Be The Match Foundation

We Save Lives Through Cellular Therapy

aka Be The Match   |   Minneapolis, MN   |  www.bethematch.org

Mission

Be The Match Foundation supports the life-saving mission of Be The Match/National Marrow Donor Program, ensuring that patients diagnosed with blood cancers such as leukemia and other diseases get the stem cell transplant they need for a second chance at life. A transplant offers hope for a cure. We connect patients with their genetically matched stem cell donors and provide comprehensive support throughout the transplant journey, from diagnosis through recovery, and we conduct medical research to improved outcomes and quality of life for transplant patients. Our patients and stem cell donors are primarily in the United States, but many donors and patients served by our mission are based internationally; at locations throughout the globe.

Ruling year info

1992

Executive Director, Be The Match/ Senior Vice President of Philanthropy, National Marrow Donor Program

Joy King

Main address

500 N 5th St.

Minneapolis, MN 55401 USA

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EIN

41-1704734

NTEE code info

Organ and Tissue Bank (E65)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Be The Match Registry

Be The Match Registry® is dedicated to creating an opportunity for all patients to receive the blood stem cell transplant they need, when they need it. It is the largest and most diverse donor registry in the world. Our partnerships with international and cooperative registries provide doctors with access to nearly 24.5 million potential donors and more than 622,000 cord blood units worldwide.

WE STRIVE TO:
• Increase diversity
• Attract committed stem cell donors
• Fundraise to support the mission
• Add more umbilical cord blood units
• Partner with clinicians to provide optimal care

Population(s) Served
Adults

Not everyone can afford the life-saving treatment they need. Costs such as the search for a stem cell donor, complex stem cell matching, travel and lodging when the transplant center is far from home, prescription co-pays and many other transplant-related costs may not be covered by insurance. Be The Match is dedicated to making transplant possible for all patients – but we can’t do it alone. We rely on generous contributions to help patients receive the transplant they need.

Population(s) Served
People with diseases and illnesses

Without research focused exclusively on transplant science, medical breakthroughs would not be possible and patients would not receive a second chance at life. Progress has been made, but more research is needed to advance the field of blood and marrow transplantation. We conduct research through our research program, CIBMTR® (Center for International Blood and Marrow Transplant Research®), in collaboration with the Medical College of Wisconsin. What makes our research program unique?

• We focus exclusively on blood stem cell transplant research
• Our research supports patients at every step in their transplant journey, including matching and recovery
• We operate the Stem Cell Therapeutic Outcomes Database: a program authorized by Congress to collect the detailed results of every allogeneic transplant performed in the U.S.
• Our extensive network of research partners includes more than 500 hospitals and research centers worldwide

Population(s) Served
Adults

Where we work

Awards

Four Star Charity 2013

Charity Navigator

Accreditation 2013

Charities Review Council

Accreditation 2013

GuideStar

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We are a community of donors, volunteers, health care professionals and researchers who deliver cures by helping patients get the life-saving marrow or cord blood transplant they need. Our passion to save lives drives us to help more patients survive each year. We continually strive to improve access to transplant, to remove barriers to treatment and strengthen our ability to meet the growing need.

A patient's likelihood of finding a matching bone marrow donor or cord blood unit on Be The Match Registry® ranges from 66% to 97%, depending on ethnic background. Adding more members who increase the ethnic diversity of the registry increases the variety of tissue types available. This helps more patients find the match they need.

Every dollar we raise helps more patients afford transplant, adds potential marrow donors to the registry and funds our life-saving research. We help patients and their families from diagnosis through survivorship. We understand the unique needs of transplant patients, and offer tailored one-on-one support, resources and a variety of services, including financial assistance.

Be The Match is the hub of a global transplant network, including partner centers throughout the U.S. and registries
in 42 countries. We lead efforts in the world-wide transplant community to improve access to care and strengthen our ability to meet the growing need.

We grow and maintain the world's largest and most diverse donor registry, with 537,000 new potential donors added last year. 50% of new registry members are racially and ethnically diverse, which increases all patients' chances of finding a match. We have 13.5 million registry members and 225,000 umbilical cord blood units on the Be The Match Registry®, and access to 27 million potential donors and 680,000 umbilical cord blood units worldwide.

With our research partners, we improve outcomes and enrich the quality of life for thousands of patients. We have published more than 800 articles in peer-reviewed medical journals since inception; 76 published last year. More than 350 transplant centers participate in our research. We have more than 390,000 patients in our research database, and are conducting more than 250 active studies. We make available for research HLA samples which are in storage – buccal swabs, frozen aliquots and filter paper. Samples from more than 22,000 donor/recipient pairs are available for use in research studies. More than 1 million stored samples are available for retrospective studies to determine transplant outcomes.

Be The Match's research improves matching and makes it easier and faster to find the best donor or cord blood unit.

Our research has also advanced the science that proves that younger donors and improved timing leads to better transplant outcomes.

Be The Match's research has also led to treatment advances that make transplant a better option for patients 51-75 years of age.

Be The Match's ongoing education on advances in transplant research, clinical practice and patient care is offered to transplant doctors throughout the world.

The need for young, diverse registry members still exists. We have recruited millions of people to the Be The Match Registry to help bridge the gap for those unable to find a match in their family, but not all people are able to find a match. Research shows that younger donors provide the best outcomes for patients, and we will continue to recruit young, diverse registry members until all patients in need find their match. Patient assistance grants have helped patients and their families with the uninsured costs of transplant, although the need far exceeds available funding. Ongoing research will continue to advance the science of transplant for years to come. We continue to raise awareness of the need for registry members, research initiatives and financial support.

Financials

Be The Match Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Be The Match Foundation

Board of directors
as of 5/21/2021
SOURCE: Self-reported by organization
Board chair

Trey Loughran

Equifax

Term: 2016 - 2017

Dennis Confer, M.D.

Be The Match/National Marrow Donor Program

Anne McGeorge

William Pomeroy

The William G. Pomeroy Foundation

Anthony Prioletti

Alberona Welding & Iron Works

Richard Rieger

Horizon Pharma

Scot Housh

Willis Towers Watson

Roger Paschke

Hearst Corporation/ Hearst Foundations

Michael Rose

McMillan Rose, LLC

Robert Sit

Sit Investment Associates, Inc

Thomas Teach

Century Foam

Jason Ahlgren

Riverbridge Partners LLC

Andrew Block

Buffalo Wild Wings

Diana Clarke-Carter

Summit Mortgage Corporation

Bruce Manasevit

The Manasevit Group-Merrill Lynch Wealth and Investment Management

Dave Pearce

Korn Ferry

C. Randal Mills

Be The Match/National Marrow Donor Program

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes