American Cleft Palate Craniofacial Association
Leading interdisciplinary cleft and craniofacial care so patients and families thrive.
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Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
ACPA Family Resources
Educational Resources
ACPA works with cleft and craniofacial experts to develop educational resources to ensure patients and families receive research-based and trusted information. ACPA Family Resources offers more than 30 publications to help parents learn about their child's diagnosis and navigate every stage of their treatment journey.
College Scholarships
ACPA awards three college scholarships annually from the Randall/LaRossa College Scholarship Fund to outstanding students born with cleft lip/palate and other craniofacial conditions.
• Honors Scholarship $10,000
• General Scholarship $5,000
• Vocational Scholarship $5,000
Cleft Courage Bear
Since 1989 the ACPA Cleft Courage Bear, custom-made by GUND, Inc, with stitches across the upper lip has become a lifelong friend to children of all ages. This fuzzy companion brings cuddles and smiles at every step of their journey.
ACPA's Annual Meeting
ACPA’s Annual Meeting is a general scientific meeting with over 300 presentations. The program includes general and concurrent specialty sessions, poster sessions, panel presentations, and short courses including study sessions, and advanced courses. ACPA provides accredited continuing medical, speech, and nursing education through ACCME, ASHA, and ANCC. The meeting also includes networking opportunities such as discipline forums, special interest groups, and social events.
ACPA Approved Teams
The treatment experience is most successful when a family is actively engaged with an interdisciplinary care team. Teams that include doctors, surgeons, speech therapists, nurses, dentists, orthodontists, and other healthcare providers who offer an integrated approach to cleft-craniofacial treatment. The purpose and goal of ACPA Team Approval is to ensure that care is provided in a coordinated and consistent manner with the proper sequencing of evaluations and treatments within the framework of the patient’s overall developmental, medical and psychological needs. This distinction is for teams that demonstrate they meet the Standards for Approval of Cleft Palate and Craniofacial Teams – standards that identify essential characteristics of quality for team composition and functioning. The standards are based off The Parameters for Evaluation and Treatment of Patients with Cleft Lip/Palate or Other Craniofacial Anomalies, which identify recommended practices for the care of patients.
ACPA Education Services
ACPA strives to enhance and expand educational opportunities for professionals helping them to stay abreast the latest clinical innovations so they can provide the best possible care to patients. ACPA also offers research-based educational materials about cleft and craniofacial care, specifically for affected individuals and families.
The Cleft Palate Craniofacial Journal
The Cleft Palate-Craniofacial Journal, a bi-monthly international journal on craniofacial differences, is the official publication of ACPA.
The journal draws from around the world for its interdisciplinary approach to growth, development, diagnosis, and treatment — the provision of optimal clinical services — in all areas pertaining to craniofacial differences. In addition, it explores and reports on the study and treatment, including experimental and proven surgical procedures, of cleft lip, cleft palate and craniofacial anomalies. It also keeps readers in touch with the latest research in related laboratory sciences.
To access The Cleft Palate-Craniofacial Journal, visit www.cpcjournal.org.
ACPA Members receive a subscription to the Journal as part of their member benefits. View individual subscription prices without ACPA Membership or Join ACPA.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Number of professional members.
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of ACPA Approved Teams
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The ACPA is dedicated to making a positive impact for our members, patients, and their families. We are prepared to provide cutting edge research and innovation through active communication and resolute advocacy. We will work tirelessly to encourage collaboration, networking, and establishing connections for the advancement of the field of cleft palate and craniofacial care.
What are the organization's key strategies for making this happen?
Communication and advocacy
• Set the standard and be the source to promote team care as the best model for cleft-craniofacial care.
• Communicate the importance of access to and value of team care to legislators, the public, providers and affected individuals.
Drive excellence and innovation in education
• We will be leaders in the dissemination of evidence-based education for patients, families, and professionals.
• We will cultivate innovative multimodal educational offerings.
Research advancement, engagement, and communication
• Foster development and promote involvement in innovative research from all stakeholders.
• Promote the advancement of science via the dissemination and discussion of basic science, clinical, and outcomes research through a variety of platforms.
Collaboration, networking, and connections
• Encourage collaborations that enhance our ability to reach families and providers, locally, nationally and internationally to enable an environment that brings together families and providers across specialties and experiences.
