Shwachman Diamond Syndrome Foundation Inc
Support. Research. Cure.
Mission
* Advocate for and fund research towards improved treatment and a cure * Raise awareness of SDS in the medical community and general public * Provide educational and emotional support to patients and their families * Link families through the Internet and family conferences * Disseminate current medical information * Support an International Scientific Congress and the North American SDS Patient Registry
Ruling year
1995
President
Joan Mowery
Executive Director
Pamela Miller
Main address
PO Box 6723
Florence, KY 41022 USA
EIN
43-1709945
NTEE code
Services to Promote the Independence of Specific Populations (P80)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Family Support
* Host an "SDSF Live" video with expert doctors on various SDS topics
* Provide educational and emotional support to patients and their families
* Link families through the Internet and family conferences
* Provide resources and downloads for SDS families
Where we work
External reviews
Photos
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
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Shwachman Diamond Syndrome Foundation Inc
Board of directorsas of 09/28/2022
Joan Mowery
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