NephCure
For rare kidney disease.
Programs and results
What we aim to solve
Working with all stakeholders to bring treatments for Nephrotic Syndrome and FSGS to the market.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Research Acceleration
NephCure is working to identify all patients and educate them on clinical trials.
Where we work
Affiliations & memberships
National Organization for Rare Disorders - Member 2018
External reviews

Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of patients positively affected by educating clinicians
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
These numbers are estimated by how many clinicians attended our educational offerings and their responses to our surveys.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
NephCure aims to accelerate research into treatments for FSGS and Nephrotic Syndrome.
What are the organization's key strategies for making this happen?
NephCure is working to identify all NS/FSGS patients and educate them about clinical trials.
What are the organization's capabilities for doing this?
NephCure is the only patient advocacy group serving this population. We know the doctors who treat these patients and many of the patients already.
What have they accomplished so far and what's next?
We have partnered with multiple (upwards of 20) pharmaceutical and biotech companies to help recruit for upcoming trials.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
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Which of the following feedback practices does your organization routinely carry out?
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What challenges does the organization face when collecting feedback?
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
NephCure
Board of directorsas of 03/31/2023
Michael Levine
Irving Smokler, Ph.D.
Ron Cohen
Michael Levine
Andrew Silverman
Carol Smokler, Ph.D.
Elaine Kamil, M.D.
William Smoyer, M.D.
David Kershaw, M.D., FAAP
Jim Duquette
Scott Goldstein
Sarretta McDonough, Esq.
John Roy
Jennifer Geisser
Manu Varma, D.O.
Chris Whitney
Mark Winward
Stephen Hollomon
Kirk Campbell, M.D.
Laurel Damashek
Charles Davis III
Kevin Mott
Rebecca Oag
Joshua Roy, Esq.
Christopher J. Windisch
Martin Zimmerman
Troy Jones
Daniel Simon
Tyler Wellman, M.D.
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No