COPING WITH LARYNGOMALACIA INC
Together we are stronger than stridor!
Mission
Coping With LM, Inc.'s mission is to provide support, strength, and education for families coping with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia. Together we are stronger than stridor!
Ruling year
2012
Founder & President
Mrs. Stephanie Hueston
Founding Volunteer and Board Member
Christine Amaro
Main address
Po Box 313
Port Monmouth, NJ 07758 USA
EIN
45-2424869
NTEE code
Birth Defects (G20)
Ear/Throat (G42)
Pediatrics (G98)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Breathe Easy Care Package Program
Through the Breathe Easy Care Package Program children with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia are given care packages to help comfort them during airway-related medical procedures; at no charge to the family.
Chibebe Snuggle Pod Program
Through this program, Coping With LM, Inc. works directly with Chibebe Snuggle Pod USA and Australia who donate Snuggle Pod's to infants (six months old or younger) with laryngomalacia.
Malacia Meet-Ups
Malacia Meet-Ups are local meet-ups for families to connect and support each other. Malacia Meet-Ups are hosted by Coping With LM volunteers throughout the USA.
Project Pajamas
Through the Project Pajamas Program, CWL gives airway-specific medical pajamas to children whose parents are facing financial hardships.
Online Support Group
Connecting those who are coping through Caregiver Support on Facebook and Facebook's Mentorship Program.
RARE Bear Program
In partnership with RARE Science, the RARE Bear Program gives children with airway malacia custom, handmade bears to help provide comfort and joy.
Where we work
Awards
Top-Rated Nonprofit 2020
Great Nonprofits
Affiliations & memberships
Top-Rated Nonprofit by Great Nonprofits 2020
External reviews
Photos
Videos
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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What challenges does the organization face when collecting feedback?
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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COPING WITH LARYNGOMALACIA INC
Board of directorsas of 10/22/2021
Mr. Daniel Paden
Christine Amaro
Seabrook Village
Edie Hueston
Tarah Barreras
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
No data
Gender identity
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Sexual orientation
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Disability
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Equity strategies
Last updated: 10/22/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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