SCAD RESEARCH INC

WE Fund Research Now

Scottsdale, AZ   |  www.scadresearch.org/

Mission

SCAD Research is dedicated to raising funds to support the most promising Spontaneous Coronary Artery Dissection (SCAD) research and to ultimately bring awareness, dissemination of knowledge and research findings to the bedside of patients with SCAD.

Notes from the nonprofit

We are an all-volunteer, grassroots organization dedicated to raising funds for the most promising research on Spontaneous Coronary Artery Dissection (SCAD) and bring research findings to SCAD patients. When we started Mayo Clinic SCAD Research Program (Rochester, MN) was the only research program focused on SCAD. Because of the growth of other research organizations, in 2019 we awarded two grants, Mayo Clinic SCAD Research Program & Minneapolis Heart Institute Foundation. In 2020, despite a pandemic and having to postpone our major fundraisers to 2021, we donated $120,000 to Mayo Clinic SCAD Research Program, bringing the total donation to Mayo Clinic to over $1 million. We raise money through 5K SCADaddle for Research run/walks in various locations in the USA, other fundraisers as well as direct donations. We administer a closed Facebook Group called SCAD Angels for families whose loved ones did not survive SCAD.

Ruling year info

2011

President

Robert J Alico

Main address

10115 E. Bell Rd. Ste. 107-127

Scottsdale, AZ 85260 USA

Show more contact info

EIN

45-2678388

NTEE code info

Heart and Circulatory (H43)

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Research is needed to determine the cause and prevention of the #1 cause of heart attacks in women under age 50, pregnant women and new moms - Spontaneous Coronary Artery Dissection (SCAD). We raise money to help fund the most promising research. Research is expensive. SCAD is a little known and poorly understood type of a heart attack caused when a sudden tear occurs within the layers of one or more arteries to the heart. This tear blocks blood flow causing a heart attack and sometimes death. SCAD is completely distinct and different artery blockage than the "traditional" heart attack due to blockage caused by blockage due to plaque build up over a lifetime. Treatment is different than other heart attack patients. While up to 90% of SCAD patients are women, SCAD affects men too. SCAD can recur.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Annual National 5K SCADaddle for Research

Due to COVID-19 varient, this event was postponed to 2022: Annual national run/walk fundraiser held in the Chicagoland area. Survivors and supporters attend from across the United States and in some years have had survivors from Canada and Sweden.

Researchers from Mayo Clinic (Rochester, MN) also attend and present the latest research findings. The research presentation is on Friday evening prior to the 5K and is open to anyone interested in learning more about SCAD. We stream their presentation and take online questions during the Q&A section of Mayo's presentation.

Population(s) Served
Adults
Families

Due to COVID 19, this event was postponed to 2022: A 5K run/walk started in 2015 to raise money for research and to bring those impacted by SCAD together. A member from the Mayo Clinic SCAD Research Program presents their latest research findings on Friday evening. The event is scheduled in San Diego, CA.

Population(s) Served
Adults
Families

Due to COVID-19, this event will be rescheduled to 2022: A 5K fun run/walk to raise money for research on Spontaneous Coronary Artery Dissection (SCAD). The weekend includes special events for survivors and supporters including family members whose loved ones did not survive. Participants include SCAD survivors, their supporters, families who lost a loved one to SCAD and the general public.

Population(s) Served
Adults
Families

Due to COVID-19, this event is rescheduled to May, 2022. A 5K fun run/walk to raise money for research on Spontaneous Coronary Artery Dissection (SCAD). The weekend includes special events for survivors and supporters including family members whose loved ones did not survive as well as the general public. Mayo Clinic SCAD Researchers attend and present their latest research findings.

Population(s) Served
Adults
Families

Due to COVID-19, this event will be rescheduled in the Fall, 2022. Our timed 5K Run/Walk will take place at Patterson Farm Market & Tours in Mount Ulla, NC, approx. 35 miles NE of Charlotte. Participants will enjoy running/walking on a dirt/grass trail around farm fields in production. Open to SCAD survivors, their supporters, families who lost someone to SCAD as well as the general public.

Population(s) Served
Adults
Families

Event postponed to Sept. 10, 2022 due to COVID-19. Our 1st annual 5K fun run/walk to raise funds for research will take place at Lake St. Clair Metropark in Harrison Charter Township, Michigan (approximately 20 miles NE of downtown Detroit). The paved course winds among the trees and along Lake St. Clare's shoreline. Open to SCAD survivors, their supporters, families who lost someone to SCAD and the general public.

Population(s) Served
Adults
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Increase the awareness of SCAD, Spontaneous Coronary Artery Dissection, and increase funding to find treatments and a cure

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Add the number of 5K's

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Annual National 5K SCADaddle for Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

5K SCADaddles are our main fundraisers & include events for survivors, their supporters and families who lost a loved one. Money raised helps to support research. Postponed in 2020 & 2021 due to COVID

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goal is to increase our support of much needed research by expanding our fundraising efforts and to continue to build a stronger volunteer base of SCAD survivors, families of SCAD survivors and families of those who did not survive along with public supporters of SCAD Research, Inc.

We are currently working on increasing the number of our annual fundraisers as well as raise awareness about SCAD. We are currently investigating other ways to raise funds in addition to our 5K SCADaddle for Research run/walks and year end appeals.

Since 2012 we have been organizing 5K Walk/Runs. We are planning six 5K's in 2022. We have a SCAD Research, Inc. store on our website, www.scadresearch.org, we hold various individual fundraising events as the develop throughout the year. To date, 2/06/2022, SCAD Research, Inc. has donated over $1million to research with the vast majority going to Mayo Clinic's SCAD Research Program, Rochester, MN, Our 5K's are nationally known as "SCADaddles© ." We also send out end of the year solicitation emails/letters; participate in GivingTuesday and sell a variety of items through our SCAD Store. We receive a % of sales through the SCAD Store. We accept direct donations through our Website including donations in honor and in memory of someone. Individuals set up fundraisers through FB in honor of their birthday and occasionally survivors and families who lost someone to SCAD set up other fundraisers.

We have raised and donated almost a total of $1.2 million to research. The vast majority of our funds have been granted to Mayo Clinic SCAD Research Program. A significant portion of the money donated to Mayo Clinic has been used for genetic research on SCAD. In 2019, we also awarded a grant to Minneapolis Heart Institute Foundation to study the long-term outcomes of SCAD patients treated with stents and bypass surgery compared to noninvasive treatment.

The results of Mayo Clinic SCAD research, funded in part by our support, are shared in published studies in medical journals and other publications. Mayo Clinic researchers also discuss their findings when they speak to cardiologists and other researchers around the world. The Minneapolis Heart Institute Foundation presented their study on the Long-term Outcome After Emergency Revascularization for SCAD findings at the American College of Cardiology (ACC) 2020 World Congress, which was done virtually due to COVID-19.

Our goal is to continue to raise awareness and funds for research especially to better understand the relationship of genetics on SCAD. We would also like to expand grants to research to other programs to compliment research done to date.

Financials

SCAD RESEARCH INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

SCAD RESEARCH INC

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Robert Alico

SCAD Research, Inc.

Robert Alico

Susan Alico

Janet Saillard

Peter Zich

David McGarry

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 1/14/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data