SILVER2023

CYCLIC VOMITING SYNDROME ASSOCIATION INC

Hope Starts Here

Milwaukee, WI   |  www.cvsaonline.org

Mission

The Cyclic Vomiting Syndrome Association (CVSA) serves the needs of cyclic vomiting syndrome (CVS) sufferers, their families and professional care givers by raising awareness and providing education and support to those affected by cyclic vomiting, abdominal migraine, and related disorders while advocating for and funding research toward a cure.

Ruling year info

1994

President

Blynda Killian

Main address

P.O. Box 270341

Milwaukee, WI 53227 USA

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EIN

39-1767509

NTEE code info

Digestive Diseases, Disorders (G70)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

CVSA Family and Adult Conference

Family and adult conference to educate CVS sufferers as well as doctors.  A time for CVS sufferers to meet each other and learn about research being done on cyclic vomiting syndrome.

Population(s) Served

The Cyclic Vomiting Syndrome Association (CVSA) Young Investigator Prize in honor of B Li in Functional GI Disorders has been developed to promote the pursuit of research in these conditions. This award will be given to a young investigator submitting an outstanding scientific abstract focusing on basic science, clinical investigation or outcomes research in the following conditions: Cyclic vomiting syndrome, aerophagia, rumination syndrome, functional dyspepsia, irritable bowel syndrome, or functional abdominal pain (submissions for any other condition must have a written justification for inclusion in this category). Award decisions are made by NASPGHAN.

Population(s) Served
Adults
Children and youth
Adults
Children and youth

The clinical treatment guidelines for pediatric CVS were originally published in 2012. Most of the information is clearly outdated and may not even be used in the current environment. More research has been done and newer more effective treatments are being evaluated. It is imperative that these treatment guidelines are updated to reflect current treatment and promote more effective ways of treating cyclic vomiting in the pediatric population.

Population(s) Served

CVSA works on virtual opportunities to present information applicable to cyclic vomiting syndrome for patients and those interested in learning more about it.

Population(s) Served
Adults
Children and youth
Adults
Children and youth

Support group zoom calls are meant to provide support to patients, caregivers, and families impacted by CVS.

Population(s) Served

CVSA attends medical conferences to provide information about CVS to medical professionals and groups that may encounter, treat, or need more awareness of cyclic vomiting syndrome.

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Financials

CYCLIC VOMITING SYNDROME ASSOCIATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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CYCLIC VOMITING SYNDROME ASSOCIATION INC

Board of directors
as of 02/21/2023
SOURCE: Self-reported by organization
Board chair

Blynda Killian

No Affiliation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No