PLATINUM2022

Jessie Rees Foundation

Never Ever Give Up!

aka Jessie Rees Foundation: Never Ever Give Up   |   Irvine, CA   |  www.negu.org

Mission

Our mission is to ensure every kid fighting cancer has the support to Never Ever Give Up by CONNECTING with their family, bringing AWARENESS to their story, providing them helpful RESOURCES and sending them continuous doses of ENCOURAGEMENT throughout their journey.

Ruling year info

2011

co-founder

Erik Rees

Main address

9 Studebaker

Irvine, CA 92618 USA

Show more contact info

EIN

45-1836440

NTEE code info

Cancer (G30)

Patient Services - Entertainment, Recreation (E86)

Children's and Youth Services (P30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The problem we aim to solve is to provide continual engagement to kids and families impacted by childhood cancer around the world. Over 400,000 children are diagnosed each year worldwide, and we strive every day to reach them and encourage them to Never Ever Give Up!

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Support Kids, Sibs and Parents to NEGU

A wide variety of resources and services to encourage kids to Never Ever Give Up that include: JoyJars, room makeovers, breakaway adventures, financial support, games, downloads and other NEGU gear.

Population(s) Served
People with diseases and illnesses

Where we work

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Support Kids, Sibs and Parents to NEGU

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Distribution of JoyJars to kids fighting cancer. Please note that 2020 and 2021 was impacted by COVID.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our annual goals every year is to reach and resource more children and families impacted by childhood cancer. While we celebrate we have sent out over 385,000 JoyJars to kids fighting cancer and build supportive relationships with many of them, we can stop because cancer hasn't stopped. Over 400,000 innocent children are diagnosed every year around the world and our 2030 goal is to building distribution partnerships with every children's hospital in the world by 2025 so anyone needing JoyJars can order and receive them in a timely manner.

We partner with over 270 children's hospitals, 175 Ronald McDonald Houses and 118 camps to reach kids. Once the relationship starts between us and a child/family we provide monthly boosts of encourage and support to the child, their siblings and their parents. In addition, daily doses of video encouragement through our smart phone app, iNEGU.

We have sent over 385,000 JoyJars to children fighting cancer since 2011 and have build supportive relationships with many across the United States. We feel our method and model is working and allowing us to support these innocent children and families.

We have sent out over 385,000 JoyJars to kids fighting caner in all 50 states and 50 countries. We still have thousands of children to reach, which increases daily by 1,000 of innocent children.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    Children and families impacted by childhood cancer and caregivers.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    One way we have improved is how we now allow caregivers to customize their JoyPack (20 JoyJars). We used to send a variety pack of ages and genders. Now caregivers can customize their JoyPacks to better meet the demographics of the children they are caring for.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our funders,

  • How has asking for feedback from the people you serve changed your relationship?

    The feed back we have received allows us to improve our internal processes to better serve them. There has been no shift in power.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

Jessie Rees Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Jessie Rees Foundation

Board of directors
as of 11/17/2022
SOURCE: Self-reported by organization
Board chair

Erik Baker

Chick-fil-A

Term: 2021 - 2023

Erik Rees

Jessie Rees Foundation

Marilyn Henley

Hard Hatt, Inc.

Kim Eilber

PNC Bank

Layne Lawson

Clear Channel Media

Gary Mazzone

Elite Global

Erik Baker

Chick-fil-A

Vincent Cook

ConcertoCare

Scott Bremerman

UPS

Chris March

Cherry Tree Capital

Ryan Sauers

Sauers-Lopez Construction

Jared Bonneville

UPS

Jennifer Olson

Apriem Advisors

Chad Shaw

MST Financial

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 4/18/2022
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 02/03/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.