Mission
SCAD Research is an all-volunteer organization. We are dedicated to raising funds to support the most promising Spontaneous Coronary Artery Dissection (SCAD) research and to ultimately bring awareness, dissemination of knowledge and research findings to the bedside of patients with SCAD.
Notes from the nonprofit
We are an all-volunteer, grassroots organization dedicated to raising funds for the most promising research on Spontaneous Coronary Artery Dissection (SCAD) and bring research findings to SCAD patients. When we started Mayo Clinic SCAD Research Program (Rochester, MN) was the only research program focused on SCAD. Because of the growth of other research organizations, in 2019 we awarded two grants, Mayo Clinic SCAD Research Program & Minneapolis Heart Institute Foundation. In 2020, despite a pandemic and having to postpone our major fundraisers to 2021, we donated $120,000 to Mayo Clinic SCAD Research Program, bringing the total donation to Mayo Clinic to over $1 million. We raise money through 5K SCADaddle for Research run/walks in various locations in the USA, other fundraisers as well as direct donations. We administer a closed Facebook Group called SCAD Angels for families whose loved ones did not survive SCAD.
Ruling year
2011
President
Ellen Michelle Robin
Main address
2604-B El Camino Real, 245
Carlsbad, CA 92008 USA
EIN
45-2678388
NTEE code
Heart and Circulatory (H43)
Fund Raising and/or Fund Distribution (H12)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form(s) 990 for 2022, 2020 and 2019.
Register now
Communication
Programs and results
What we aim to solve
Research is needed to determine the cause and prevention of the #1 cause of heart attacks in women under age 50, pregnant women and new moms - Spontaneous Coronary Artery Dissection (SCAD). We raise money to help fund the most promising research. Research is expensive. SCAD is a little known and poorly understood type of a heart attack caused when a sudden tear occurs within the layers of one or more arteries to the heart. This tear blocks blood flow causing a heart attack and sometimes death. SCAD is completely distinct and different artery blockage than the "traditional" heart attack due to blockage caused by blockage due to plaque build up over a lifetime. Treatment is different than other heart attack patients. While up to 90% of SCAD patients are women, SCAD affects men too. SCAD can recur.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Annual Chicagoland 5K SCADaddle for Research
Our 11th annual Chicagoland 5K SCADaddle for Research timed run/walk will take place in Wheaton, IL on June 22, 2024. Survivors, supporters and those who lost a loved one to SCAD (our SCAD Angels) attend from across the United States. Runners and walkers in the Chicagoland area also participate. Note: In 2024, we changed the name from National to Chicagoland to better reflect it's location.
SCAD researchers from Mayo Clinic (Rochester, MN) will attend and present their latest research findings in person on Friday evening. The social/dinner is open to SCAD survivors, their supporters and SCAD Angel families/friends. We will also live stream their presentation and take online questions during the Q&A section of Mayo's presentation. Afterwards, the recording is edited slightly and posted on our YouTube channel.
Annual San Diego 5K SCADaddle for Research
Our 5K timed run/walk began in 2015 to raise money for research, increase awareness and bring those impacted by SCAD together. Our 8th SCADaddle will take place in San Diego, CA Sept. 7. Survivors, supporters and those who lost a loved one to SCAD (our SCAD Angels) attend from across the United States. Runners and walkers in the San Diego area also participate.
A member from the Mayo Clinic SCAD Research Program, Rochester MN, will present their latest research findings on Friday evening at a dinner to SCAD survivors, their supporters and those who lost a loved one to SCAD (SCAD Angels). We will live-stream their presentation and take questions from those in attendance and well as the virtual audience after the presentation.
Annual Pittsburgh PA 5K SCADaddle for Research
Our 1st annual SCADaddle for Research timed run/walk will take place on October 6, 2024 in Pittsburgh, PA. Survivors, supporters and those who lost a loved one to SCAD (our SCAD Angels) will attend from the area and across the United States. Runners and walkers in the Pittsburgh area also can participate.
A special event for SCAD survivors, their supporters and SCAD Angel families/friends is being planned on Friday evening.
Annual Minnesta 5K SCADaddle for Research
Our 5th 5K SCADaddle fun run/walk takes place in the Twin Cities area May 11, 2024. The 5K takes place at Battle Creek Regional Park, Maplewood, MN on winding trails through natural areas that offer a spectacular look at Ramsey County's diverse landscape.
This event has a community feel with kid's activities and a playground all while shopping the vendors including our SCAD store and enjoying some race snacks. Over 350 people attended in 2023.
The weekend includes a SCAD Reunion social/dinner in Lake Elmo, MN on Friday evening for survivors, their supporters and those who lost a loved one to SCAD (our SCAD Angels). Mayo Clinic SCAD Researchers will attend and present their latest research findings taking questions afterwards.
