Shwachman Diamond Syndrome Foundation Inc

Support. Research. Cure.

Florence, KY   |  https://shwachman-diamond.org/

Mission

* Advocate for and fund research towards improved treatment and a cure * Raise awareness of SDS in the medical community and general public * Provide educational and emotional support to patients and their families * Link families through the Internet and family conferences * Disseminate current medical information * Support an International Scientific Congress and the North American SDS Patient Registry

Ruling year info

1995

Principal Officer

Joan Mowery

Main address

PO Box 6723

Florence, KY 41022 USA

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EIN

43-1709945

NTEE code info

Services to Promote the Independence of Specific Populations (P80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Support

* Host an "SDSF Live" video with expert doctors on various SDS topics
* Provide educational and emotional support to patients and their families
* Link families through the Internet and family conferences
* Provide resources and downloads for SDS families

Population(s) Served
People with learning disabilities
People with other disabilities
Chronically ill people
Children and youth
Adults

Where we work

Financials

Shwachman Diamond Syndrome Foundation Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Shwachman Diamond Syndrome Foundation Inc

Board of directors
as of 9/12/2021
SOURCE: Self-reported by organization
Board chair

Joan Mowery