American Neuromuscular Foundation
STRENGTHENING the global effort to CURE neuromuscular disease
Mission
The American Neuromuscular Foundation is a nonprofit association that provides funds to help develop the next generation of researchers to advance the science and practice of neuromuscular (NM) and electrodiagnostic (EDX) medicine. The ultimate goal in promoting and advancing NM and EDX scientific research and education is to improve the lives of patients with neuromuscular diseases.
Ruling year
1995
Executive Director
Shirlyn Adkins JD
Main address
2621 Superior Drive NW
Rochester, MN 55901 USA
EIN
41-1826063
NTEE code
Nerve, Muscle, Bone Research (H50)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form(s) 990 for 2021, 2020 and 2019.
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Programs and results
What we aim to solve
We are trying to improve the lives of patients with neuromuscular disease. We are looking to find cures for disease such as ALS. The foundation funds important research and helps support education through awards and fellowship funding. Donate today and 100% of your donation will be used to support these initiatives. Administrative costs of the foundation are paid for by the AANEM.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
AANEM Foundation Development Grants
The American Neuromuscular Foundation offers development grants intended as seed money to help launch research into muscle and nerve disorders by promising new researchers.
AANEM Foundation/MDA Co-Funded Grants
The American Neuromuscular Foundation and the Muscular Dystrophy Association (MDA) offer expanded funding opportunities for neuromuscular research. Neuromuscular research projects submitted to the MDA that fit within the foundation’s mission may be considered by the foundation for co-funding.
Clinical Research Fellowships
Funding scientific research to help find treatments and cures for neuromuscular disease.
Golseth Young Investigator Award
The Golseth Young Investigator Award, honoring AANEM Founding Member, Dr. James Golseth, is presented annually for original research in neuromuscular and electrodiagnostic medicine. The foundation has been funding the award since 1998. Learn more at www.neuromuscularfoundation.org/Awards/Golseth-Young-Investigator.
President's Research Initiative
Each year, the AANEM President chooses a topic for research for the AANEM Annual Meeting. Up to 10 abstracts submitted to the annual meeting on this topic may receive the President's Research Initiative Award. Learn more at www.neuromuscularfoundation.org/Awards/President-s-Research-Initiative.
International Fellowship Scholarship
The American Neuromuscular Foundation's International Scholarship provides an opportunity for physicians who practice in economically developing countries to apply for funds to support their education through attendance at the AANEM Annual Meeting. Up to five International Fellowship Scholarships are granted annually. All applicants are also automatically considered for scholarships offered through the North American Chapter of the International Federation of Clinical Neurophysiology. Up to 15 additional scholarships are offered through the North American Chapter of the IFCN. Learn more at www.neuromuscularfoundation.org/Awards/International-Fellowship.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Type of Metric
Other - describing something else
Direction of Success
Increasing
Context Notes
This does not include funding from the AANEM. 2019 received a legacy donation of $50K.
Number of research studies funded
This metric is no longer tracked.Totals By Year
Related Program
AANEM Foundation Development Grants
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Number of overall donors
This metric is no longer tracked.Totals By Year
Type of Metric
Other - describing something else
Direction of Success
Increasing
Context Notes
This does not include the silent action donors or bidders.
Average number of dollars received per donor
This metric is no longer tracked.Totals By Year
Type of Metric
Other - describing something else
Direction of Success
Increasing
Context Notes
Does not include silent action
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The American Neuromuscular Foundation (ANF) is a nonprofit organization dedicated to STRENGTHENING the global effort to CURE neuromuscular disease. We do this through funding research in NM disease and in funding the education of researchers.
What are the organization's key strategies for making this happen?
As a funding source for neuromuscular research, the ANF is proud to provide numerous opportunities for researchers to apply for clinical research fellowships and grants to encourage and support research related to neuromuscular diseases.
Clinical Research Fellowships - The foundation is offering clinical research fellowship funding to institutions to provide research training.
Neuromuscular Research Funding Opportunities
Research that can identify treatments or cures is key to improving the lives of patients with neuromuscular disease. The foundation is committed to advancing neuromuscular research both through independently funding research and through collaboration with other funding sources such as our current collaboration with the Muscular Dystrophy Association.
What are the organization's capabilities for doing this?
When you donate to the American Neuromuscular Foundation, 100% of your gift is exclusively used to fund researchers or their education. All the salaries and expenses of the Foundation are paid by the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM). And there are other reasons to give:
The AANEM also provides research funding - donating over $3 million to the Foundation. The interest from this donation, combined with your donations will help fund the next research projects.
Physicians who are experts in neuromuscular medicine review every research funding request assuring that your donation is used only for high quality research projects. The focus on finding a cure is at the core of all decisions versus a concern for profit.
The Foundation supports efforts to cure all neuromuscular diseases. Researchers understand that a cure for one neuromuscular disease can have implications for many of the related diseases.
The Foundation works in partnership with other foundations, like the Muscular Dystrophy Association to find the best projects to fund.
The financial stability of the Foundation, combined with the unwavering support from the AANEM, means your money is safe and it will make an impact far into the future.
What have they accomplished so far and what's next?
We have funded multiple research projects. Including projects on
Research Currently Funded:
SMA - Spinal Muscular Atrophy
ALS - Lou Gehrig’s disease
Lambert Eaton Myasthenia
Kennedy’s disease
DNA sequencing to improve diagnosis of many neuromuscular diseases
Small fiber neuropathy
We have funded several research fellowships.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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American Neuromuscular Foundation
Board of directorsas of 02/22/2022
Dr. Bonnie Weigert
Anthony Chiodo
Holli Horak
Yuen So
Eric Sorenson
Lisa Hobson-Webb
Robert Irwin
Dianna Quan
Devon Rubin
Bonnie Weigert
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
No data
Disability
No data
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