Tigerlily Foundation

Beauty. Strength. Transformation.

aka Tigerlily Foundation   |   Stone Ridge, VA   |  www.tigerlilyfoundation.org

Mission

Tigerlily Foundation is a national breast cancer foundation providing education, awareness, advocacy and hands-on support to young women (15-45)–before, during & after breast cancer. Our mission is to educate, advocate for, empower & support young women, before, during & after breast cancer. We envision a future where breast cancer diagnosis doesn’t inspire fear, but ignites hope. We seek to educate & empower women of all backgrounds & strive to improve the quality of life & end isolation among breast cancer survivors. We encourage & endeavor to empower fearless females in every stage of their journey, and to show them that they are not alone, but are beautiful, strong like the tiger & the lily & that they can be transformed-during & after breast cancer.

Ruling year info

2008

President

Maimah Karmo

Main address

42020 Village Center Plaza Suite 120-156

Stone Ridge, VA 20105 USA

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Formerly known as

The Tiger Lily Foundation, Inc.

EIN

38-3752635

NTEE code info

Single Organization Support (E11)

Fund Raising and/or Fund Distribution (E12)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

HEAL Policy Center of Excellence

Tigerlily Foundation’s Health Equity Advocacy and Leadership (HEAL) Policy Center of Excellence (COE) aims to educate, empower, and lift patient voices to ensure they are amplified, in order to achieve health equity and end disparities. The HEAL Policy COE focuses on systemic changes through policy at the local, state, and federal level to (1) end barriers to accessing and receiving quality, equitable care for all, (2) lead innovation through patient-leadership, and (3) achieve health equity and eliminate disparities in breast cancer.

Population(s) Served
Women and girls
People with diseases and illnesses
Caregivers
Ethnic and racial groups
Economically disadvantaged people

Tigerlily’s Hope Boxes allow connection with newly-diagnosed women to help them face the future, armed with knowledge, resources and inspiration—emotionally, spiritually and physically. We send a Hope Box filled with gifts to pamper, soothe, educate, empower and help women to manage stress and deal with their new diagnosis.

Population(s) Served
Ethnic and racial groups
Caregivers
People with diseases and illnesses
Women and girls
Economically disadvantaged people

Tigerlily Foundation’s Clinical Trials Program is a transformational initiative to accelerate the delivery of innovative treatments to our patients, with a strategic focus on populations that are facing the highest disparities. This initiative serves to educate communities of color about the benefits of participating in clinical trials, and provides information and resources to reduce the fears associated with the unknown.

Population(s) Served
Ethnic and racial groups
Caregivers
People with diseases and illnesses
Women and girls
Economically disadvantaged people

Launched in Fall 2020, the Tigerlily Foundation and Guiding Researchers & Advocates to Scientific Partnerships (GRASP) monthly conversation series shines a light on the experiences of Black women with breast cancer through two conversations, #KnowMoreDisparities & #PullUpASeat. #KnowMoreDisparities conversations are facilitated for and by Black women to create a safe space for honest conversations with Black physicians and medical clinicians to discuss their experiences of health inequality, implicit racial bias and lessons learned. #PullUpASeat conversations, co-hosted by Black patients and doctors, amplifies the voices of Black women through candid conversations with non-Black physicians and medical clinicians. The goal is to leave each participant with actionable tools that provide a tangible way to end barriers for patients of color and provide clinicians with a deeper understanding of how to support, engage and collaborate with patients.

Population(s) Served

The #InclusionPledge provides a transparent and tangible framework across stakeholders to identify and track equity actions, holding organizations accountable to making specific, measurable outcomes that will result in dismantling systemic barriers and co-creating solutions that will result in health equity for Black women and end disparities in our lifetime.

#INCLUSIONPLEDGE:
“We pledge to take specific actions to dismantle and eradicate systemic barriers, working to end disparities for Black women in our lifetime.”

Population(s) Served
Economically disadvantaged people
Women and girls
People with diseases and illnesses
Caregivers
Ethnic and racial groups

Tigerlily Foundation’s BREATHE Tv is a sacred space, an educational and inspirational breast cancer lifestyle web series that brings together patients, providers and loved ones in a space of purpose, while engaging in authentic and meaningful conversations about cancer.

Population(s) Served
Ethnic and racial groups
Caregivers
People with diseases and illnesses
Women and girls
Economically disadvantaged people

In 2009, Tigerlily worked with Rep Debbie Wasserman Schultz to develop the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act. With $9M per year in proposed funding for five years, the EARLY Act calls for a national education campaign about the risks that young adult women (under 45) face from breast cancer. Inspired by the EARLY Act, Tigerlily hosted the first-of-its-kind Young Women’s Breast Health Day on the Hill that brought together researchers, legislators, advocates, breast cancer survivors, physicians & healthcare professionals to Capitol Hill to learn about, advocate for, and ask for resources, support, funding and improved quality of care for young women – before, during and after breast cancer. Currently, this event has transitioned into a ‘Lobby Day’ for young women, making a bigger impact nationwide and globally.

