COPING WITH LARYNGOMALACIA INC

Together we are stronger than stridor!

aka Coping With LM   |   Port Monmouth, NJ   |  www.copingwithlm.org

Mission

Coping With LM, Inc.'s mission is to provide support, strength, and education for families coping with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia. Together we are stronger than stridor!

Ruling year info

2012

Founder & President

Mrs. Stephanie Hueston

Founding Volunteer and Board Member

Christine Amaro

Main address

Po Box 313

Port Monmouth, NJ 07758 USA

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EIN

45-2424869

NTEE code info

Birth Defects (G20)

Ear/Throat (G42)

Pediatrics (G98)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Breathe Easy Care Package Program

Through the Breathe Easy Care Package Program children with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia are given care packages to help comfort them during airway-related medical procedures; at no charge to the family.

Population(s) Served

Through this program, Coping With LM, Inc. works directly with Chibebe Snuggle Pod USA and Australia who donate Snuggle Pod's to infants (six months old or younger) with laryngomalacia.

Population(s) Served
Infants and toddlers

Malacia Meet-Ups are local meet-ups for families to connect and support each other. Malacia Meet-Ups are hosted by Coping With LM volunteers throughout the USA.

Population(s) Served
Families
Caregivers

Through the Project Pajamas Program, CWL gives airway-specific medical pajamas to children whose parents are facing financial hardships.

Population(s) Served

Connecting those who are coping through Caregiver Support on Facebook and Facebook's Mentorship Program.

Population(s) Served

In partnership with RARE Science, the RARE Bear Program gives children with airway malacia custom, handmade bears to help provide comfort and joy.

Population(s) Served
Infants and toddlers
Children and youth
Infants and toddlers
Children and youth
Infants and toddlers
Children and youth
Infants and toddlers
Children and youth

Where we work

Awards

Top-Rated Nonprofit 2020

Great Nonprofits

Affiliations & memberships

Top-Rated Nonprofit by Great Nonprofits 2020

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

  • How is your organization using feedback from the people you serve?

  • With whom is the organization sharing feedback?

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

COPING WITH LARYNGOMALACIA INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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COPING WITH LARYNGOMALACIA INC

Board of directors
as of 8/19/2021
SOURCE: Self-reported by organization
Board chair

Mr. Daniel Paden

Christine Amaro

Seabrook Village

Edie Hueston

Tarah Barreras

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 08/19/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data