Tigerlily Foundation
Beauty. Strength. Transformation.
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
HEAL Policy Center of Excellence
Tigerlily Foundation’s Health Equity Advocacy and Leadership (HEAL) Policy Center of Excellence (COE) aims to educate, empower, and lift patient voices to ensure they are amplified, in order to achieve health equity and end disparities. The HEAL Policy COE focuses on systemic changes through policy at the local, state, and federal level to (1) end barriers to accessing and receiving quality, equitable care for all, (2) lead innovation through patient-leadership, and (3) achieve health equity and eliminate disparities in breast cancer.
Hope Box Program
Tigerlily’s Hope Boxes allow connection with newly-diagnosed women to help them face the future, armed with knowledge, resources and inspiration—emotionally, spiritually and physically. We send a Hope Box filled with gifts to pamper, soothe, educate, empower and help women to manage stress and deal with their new diagnosis.
Clinical Trials Program
Tigerlily Foundation’s Clinical Trials Program is a transformational initiative to accelerate the delivery of innovative treatments to our patients, with a strategic focus on populations that are facing the highest disparities. This initiative serves to educate communities of color about the benefits of participating in clinical trials, and provides information and resources to reduce the fears associated with the unknown.
#KNOWMOREDISPARITIES & #PULLUPASEAT BI-DIRECTIONAL CONVERSATION SERIES
Launched in Fall 2020, the Tigerlily Foundation and Guiding Researchers & Advocates to Scientific Partnerships (GRASP) monthly conversation series shines a light on the experiences of Black women with breast cancer through two conversations, #KnowMoreDisparities & #PullUpASeat. #KnowMoreDisparities conversations are facilitated for and by Black women to create a safe space for honest conversations with Black physicians and medical clinicians to discuss their experiences of health inequality, implicit racial bias and lessons learned. #PullUpASeat conversations, co-hosted by Black patients and doctors, amplifies the voices of Black women through candid conversations with non-Black physicians and medical clinicians. The goal is to leave each participant with actionable tools that provide a tangible way to end barriers for patients of color and provide clinicians with a deeper understanding of how to support, engage and collaborate with patients.
#InclusionPledge
The #InclusionPledge provides a transparent and tangible framework across stakeholders to identify and track equity actions, holding organizations accountable to making specific, measurable outcomes that will result in dismantling systemic barriers and co-creating solutions that will result in health equity for Black women and end disparities in our lifetime.
#INCLUSIONPLEDGE:
“We pledge to take specific actions to dismantle and eradicate systemic barriers, working to end disparities for Black women in our lifetime.”
BREATHE Tv
Tigerlily Foundation’s BREATHE Tv is a sacred space, an educational and inspirational breast cancer lifestyle web series that brings together patients, providers and loved ones in a space of purpose, while engaging in authentic and meaningful conversations about cancer.
Young Women's Breast Health Day on The Hill
In 2009, Tigerlily worked with Rep Debbie Wasserman Schultz to develop the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act. With $9M per year in proposed funding for five years, the EARLY Act calls for a national education campaign about the risks that young adult women (under 45) face from breast cancer. Inspired by the EARLY Act, Tigerlily hosted the first-of-its-kind Young Women’s Breast Health Day on the Hill that brought together researchers, legislators, advocates, breast cancer survivors, physicians & healthcare professionals to Capitol Hill to learn about, advocate for, and ask for resources, support, funding and improved quality of care for young women – before, during and after breast cancer. Currently, this event has transitioned into a ‘Lobby Day’ for young women, making a bigger impact nationwide and globally.
SPIRIT Program
Tigerlily Foundation’s Soul Peace Inner Reality Transformed (SPIRIT) Program’s is focused on providing young women diagnosed with breast cancer with transformative spiritual resources, that support holistic healing, provide inner peace, and foster deeper relationship with their Higher Power – and transformation – during and after breast cancer. Activities include yoga, dance, movement, sound bath and zumba classes; and an annual retreat.
Advocate Now to Grow, Empower and Lead (ANGEL) Advocacy Training
The ANGEL Advocacy Program provides comprehensive training for women of color, 21-50, who have been impacted by breast cancer. They use their time and voices to make an impact by speaking at events, with the media, advocating with policymakers, speaking on panels, sharing information through their social media channels & engaging healthcare professionals. They are directly involved with developing programs and partnering with research and scientific communities to ensure clinical trials, studies, programs and content are relevant to them. ANGEL Advocates are making a powerful impact in our breast cancer communities, locally, nationally and globally.
Master Class Series
Tigerlily foundations's Master Class series is an online educational video series focusing on in-depth discussions regarding Self-Advocacy, Patient Empowerment, Health Disparities, Diversity in Clinical Trials, and Caregivers & Support Systems. In each lesson, we share the viewpoints of individuals who have experienced the effects of cancer in their daily lives. These are patients, caregivers, advocates, and healthcare providers who will teach you about empowerment, advocacy, barriers that exist within the healthcare community, supporting caregivers, and diversity in clinical trials.
Where we work
External reviews

Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Evaluation documents
Download evaluation reportsGlobal Burden of breast cancer (number of deaths in thousands)
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, Children and youth, Women and girls
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
This metric is the total number of deaths of women with breast cancer.
Number of families served in cancer treatment
This metric is no longer tracked.Totals By Year
Population(s) Served
Women and girls
Related Program
HEAL Policy Center of Excellence
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This is the total number of patients served.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To educate, advocate for, empower, and support young women, before, during and after breast cancer. We envision a future where breast cancer diagnosis doesn’t inspire fear, but ignites hope for a future because:
1. We can inspire young women diagnosed with breast cancer to transform inside and out as they journey through treatment to live their best life going forward.
2. We empower young women to be advocates for change
3. Breast cancer will no longer be a terminal disease, but become a chronic disease that will someday be cured.
4. We will end disparities – of age, stage and color, in our lifetime.
Through our programs, we seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care. We strive to improve the quality of life and end isolation among breast cancer survivors. Most importantly, we encourage and endeavor to empower fearless females in every stage of their journey, and to show them that they are not or alone, but are beautiful, strong like the tiger and the lily, and that they can be transformed – during and after breast cancer.
What are the organization's key strategies for making this happen?
Tigerlily Foundation is implementing multi-stakeholders, patient and community driven programs that advise its programs which are all targeted to eliminating barriers, ending disparities, imtegrating a heart-centered approach to improving quality of life.
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To educate clinicians, pharmaceutical companies and others in the breast cancer community, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Tigerlily Foundation
Board of directorsas of 08/24/2022
Carol Barbe
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data