International Foundation for Gastrointestinal Disorders
Because Digestive Health Matters
Programs and results
What we aim to solve
Millions of people's daily lives are impacted by digestive disorders. Many go undiagnosed, misdiagnosed, or have a diagnosis but limited treatment options. Our goal is to raise awareness of the disorders so patients are better educated about the options available, as well as, working to raise awareness and get additional funding for research that will help find treatments and cures for the disorders.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Research Grants and Awards
Seek applications from investigators with a preference given to clinical research that is patient oriented, as well as basic research that is translational in nature.
Digestive Health Awareness Program
IFFGD works with patients and government to designate digestive health awareness events on the national Health Observance Calendar. We were already successful in implementing April as IBS Awareness month, August as Gastroparesis Awareness month, and the week of Thanksgiving as GERD Awareness week. We are currently reviewing options to add additional digestive disorders.
Digestive Health Advocacy
IFFGD supports and coordinates IFFGD Hill Days, as well as, continuously communicates with government representatives to gain support of digestive health funding.
IFFGD Hill Days allow patients to share their stories with government. Together we connect with US House Representative to educate him or her about functional gastrointestinal and motility disorders and ask them to take action on issues critical to this community, such as cosponsoring The Functional Gastrointestinal and Motility Disorders Research Enhancement Act (HR 1187).
Where we work
External reviews

Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of organizational partners
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Adults, Children and youth
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Value is number of industry council partner organizations.
Number of policymakers or candidates reached
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Digestive Health Advocacy
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number of cosponsors for H.R. 1187. H.R. 1187 expires in 2018; therefore, we will work to get a bill reintroduced in 2019 and add cosponsors. Bill reintroduced as H.R. 3396 in 2019.
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Research Grants and Awards
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Research Grants awarded
Average online donation
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Adults, Children and youth
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
Based on total donations received via IFFGD website donations.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goals include raising awareness among the public and professionals about chronic digestive disorders in adults and children, supporting research, and facilitating meaningful action to improve life for all who are affected.
What are the organization's key strategies for making this happen?
We provide online tools and print publications aimed at educating the public and improving outcomes for patients and families. We participate in professional conferences to raise awareness. We maintain a presence with government agencies that support research or regulate treatments to ensure that the needs of our patient community are addressed. We raise money to directly fund research aimed at improving care and treatment.
What are the organization's capabilities for doing this?
We maintain a family of 10 websites aimed at education and patient empowerment, have an active social media presence, and a presence with legislative and regulatory offices.
What have they accomplished so far and what's next?
Since we began in 1991, we have seen a growing awareness about and support for patients with functional GI and motility disorders among the public and health care providers. Research is beginning to better understand these complex conditions, which lack obvious structural markers, yet can range in severity from mild to debilitating to life-threatening. The few effective treatments that are now available and do not work for everyone. Efforts must continue to build on what has been learned to understand the conditions, to find more effective treatments, and to be able to target treatments more directly to patient subgroups.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
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What significant change resulted from feedback?
We are offering hybrid patient education events that include pre-recorded sessions and live sessions via a virtual platform. Prior to COVID-19, we were also providing in-person patient education events that added social events of lunch and receptions to allow patients to get to know each other and find others in their group. All of these different forms of education delivery are a result of feedback from surveys, interviews, and community hall-type meetings with patients. We also have a Patient Advisory Committee that works closely with our President on programs planning.
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Which of the following feedback practices does your organization routinely carry out?
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, It is difficult to get honest feedback from the people we serve
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
International Foundation for Gastrointestinal Disorders
Board of directorsas of 01/25/2023
Ms. Ceciel Rooker
Dianne Bach
Brittany Aliano
William Chey, M.D.
Michigan Medicine
Erin Slater, RD LDN
Michael Stolar, PhD
Darren Brenner, M.D.
Northwestern Medicine
Michele McCorkle
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as: