PLATINUM2023

Childrens Cancer Research Fund

Your donation supports the innovative and promising research that will one day cure childhood cancer

aka CCRF   |   Minneapolis, MN   |  www.childrenscancer.org

Mission

Childrens Cancer Research Fund is a national nonprofit dedicated to ending childhood cancer. Our main focus is to support the research of bright scientists across the country whose ideas can make the greatest impact for children fighting cancer. We also fund resources and programs that help kids and families as they navigate the difficult experience of cancer treatment and survivorship. Since 1981, weve contributed over $200 million to research, support programs for children and families, and awareness and education outreach. In our January 1 to December 31, 2022 fiscal year, 81 percent of funds raised went directly to these program services areas.

Notes from the nonprofit

Please note as you are looking at financial information, we changed the dates of our fiscal year in 2019 to better align with our programs and hence, our numbers reported for that year are only reflected of six months of the year.

Ruling year info

1998

CEO

Elizabeth Allen

Main address

7301 Ohms Lane Suite 355

Minneapolis, MN 55439 USA

Show more contact info

EIN

41-1893645

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Cancer Research (H30)

Single Organization Support (T11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
Register now

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every week, 38 kids pass away from cancer. We want to stop this, so we support the brightest and boldest minds whose groundbreaking research is leading to better treatments and cures. We also fund vital family support services and advocate for childhood cancer education and awareness. Funding for childhood cancer research pales in comparison to funds available for research into adult cancers. In childhood cancer, the road to new, better treatment options always starts with philanthropic support.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Childhood cancer awareness and education

Children's Cancer Research Fund is regarded as both a go-to resource for information on childhood cancer and a source for inspiration to those touched by childhood cancer.  Through various education initiatives, the organization has reached more than 60 million people worldwide.
 
Our funding helps train to the next generation of pediatric cancer researchers and physicians around the country.

Population(s) Served
Adults
Families

Camp Norden was created for kids who have been affected by cancer to build lifelong friendships and experience adventure through a safe and fun camp experience either in-person or virtually.

Camp Norden is fully funded by Children’s Cancer Research Fund, meaning there is no cost to families who want to send their child to camp. Your gift keeps Camp Norden free for families of children affected by cancer. At Children's Cancer Research Fund, we work to amplify the stories of families experiencing childhood cancer. We understand that childhood cancer is a whole-family diagnosis. We are dedicated to funding resources and experiences that help kids and families as they navigate the difficult experience of cancer treatment and survivorship. Some of these programs include our C.C. Bear program and the Big Dreams Tour.

Population(s) Served
People with diseases and illnesses
Families

We work closely with doctors and scientists to fund innovative research that has led to better treatments for kids battling cancer. We remove the roadblocks that stand in the way of research breakthroughs, by providing seed funding and filling gaps for promising research that doesn't yet qualify for federal funding. And we have a track record of success from new drug trials for children with brain tumors and osteosarcoma to improvements in blood and marrow transplantation.
We focus our research funding on four key areas that will drive the most impact: hard-to-treat pediatric cancers, eliminating disparities, improving survivorship, leveraging data, and supporting emerging scientists. Since 1981, we've provided over $100 million in research grants to 31 childhood cancer research institutions around the country.
In 2022, we awarded over $5 million in research and program grants designed to fund the best, most innovative research to advance toward breakthrough treatments.

Population(s) Served
People with diseases and illnesses
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families, People with diseases and illnesses

Related Program

Childhood Cancer Research Granting Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric is for the number grants awarded. The total awarded in 2019 was for just 6 months.

Number of industry standards/practices developed by nonprofit

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Direction of Success

Holding steady

Context Notes

Annual standards we practice along with our Board of Directors to ensure a healthy, equitable, transparent and secure organization.

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Childhood Cancer Research Granting Program

Type of Metric

Context - describing the issue we work on

Direction of Success

Holding steady

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We believe a world without childhood cancer is possible.

That's why we support bright scientists whose ideas make a great impact for children with cancer. We work closely with researchers to fund innovative projects quickly so that promising new discoveries can continue uninterrupted.

We give seed grants for innovative research projects that hold great promise but don’t yet qualify for federal or larger funding. Without this support, many brilliant ideas wouldn’t move forward.

Fewer doctors are choosing a career in hematology/oncology, so we’re helping attract and train researchers by funding emerging scientists and fellowships that build experience and expertise. For nearly 40 years, we’ve funded over 90 fellows who are working around the world to create safer, more effective treatments for kids.

Because cancer affects the whole family, we also fund quality of life services that enhance healing and care, and we educate the world about the need for research.

We launch new ideas and fill funding gaps, helping turn clinical trials into standard treatments. We give seed grants for innovative research projects that hold great promise but don't yet qualify for federal or larger funding. Without this, many brilliant ideas wouldn't move forward. Clinical trials test novel treatments that lead to new and improved therapies for kids with cancer everywhere.

Many childhood cancer survivors suffer from late effects of cancer treatment including infertility, hearing loss, brain damage, vision loss, heart problems & more. We fund research that works to understand these effects and care for children beyond their diagnosis and treatment.

Raising awareness and providing education about childhood cancer is also a key part of our mission. We have the honor of sharing the stories of children, families and researchers throughout the country to inspire advocacy, collaboration and cures. We also foster collaboration by supporting conferences and lectureships.

Since 1981, we've provided more than $220 million for childhood cancer research, education and patient and family services.

We collaborate with leading researchers who stay keenly attuned to the ever-changing landscape of cancer research. The research we fund is shared with more than 9,000 experts around the globe, helping accelerate promising discoveries.

For every dollar that we grant, researchers are able to leverage the funding and secure an additional $18 in federal or other grants.

Were committed to sharing transparent and complete financial information with our donors and the community.

In fiscal year January 1 to December 31, 2022, 81 percent of donations went toward our mission for research, education & awareness and quality-of-life programs for childhood cancer patients.

Thanks in part to our funding, research has helped improve childhood cancer survival rates from dismal to hopeful in the last 35 years. We're very proud of the impact we've made on improving outcomes for childhood cancer patients.

In 2022, we awarded over $5 million for innovative childhood cancer research at leading institutions across the country, and also supported patient and family programs.

Today's treatments for kids are less than perfect. While Children's Cancer Research Fund has helped increase survival rates to 80 percent, many of these young survivors face life with hearing loss, heart damage, cognitive delays, infertility and other late effects.

As federal funding shrinks, philanthropic support from donors and organizations like Children's Cancer Research Fund makes all the difference.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Childrens Cancer Research Fund
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Childrens Cancer Research Fund

Board of directors
as of 11/29/2023
SOURCE: Self-reported by organization
Board chair

John Golden

Crux Collaborative

Term: 2023 - 2024

Ingrid Culp

Fredrikson & Byron

Peter F. Durow

Delta Air Lines

Susan Doherty

The Doherty Group

John Golden

Crux Collaborative

Megan Harris

Bremer Financial Services

Dan Seeman

Hubbard Broadcasting, Inc.

Greg Soukup

Warrior Mfg., LLC

Barb Farrell

Community Volunteer

Michelle Johnson

Northland Securites

Dawn Lamm

space150

Abbie Miller, MD

PreferredOne

Matt Hedman

UnitedHealth Group

Adam Choe

Tundra Ventures

Beth Monsrud

UCare

Chris Toppin

Deloitte & Touche

Chris Zupfer

Hill-Murray Foundation

Charlie Manzoni

Community Volunteer

Jen Wilson

Thrivent Mutual Funds

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/29/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

Equity strategies

Last updated: 11/01/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.