GOLD2023

NAMI National HQ

NAMI envisions a world where all people affected by mental illness live healthy, fulfilling lives supported by a community that cares.

aka National Alliance on Mental Illness   |   Arlington, VA   |  http://www.nami.org

Mission

Millions of people in the United States, 1 in 5 or nearly 60 million, face the day-to-day reality of living with a mental health condition. NAMI, the National Alliance on Mental Illness, is the nation's largest grassroots mental health organization dedicated to providing advocacy, education, support and public awareness so that individuals and families affected by mental illness can build better lives.

Ruling year info

1980

Chief Executive Officer

Daniel H. Gillison Jr.

Main address

4301 Wilson Blvd. Suite 300

Arlington, VA 22203 USA

Show more contact info

EIN

43-1201653

NTEE code info

Alliance/Advocacy Organizations (R01)

Hot Line, Crisis Intervention (F40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

In the United States, one in every five adults will experience a mental health condition each year. With roughly 60 million adults living with a mental health condition and countless millions of family members and friends supporting these individuals, mental illness touches the lives of nearly everyone.

Mental illness does not discriminate across racial, gender or socioeconomic lines. Inadequate mental health policies, services and funding have profound effects on society:
• Approximately 26% of homeless adults staying in shelters live with mental illness.
• Serious mental illness costs America $193.2 billion in lost earnings per year.

Many barriers exist to getting urgently needed health care services and supports:
• 8.4 million Americans care for an adult with a mental health condition, yet one in four has difficulty finding appropriate mental health professionals or providers.
• Getting an accurate diagnosis for a loved one takes almost 12 years on average.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education and Research

Throughout 2022, NAMI found new ways to enrich and expand our community-based education and peer support programs, drawing on the wisdom and lived experience of people who are devoted to helping others learn, grow and thrive.
NAMI PEER SUPPORT GROUPS reached out to welcome new audiences thanks to a successful awareness campaign paired with effective training that widened the field of facilitators ready to lead new groups.
NAMI HEARTS+MINDS, a new education program launched in May, reminds all of us that mental health is physical health.
NAMI also offers numerous other educational programs nationwide for families, caregivers, peers and health care workers.

** - 88,000+ people attended NAMI peer support groups in 2022
%% - 30,000+ benefited from NAMI education courses in English and Spanish

Population(s) Served
Caregivers
Families
Non-adult children
Parents
Ethnic and racial groups

NAMI is recognized as the preeminent voice on Capitol Hill and in State Legislatures across the country advocating on behalf of those living with mental illness and their families. NAMI promotes common sense solutions to local, state and national public policy landscapes by fighting for early intervention, community support services and access to affordable mental health care.
In 2022, we reached a watershed moment in mental health, thanks to the nonstop activity of NAMI advocates nationwide. Thousands of volunteers affiliated with NAMI’s Government Relations and Policy & Advocacy teams pressed for laws and policies that will reap benefits for millions.
After years of advocacy and preparation, 988 became the new number to call for mental health, substance use and suicide crises anywhere in the country.
> 49 partners joined NAMI’s #ReimagineCrisis coalition to support successful 988 rollout
> 4x increase in 988 funding year-over-year




Population(s) Served
Caregivers
Families
Parents
Non-adult children

Every day, NAMI seeks to reach a larger share of the millions of people affected by mental illness in the United States. Through strategic and highly successful outreach, we elevate stories of hope, wisdom, progress, advocacy and courage that reflect NAMI’s commitment to the health of individuals, families and communities.
WITH MORE THAN 1 MILLION SOCIAL MEDIA FOLLOWERS in 2022, NAMI gained influence on popular platforms people turn to for news, connection and inspiration.
NAMI BLOGS DREW 4.2 MILLION VIEWS as visitors explored topics such as the value of music, faith, and comedy in easing mental health symptoms, addressing trauma among first responders, building mental health resilience and many more.
OUR MEDIA IMPACT Year-over-year growth compared with 2021
> 11.1 MILLION+ visitors came to NAMI.org, 5% more than in 2021
> 121% GROWTH In social media impressions year-over-year
> 32% more impressions during Bebe Moore Campbell National Minority Mental Health Month in July

Population(s) Served
Caregivers
Non-adult children
Families
Parents

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Related Program

Public Awareness & Information Campaigns

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Next door and across the nation, NAMI provides free education and support for youth, adults and families. We are determined that no one with mental illness will walk alone.
NAMI advocates bring the power of lived experience to the halls of Congress and state capitols nationwide. We fight every day to promote innovation, improve care and support recovery for people with mental illness.
NAMI is the grassroots voice for individuals with mental illness and their families. We achieve impact through powerful campaigns and partnerships that fight stigma and champion change.
NAMI leads the mental health movement through an extraordinary network of people who strive for excellence every day. We embrace new tools and technologies to improve the efficiency and quality of everything we do.

