CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION

At Child Neurology Foundation (CNF), we are committed to helping children and their families living with neurologic condition by providing resources, education, and one-on-one support when it's needed most. CNF connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life - for every child.

To ensure our strategic direction is aligning with our mission, the CNF Board of Directors regularly completes a process to develop a strategic plan and execute impactful programs for the child neurology community. We begin by gathering data from our community through surveys, interviews, and focus groups. The data is then translated into visionary goals and programs that drive change.

Driven by data, CNF acts from a place of understanding. To improve the care experiences of children living with neurologic condition, CNF works to build meaningful connections between families and medical professionals AND serve as a collaborative center of education, support, and care advancement.

While CNF’s programs ebb and flow over the years, there are certain ways of working that are woven through everything that we do. Like our Core Values, the way that CNF builds and delivers our resources
and programs is a part of our DNA.

Our Core Values guide our intentions, our partnerships, and our programs:

PROFESSIONALISM - We treat others as they would want to be treated. We are collegial and respectful in our professional relationships. We are dedicated to expanding our knowledge, being innovative, and understanding the perspectives of others. We honor and respect difference and diversity in all its forms. We strive to exhibit excellence in our work.

INTEGRITY - We are accountable for our commitments and our actions. We are committed to ensuring the interests of the children and families we serve come first. We promote honesty and transparency in our relationships with each other and our collaborators.

COLLABORATION - We work humbly, to identify and understand the urgencies and challenges facing our shared community; we know that they cannot be overcome alone. Whenever possible, we earnestly collaborate on the actions, programs, and initiatives we engage. We want to go farther, so we go together.

STEWARDSHIP - We are committed to being good listeners and to act in responsive service to the needs of the child neurology community. We are respectful stewards of the relationships and stories shared with us. We are empathetic, compassionate, and positive.

• 1,500+ families have directly benefitted from CNF's partnership network since 2018, finding personalized information, support, and help
• CNF surveys families and medical professionals regularly to ensure our work is grounded in the needs of the community. We have received feedback from 5,000+ caregivers and 60+ patient advocacy organizations since 2018
• Through our Social Services Network, CNF has connected families to 21,000+ local community and patient advocacy organizations in the neurology space
• CNF education brings together the patient and family perspective with the medical professional perspective, providing tools and practical knowledge about difficult topics to enable the highest possible quality of care. 150+ videos, events, and tools have been created for our community
• CNF has provided education to 1,000+ families about topics such as: How to Transition from Pediatric to Adult Healthcare, Genetic Testing, Care Coordination, Addressing Goals of Care with Providers, Peer Support, Preparing for a First Visit with a Child Neurologist
• CNF has provided education to 2,000+ medical professionals on topics such as: Transition of Care, Sudden Unexpected Death in Epilepsy (SUDEP), Clinical Trials, Genetic Testing, Addressing Harmful and Disruptive Behavior, Care Coordination
• $5.7 million in funding has been provided to support the research of child neurologists and medical students
• CNF has partnered with 200+, bringing together diverse organizations to collaborate on shared goals