Embrace and advance diversity, equity, and inclusion
• Promote diversity and respect; identify and dismantle barriers to involvement; and create a welcoming and inclusive environment so that all ACPA members, employees, and families can thrive.
What are the organization's capabilities for doing this?
The American Cleft Palate Craniofacial Association (ACPA) is the premier scientific resource and interdisciplinary
professional network for healthcare providers serving patients with cleft lip, cleft palate, and craniofacial differences.
At ACPA, we champion a comprehensive, team-based care approach that supports patients and families throughout their unique care journeys. Since 1943 ACPA’s scientific community has united cleft and craniofacial healthcare professionals by their passion and purpose with the research, education, and networks to provide evidence-based treatment and resources so patients and families thrive.
ACPA members represent 30+ medical disciplines, including plastic surgery, oral and maxillofacial surgery, orthodontics, otolaryngology (ENT), nursing, speech-language pathology, and more.
More than 2,000 members work with patients and conduct research in all 50 states and over 50 countries around the world.
What have they accomplished so far and what's next?
ACPA's Annual Meeting has grown to nearly 1,000 participants annually drawing medical professionals from nearly 60 countries around the world. ACPA's Annual Meeting provides access to the latest clinical innovations and research from leading experts in the cleft and craniofacial field.
Created the ACPA Advocacy, and ACPA DEI Committees, embarking on critical initiatives that directly impact the professional lives of our members and the patients they serve.
Increased the Cleft Palate Craniofacial Journal’s impact factor to a record level of 1.915, broadening ACPA's educational reach. The Cleft Palate Craniofacial Journal, an international journal on craniofacial differences, is the official publication of ACPA
and the journal of record for the profession. The journal draws from around the world for its interdisciplinary approach to growth, development, diagnosis, and treatment — the provision of optimal clinical services — in all areas pertaining to craniofacial
differences. It also keeps readers in touch with the latest research in related laboratory sciences.
Implemented a new member-only Online Community, connecting ACPA members around the world with a more user-friendly and familiar experience. The ACPA Online Community is a place for members to ask questions, connect, network, share resources and more. Features include discussion forums, member profiles, resource libraries, blogs, and events.
Increased award amounts of our scholarships, ensuring those interested in craniofacial care have access to accredited continuing medical education opportunities, and students impacted by a craniofacial difference have support to attend college.
Launched the new Team Care Coordinator Retreat, a free virtual event for care coordinators to learn and share knowledge between care teams.
Comprehensively designed and planned a new website for ACPA to ensure research-based and trusted information is easily accessible for medical professionals, patients, and families.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
American Cleft Palate Craniofacial Association
Board of directorsas of 07/26/2023
John Caccamese, MD
University of Maryland
Term: 2023 - 2023
John A Girotto, MD, MMA, FAAP, FACS
Helen DeVos Children's Hospital
Scott A. Daily, PhD, CCC-SLP
University of Iowa Hospitals and Clinics
Oksana Jackson, MD
Childrens Hospital of Philadelphia
John Caccamese, DMD, MD, FACS
University of Maryland
Adriane L Baylis, PhD, CCC-SLP
Nationwide Children's Hospital and The Ohio State University
Steven L Goudy, MD
Children's Healthcare of Atlanta
James J Cray, PhD
The Ohio State University College of Medicine
Kelly Nett Cordero, PhD, CCC-SLP
Phoenix Children's Center for Cleft and Craniofacial Care
Sean P Edwards, MD, DDS, FACS,FRCDC
University of Michigan
Deji V Fashemo, DDS, MPH
Fourth Dimension Orthodontics & Craniofacial Orthopedics at Medical City Dallas Hospital
Krishna G Patel, MD, PhD
Medical University of South Carolina
Melisande J Ploutz, CPNP, CLC
University of Rochester Medical Center
Lidsay A Schuster, DMD, MS
UPMC Children's Hospital of Pittsburgh, University of Pittsburgh
Greg Bowden
Johns Hopkins Carey Business School
Amy Mendillo, MM, MPP
Jamie L Perry, PhD, CCC-SLP
East Carolina University
Adam M Levy, CAE
American Cleft Palate Craniofacial Association
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 07/26/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.