We affirmed in our research that there are three key areas that are most challenging and/or discriminatory for
people affected by mental illness, and therefore three goals where our attention can make the greatest impact:

1. People get help early.
2. People get the best possible care.
3. People get diverted from justice system involvement.

We also affirmed in our research that NAMI is uniquely positioned to share and leverage the lived experience of
people affected by mental illness and their families. Everything we do is ‘peerinformed,’ which means that we always engage people with lived experience when we develop content, programs and campaigns.
Finally, we identified four accelerators that will drive the work we do throughout the Strategic Plan:
1) Diversity and Inclusion. We will infuse cultural competency and equity throughout our work and seek
opportunities to better serve diverse communities.
2) Technology. We will leverage technology to be more efficient, amplify our advocacy and public awareness efforts, and reach more people through our education and support.
3) Partnerships. We will proactively engage in partnerships across our Alliance that help us go further faster.
4) Financial Strength. We will explore new ways to strengthen and scale NAMI’s work through diverse and sustainable revenue strategies.

Our Vision

NAMI envisions a world where all people affected by mental illness live healthy, fulfilling lives supported by a community that cares.
Our Mission

NAMI provides advocacy, education, support and public awareness so that all individuals and families affected by mental illness can build better lives.
Our Values

Hope: We believe in the possibility of recovery, wellness and the potential in all of us.
Inclusion: We embrace diverse backgrounds, cultures and perspectives.
Empowerment: We promote confidence, self-efficacy and service to our mission.
Compassion: We practice respect, kindness and empathy.
Fairness: We fight for equity and justice.


What We Do

We educate. Offered in thousands of communities across the United States through NAMI State Organizations and NAMI Affiliates, our education programs ensure hundreds of thousands of families, individuals and educators get the support and information they need.

We support. Throughout the country, our NAMI State Organizations and Affiliates host support groups, for both those with mental illness and caregivers, so that no one feels alone in their mental health journey.

We advocate. NAMI shapes national public policy for people with mental illness and their families and provides volunteer leaders with the tools, resources and skills necessary to save mental health in all states.

We listen. Our toll-free NAMI HelpLine allows us to respond personally to hundreds of thousands of requests each year, providing free information and support—a much-needed lifeline for many.

We lead. Public awareness events and activities, including Mental Illness Awareness Week and NAMIWalks, successfully fight stigma and encourage understanding. NAMI works with reporters on a daily basis to make sure our country understands how important mental health is.

NAMI relies on gifts and contributions to support our important work.

NAMI CALLED FOR CHANGE when 988 goes live in July 2022. Local communities must be ready to support people and families in crisis who dial the new nationwide three-digit number for mental health and suicide
crises. NAMI led the national call for the attention, vision and funding it will take to make 988 and the full continuum of crisis care a life-changing reality in every part of the country.

MORE THAN 68,000 ADVOCACY ACTIONS brought NAMI voices directly to policymakers, elevating the need to invest in mental health crisis services. Advocates pointed to policy solutions and investments required
for effective mental health crisis response at the community level.

A GROUNDBREAKING VIRTUAL EVENT united NAMI with 40 partner organizations for “REIMAGINE: A Week of Action to Reimagine our National Response to People in Crisis.” The momentum-building event, made
possible with support from lululemon, drew 7,600+ registrants, all seeking to drive collective action to ensure a mental health response to a mental health crisis.

A NEW NAMI WEBINAR SERIES, Help Not Handcuffs, outlined ways to improve emergency response outcomes nationwide. The four-part series, part of NAMI’s popular Ask the Expert webinars, drew 10,500+ people
across 50 states, 24 countries and territories representing 150+ NAMI State Organizations and Affiliates.

Financials

NAMI National
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NAMI National

Board of directors
as of 07/12/2023
SOURCE: Self-reported by organization
Board chair

Judge Joyce Campbell

Shirley Holloway

NAMI

Joyce Campbell

NAMI

Vanessa Fernandes

NAMI

Cathryn Nacario

NAMI

Jeff Fladen

NAMI

Vanessa Price

NAMI

Glenda Wrenn-Gordon

NAMI

Ray Lay

NAMI

Lauren Simonds

NAMI

Pooja Mehta

NAMI

Sheldon Jacobs

NAMI

Joe Gatto

NAMI

Amy Brinkley

NAMI

Jeremiah Rainville

NAMI

Glenda Wrenn-Gordon

NAMI

Victoria Harris

NAMI

Devika Bhushan

NAMI

Lakliesha Izzard

NAMI

Frank Mumford

NAMI

Darien Wright

NAMI

Ruth-Ann Huvane

NAMI

Dhanu Sannesy

NAMI

Madeleine Stults

NAMI

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 7/12/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 07/12/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.