Population(s) Served
Ethnic and racial groups
Caregivers
People with diseases and illnesses
Women and girls
Economically disadvantaged people

Tigerlily Foundation’s Soul Peace Inner Reality Transformed (SPIRIT) Program’s is focused on providing young women diagnosed with breast cancer with transformative spiritual resources, that support holistic healing, provide inner peace, and foster deeper relationship with their Higher Power – and transformation – during and after breast cancer. Activities include yoga, dance, movement, sound bath and zumba classes; and an annual retreat.

Population(s) Served
Ethnic and racial groups
Caregivers
People with diseases and illnesses
Women and girls
Economically disadvantaged people

The ANGEL Advocacy Program provides comprehensive training for women of color, 21-50, who have been impacted by breast cancer. They use their time and voices to make an impact by speaking at events, with the media, advocating with policymakers, speaking on panels, sharing information through their social media channels & engaging healthcare professionals. They are directly involved with developing programs and partnering with research and scientific communities to ensure clinical trials, studies, programs and content are relevant to them. ANGEL Advocates are making a powerful impact in our breast cancer communities, locally, nationally and globally.

Population(s) Served
Ethnic and racial groups
Caregivers
People with diseases and illnesses
Women and girls
Economically disadvantaged people

Tigerlily foundations's Master Class series is an online educational video series focusing on in-depth discussions regarding Self-Advocacy, Patient Empowerment, Health Disparities, Diversity in Clinical Trials, and Caregivers & Support Systems. In each lesson, we share the viewpoints of individuals who have experienced the effects of cancer in their daily lives. These are patients, caregivers, advocates, and healthcare providers who will teach you about empowerment, advocacy, barriers that exist within the healthcare community, supporting caregivers, and diversity in clinical trials.

Population(s) Served
Economically disadvantaged people
Women and girls
People with diseases and illnesses
Caregivers
Ethnic and racial groups
Economically disadvantaged people
Women and girls
People with diseases and illnesses
Caregivers
Ethnic and racial groups

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Global Burden of breast cancer (number of deaths in thousands)

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, Women and girls

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

This metric is the total number of deaths of women with breast cancer.

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

Women and girls

Related Program

HEAL Policy Center of Excellence

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This is the total number of patients served.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To educate, advocate for, empower, and support young women, before, during and after breast cancer. We envision a future where breast cancer diagnosis doesn’t inspire fear, but ignites hope for a future because:

1. We can inspire young women diagnosed with breast cancer to transform inside and out as they journey through treatment to live their best life going forward.
2. We empower young women to be advocates for change
3. Breast cancer will no longer be a terminal disease, but become a chronic disease that will someday be cured.
4. We will end disparities – of age, stage and color, in our lifetime.
Through our programs, we seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care. We strive to improve the quality of life and end isolation among breast cancer survivors. Most importantly, we encourage and endeavor to empower fearless females in every stage of their journey, and to show them that they are not or alone, but are beautiful, strong like the tiger and the lily, and that they can be transformed – during and after breast cancer.

Tigerlily Foundation is implementing multi-stakeholders, patient and community driven programs that advise its programs which are all targeted to eliminating barriers, ending disparities, imtegrating a heart-centered approach to improving quality of life.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Tigerlily Foundation is a national breast cancer foundation providing education, awareness, advocacy and hands-on support to young women (15-45) – before, during and after breast cancer.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Case management notes, Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To educate clinicians, pharmaceutical companies and others in the breast cancer community, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We develop new initiatives and add programming in response to our stakeholder needs such as starting the COVID-19 Funds for Families Program when the pandemic hit and patients needed financial support, implementing the Clinical Trials Program to help alleviate fear and encourage increased participation by women of color to improve health outcomes in diverse communities, and the bi-directional #KnowMoreDisparities and #PullUpASeat to inform practitioners and clinicians about the experiences of women of color.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    Many of those we empower to speak into our programming have participated in our programming through activities such as the bi-directional conversations #KnowMoreDisparities and #PullUpASeat that inform practitioners and clinicians about the experiences of women of color. When we ask women of color to share their experiences, they become empowered in a non-confrontational environment to share their real-life experiences dealing with the health care community after diagnosis. This has shifted power to the patient, and has allowed the clinicians to better understand the experiences for which they set the stage.

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Tigerlily Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Tigerlily Foundation

Board of directors
as of 08/24/2022
SOURCE: Self-reported by organization
Board chair

Carol Barbe

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 7/20/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American/African
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data