Annual Texas SCADaddle for Research
Our 1st annual 5K SCADaddle for Research chip timed run/walk will take place at Wolf Pen Creek Park, College Station TX on April 20. The race/walk will be on a 3.1 mile loop around the park. Following an awards ceremony, there will be a post race social and lunch (included with race ticket).
On Friday evening there will be a heartwarming Meet and Greet for SCAD survivors, their supports and those who lost a loved one to SCAD (our SCAD Angels).
Annual Maryland SCADaddle for Research
Our 1st annual SCADaddle for Research run/walk will take place at Solomons, Maryland on May 18, 2024 to raise funds for research and to bring together those who have been impacted by SCAD. This is a wonderful opportunity for SCAD survivors, their supporters and those who lost a loved one to SCAD (our SCAD Angels) to support each other.
Where we work
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Increase the awareness of SCAD, Spontaneous Coronary Artery Dissection, and increase funding to find treatments and a cure
This metric is no longer tracked.Totals By Year
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Add the number of 5K's
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, People with diseases and illnesses
Related Program
Annual Chicagoland 5K SCADaddle for Research
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
5K SCADaddles are our main fundraisers & include events for survivors, their supporters and families who lost a loved one. Money raised helps to support research. Postponed in 2020 & 2021 due to COVID
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goal is to increase our support of much needed research by expanding our fundraising efforts and to continue to build a stronger volunteer base of SCAD survivors, families of SCAD survivors and families of those who did not survive along with public supporters of SCAD Research, Inc.
What are the organization's key strategies for making this happen?
We are currently working on increasing the number of our annual fundraisers as well as raise awareness about SCAD. We are currently investigating other ways to raise funds in addition to our 5K SCADaddle for Research run/walks and year end appeals.
What are the organization's capabilities for doing this?
Since 2012 we have been organizing 5K Walk/Runs. We are planning six 5K's in 2022. We have a SCAD Research, Inc. store on our website, www.scadresearch.org, we hold various individual fundraising events as the develop throughout the year. To date, 2/06/2022, SCAD Research, Inc. has donated over $1million to research with the vast majority going to Mayo Clinic's SCAD Research Program, Rochester, MN, Our 5K's are nationally known as "SCADaddles© ." We also send out end of the year solicitation emails/letters; participate in GivingTuesday and sell a variety of items through our SCAD Store. We receive a % of sales through the SCAD Store. We accept direct donations through our Website including donations in honor and in memory of someone. Individuals set up fundraisers through FB in honor of their birthday and occasionally survivors and families who lost someone to SCAD set up other fundraisers.
What have they accomplished so far and what's next?
We have raised and donated almost a total of $1.2 million to research. The vast majority of our funds have been granted to Mayo Clinic SCAD Research Program. A significant portion of the money donated to Mayo Clinic has been used for genetic research on SCAD. In 2019, we also awarded a grant to Minneapolis Heart Institute Foundation to study the long-term outcomes of SCAD patients treated with stents and bypass surgery compared to noninvasive treatment.
The results of Mayo Clinic SCAD research, funded in part by our support, are shared in published studies in medical journals and other publications. Mayo Clinic researchers also discuss their findings when they speak to cardiologists and other researchers around the world. The Minneapolis Heart Institute Foundation presented their study on the Long-term Outcome After Emergency Revascularization for SCAD findings at the American College of Cardiology (ACC) 2020 World Congress, which was done virtually due to COVID-19.
Our goal is to continue to raise awareness and funds for research especially to better understand the relationship of genetics on SCAD. We would also like to expand grants to research to other programs to compliment research done to date.
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
SCAD RESEARCH INC
Board of directorsas of 03/13/2024
Ellen Robin
SCAD Research, Inc.
Ellen Robin
Cindy Adams
Nancy Hebert
Terri Bell
Claude Sansaku
Shirlene Barnes
Kristy Pals
Robert Alico
Janet Saillard
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
Thanks for signing up!
An email has been sent to the address you provided. Click on the link in that email to get more GuideStar Nonprofit Profile data today!
(Don't see an email in your inbox? Click here to resend it.)
GuideStar Pro Reports
Report successfully added to your cart!
Want more data?
A GuideStar Pro report containing the following information is available for this organization:
- Email contact information
- Financial trends metrics for five most recent years 2022, 2021, 2020, 2019*
- Officer and/or Employee data for 2022, 2021, 2020, 2019
- Contractor and/or Paid Preparer data for 2022, 2021, 2020
- Board of Directors data for 2024
- *with the ability to download the data for 2022, 2021, 2020, 2019
Download it now for $125.
Need the ability to download nonprofit data and more advanced search options?Consider a Pro Search subscription.