TMJ Association, Ltd.

Changing the Face of TMJ

Milwaukee, WI   |  www.tmj.org

Mission

The TMJ Association's mission is to improve the quality of health care and lives of everyone affected by Temporomandibular (jaw) Disorders. We envision a future where individuals with Temporomandibular Disorders will receive a timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.

Ruling year info

1991

Principal Officer

Ms. Terrie Cowley

Co-founder and Director, Chronic Pain Research Alliance Initiative

Ms. Christin Veasley

Main address

PO Box 26770

Milwaukee, WI 53226 USA

Show more contact info

EIN

39-1691109

NTEE code info

Alliance/Advocacy Organizations (G01)

Diseases of Specific Organs (G40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Approximately 12% of the population or 35 million people in the U.S. are affected by from temporomandibular disorders (TMD) at any given time. TMD are a complex and poorly understood set of conditions. Most of the 50+ treatments for TMD lack scientific evidence underlying them. There is no medical or dental specialty of qualified experts trained in the care and treatment of TMD. Irreversible treatments such as surgery and TMJ implants have no long-term clinical trials to study the safety and efficacy of these procedures. Over the years the TMJ Association has heard from hundreds of thousands of people who have been harmed by TMJ treatments.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Educational Outreach

The TMJ Association will develop new educational materials to help people understand the impact of TMJ disorders on society which will promote support for more scientific research.

Population(s) Served
People with diseases and illnesses

Chronic Pain Research Alliance (CPRA) is working collaboratively across all necessary sectors to drive a comprehensive, rigorous and coordinated effort to advance our understanding of the risks, causes, mechanisms and treatments of chronic overlapping pain conditions (COPCs). We seek to translate novel research findings into educational programs for clinicians and patients and drive therapeutic development for COPC treatment (therapies that work across multiple conditions.) As the country’s first and only research-led collaborative advocacy effort dedicated to addressing these specific chronic overlapping pain conditions (COPCs), we work with a variety of invested stakeholders - leaders from the clinical and scientific community, patients, advocacy organizations, industry and federal health research and policy agencies – to improve the lives of millions of pain sufferers worldwide.

Population(s) Served
People with diseases and illnesses
Adults

The TMJ Patient-Led RoundTable was established to address the array of issues experienced by TMJ implant patients. The RoundTable is comprised of all key stakeholders as partners. These would include patients, the FDA, the National Institute of Dental and Craniofacial Research (NIDCR), the Agency for Health Care Research and Quality (AHRQ), the American Association of Oral and Maxillofacial Surgeons (AAOMS), TMJ device manufacturers, clinicians, scientists, advocacy organizations, and other experts, all under the auspices of MDEpiNet. The initial goal was to explore ways to improve TMJ implant treatment outcomes. However, in planning meetings it became clear that the scope of the meeting needed to expand to achieve meaningful results.

Population(s) Served
People with diseases and illnesses
People with physical disabilities

Where we work

Awards

Best in American Seal 2018

Independant Charities of America

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We envision a future where individuals with Temporomandibular Disorders and chronic overlapping pain conditions will receive a timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.

We achieve our mission by advocating for the needs of TMJ patients, promoting awareness of temporomandibular disorders among the public, policy makers, research and health care communities, connecting TMJ patients with those who can provide knowledgeable support and empathetic understanding, encouraging basic and clinical research, periodically convening international scientific meetings, serving as a resource for the collection and dissemination of information on advances of research, treatment, insurance practices, patient's rights, and legal and ethical issues, and communicating with elected officials, government agencies, professional organizations, community leaders and other policy makers concerning TMD issues.

The TMJ Association is led by Terrie Cowley, a TMJ patient and co-founder. Terrie's enduring work and dedication has been instrumental in increasing awareness of the needs of Temporomandibular Disorders (TMD) patients among key groups, including the public, patients, health care providers, policy makers, Congress, the NIH and media. Through her leadership the Association works toward its goal to establish safe and effective means of diagnosis, treatment and ultimately, prevention of TMD.

Christin Veasley is the Director and Co-Founder of the TMJ Association's Chronic Pain Research Alliance Initiative. Chris has spent her career advocating for rigorous multidisciplinary pain research. She currently serves as a member of several other collaborative alliances, federal committees/initiatives, and public-private partnerships working to promote pain research, education, treatment and prevention. She is the former Executive Director of the National Vulvodynia Association.

The TMJ Association (TMJA) has co-sponsored eight scientific meetings with the National Institutes of Health (NIH) resulting in recommendations that set the direction for future Temporomandibular Disorders (TMD) research and NIH funding opportunities. These meetings have been critical to leading the paradigm shift in research from TMD as solely as a localized orofacial pain condition to a complex multisystem disorder with overlapping comorbidities.

The TMJA has had over 30 consecutive years of advocacy efforts which have resulted in report language for TMD and chronic overlapping pain conditions. We will continue our efforts until individuals with TMD and chronic overlapping pain conditions receive timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.

Financials

TMJ Association, Ltd.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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TMJ Association, Ltd.

Board of directors
as of 3/4/2022
SOURCE: Self-reported by organization
Board chair

Terrie Cowley

The TMJ Association, Ltd.

Terrie Cowley

No affiliation

Charles Sturm

Sturm & Associates

Joan Wilentz

No affiliation

Allen Cowley

Medical College of Wisconsin

Christin Veasley

The TMJ Association

Lisa Schmidt

No affiliation

Michelle Reardon

No affiliation

John Kusiak

No affiliation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/08/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

The organization's co-leader identifies as:

No data

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability