Childrens Cancer Research Fund

Your donation supports the innovative and promising research that will one day cure childhood cancer

aka CCRF   |   Minneapolis, MN   |  www.childrenscancer.org

Mission

Children's Cancer Research Fund is a national organization dedicated to curing childhood cancer by investing in the most effective research, collaborating with the most talented minds, inspiring and educating advocates worldwide to take action and supporting families.

Notes from the nonprofit

Please note as you are looking at financial information, we changed the dates of our fiscal year in 2019 to better align with our programs and hence, our numbers reported for that year are only reflected of six months of the year.

Ruling year info

1998

CEO

Daniel Gumnit

Main address

7301 Ohms Lane Suite 355

Minneapolis, MN 55439 USA

Show more contact info

EIN

41-1893645

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Cancer Research (H30)

Single Organization Support (T11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2019.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every week, 38 kids pass away from cancer. We want to stop this, so we support the brightest and boldest minds whose groundbreaking research is leading to better treatments and cures. We also fund vital family support services and advocate for childhood cancer education and awareness. Funding for childhood cancer research pales in comparison to funds available for research into adult cancers. In childhood cancer, the road to new, better treatment options always starts with philanthropic support.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Childhood cancer awareness and education

Children's Cancer Research Fund is regarded as both a go-to resource for information on childhood cancer and a source for inspiration to those touched by childhood cancer.  Through various education initiatives, the organization has reached more than 60 million people worldwide.
 
Our funding helps train to the next generation of pediatric cancer researchers and physicians around the country.

Population(s) Served
Adults
Families

Camp Norden was created for kids who have been affected by cancer to build lifelong friendships and experience adventure through a safe and fun camp experience either in-person or virtually.

Camp Norden is fully funded by Children’s Cancer Research Fund, meaning there is no cost to families who want to send their child to camp. Your gift keeps Camp Norden free for families of children affected by cancer. At Children's Cancer Research Fund, we work to amplify the stories of families experiencing childhood cancer. We understand that childhood cancer is a whole-family diagnosis. We are dedicated to funding resources and experiences that help kids and families as they navigate the difficult experience of cancer treatment and survivorship. Some of these programs include our C.C. Bear program and the Big Dreams Tour.

Population(s) Served
People with diseases and illnesses
Families

We work closely with doctors and scientists to fund innovative research that’s led to better treatments for kids battling cancer. We remove the roadblocks that stand in the way of research breakthroughs, by providing seed funding and filling gaps for promising research that doesn’t yet qualify for federal funding. And we have a track record of success—from new drug trials for children with brain tumors and osteosarcoma to improvements in blood and marrow transplantation.
We focus our research funding on four key areas that will drive the most impact: hard-to-treat pediatric cancers, eliminating disparities, improving survivorship, leveraging data, and supporting emerging scientists. Since 1981, we’ve provided over $100 million in research grants to 31 childhood cancer research institutions around the country.

Population(s) Served
Adults
People with diseases and illnesses

Where we work

Accreditations

Charity Navigator 2021

Accredited Charity - BBB Wise Giving Alliance 2022

Meets Standars - Charities Review Council 2021

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families, People with diseases and illnesses

Related Program

Childhood Cancer Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric is for the number grants awarded. The total awarded in 2019 was for just 6 months.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We believe a world without childhood cancer is possible.

That's why we support bright scientists whose ideas make a great impact for children with cancer. We work closely with researchers to fund innovative projects quickly so that promising new discoveries can continue uninterrupted.

We give seed grants for innovative research projects that hold great promise but don’t yet qualify for federal or larger funding. Without this support, many brilliant ideas wouldn’t move forward.

Fewer doctors are choosing a career in hematology/oncology, so we’re helping attract and train researchers by funding emerging scientists and fellowships that build experience and expertise. For nearly 40 years, we’ve funded over 90 fellows who are working around the world to create safer, more effective treatments for kids.

Because cancer affects the whole family, we also fund quality of life services that enhance healing and care, and we educate the world about the need for research.

We launch new ideas and fill funding gaps, helping turn clinical trials into standard treatments. We give seed grants for innovative research projects that hold great promise but don't yet qualify for federal or larger funding. Without this, many brilliant ideas wouldn't move forward. Clinical trials test novel treatments that lead to new and improved therapies for kids with cancer everywhere.

Many childhood cancer survivors suffer from late effects of cancer treatment including infertility, hearing loss, brain damage, vision loss, heart problems & more. We fund research that works to understand these effects and care for children beyond their diagnosis and treatment.

Raising awareness and providing education about childhood cancer is also a key part of our mission. We have the honor of sharing the stories of children, families and researchers throughout the country to inspire advocacy, collaboration and cures. We also foster collaboration by supporting conferences and lectureships.

Since 1981, we've provided more than $213 million for childhood cancer research, education and patient and family services.

We collaborate with leading researchers who stay keenly attuned to the ever-changing landscape of cancer research. The research we fund is shared with more than 9,000 experts around the globe, helping accelerate promising discoveries.

For every dollar that we grant, researchers are able to leverage the funding and secure an additional $18 in federal or other grants.

In addition, our expert fundraising staff is able to generate important dollars for research while maintaining fundraising and administrative expenses that are in line with or lower than best practice. In fiscal year 2017, we spent a healthy 25 percent on fundraising and 4 percent on management costs.

Thanks in part to our funding, research has helped improve childhood cancer survival rates from dismal to hopeful in the last 30 years. We're very proud of the impact we've made on improving outcomes for childhood cancer patients.

In 2020, we awarded over $7 million for innovative childhood cancer research at leading institutions across the country, and also award $140,000 in patient and family programs. In our shortened fiscal year in 2019, July 1-2019-December 31, 2019, we awarded grants totaling $1.33 million to for childhood cancer research and family programs.

In 2021, we awarded 19 grants to leading institutions across the United States in 4 award areas; accelerating impact for hard to treat cancers award, emerging scientist award, health disparities award and survivorship award.

Today's treatments for kids are less than perfect. While Children's Cancer Research Fund has helped increase survival rates to 80 percent, many of these young survivors face life with hearing loss, heart damage, cognitive delays, infertility and other late effects.

As federal funding shrinks, philanthropic support from donors and organizations like Children's Cancer Research Fund makes all the difference.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person),

  • How is your organization using feedback from the people you serve?

    To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    Expanding our reach in a patient and family program by conducting some of it virtually. Also, we are in the process of adding another program that would serve a population we haven't served in the past.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Childrens Cancer Research Fund
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Childrens Cancer Research Fund

Board of directors
as of 08/15/2022
SOURCE: Self-reported by organization
Board chair

Susan Doherty

American Hospital Association

Term: 2021 - 2022

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Brenda Weigel, MD

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Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/21/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

No data