Disease, Disorders, Medical Disciplines

COPING WITH LARYNGOMALACIA INC

Stay brave and breathe.

aka Coping With LM

Port Monmouth, NJ

Mission

Coping With LM, Inc.'s mission is to provide support, strength, and education for families coping with laryngomalacia, tracheomalacia, and bronchomalacia. Located in Port Monmouth, New Jersey; serving families worldwide.

Ruling Year

2012

Founder & President

Mrs. Stephanie Hueston

Main Address

Po Box 313

Port Monmouth, NJ 07758 USA

Keywords

care packages, online support group, babies with airway disorders

EIN

45-2424869

 Number

4556985698

Cause Area (NTEE Code)

Birth Defects (G20)

Ear/Throat (G42)

Pediatrics (G98)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

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Social Media

Blog

Programs + Results

What we aim to solve

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Breathe Easy Care Package Program

Chibebe Snuggle Pod Program

World Leader Program

Malacia Meet-Ups

Where we work

External Reviews

Photos

Financials

COPING WITH LARYNGOMALACIA INC

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2011
  • A Pro report is also available for this organization.

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Operations

The people, governance practices, and partners that make the organization tick.

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2011
  • A Pro report is also available for this organization.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

No

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

No

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Sexual Orientation

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Disability

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity