the area of cutaneous lymphoma
Publications and Educational Materials
We offer a wide verity of educational and inspirational publications available for distribution in hard copy. Newsletters, Patient's Guide to Cutaneous Lymphoma, an assortment of disease specific Fast Facts brochures, Supplements to the Guide, and others.
Patient Advocacy and Awareness
We provide the patient's voice and perspective across a wide variety of global alliances, governments, regulatory, as well as collaborative efforts.
Where we work
External reviews
Videos
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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Cutaneous Lymphoma Foundation
Board of directorsas of 11/02/2022
Ms. Luarel Carlson
No Affiliation
Mr David Elefant
Michael Young
Susan Thornton
Laurel Carlson
Marianne Tawa
Jeff Ward
Steven Horwitz
Youn Kim
David Elefant
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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