PLATINUM2025

Down Syndrome Network of Montgomery County Inc

Advocate | Educate | Connect

aka DSNMC, Inc.   |   Oakland, MD   |  http://www.dsnmc.org

Mission

Our mission is to empower and support individuals with Down Syndrome, their families, and the broader community through education, partnerships, resources, and advocacy. We envision a world where all people with Down Syndrome feel a sense of belonging and are welcomed with fairness, enthusiasm, and encouragement while achieving their full potential through meaningful inclusion and unlimited opportunities.

Ruling year info

2011

Executive Director

Brooke Levey

Board President

Nancy Forsythe

Main address

Maryland Registered Agent 5000 Thayer Center Suite C

Oakland, MD 21550 USA

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EIN

45-3139194

NTEE code info

Alliance/Advocacy Organizations (W01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

College and Career Readiness

During Summer 2025, DSNMC will host a series of programs for 16-25 year olds to explore College and Career Readiness. Topics include career/industry exploration, postsecondary options for students with disabilities, navigating public transportation, and preparing for job interviews. In Summer 2026, DSNMC will host a week-long summer camp for teens and young adults with Down syndrome to learn skills and information about employment, postsecondary education, and community life.

Population(s) Served

This program brings together individuals with Down syndrome and their families, fostering social connections and a sense of community, including our Teen Hangout space for teens with Ds to socialize and build friendships, and age specific playgroups for younger children with Ds.

Population(s) Served

DSNMC has been supporting and encouraging families since 1986 in Montgomery county and the surrounding areas. As a new parent of a baby with Down syndrome, you may find yourself with a number of questions. We encourage you to reach out to our First Call program which is made up of parent volunteers who have been trained with up-to-date information, have walked their own journey, and are ready to be a listening ear. If you are interested in hearing from a First Call volunteer, please reach out to Kristi Maeng or 301-979-1112.

Population(s) Served

Techniques for Success (TFS) is Maryland’s leading education conference focused on supporting the inclusion, equity, and success of students with Down syndrome and Intellectual & Developmental Disabilities (IDD). TFS typically brings together up to 400 participants including educators, para-educators, administrators, therapists, advocates, and other educational leaders that serve students with IDD. The TFS Conference provides these professionals with practical and innovative strategies along with new technologies and advances for meeting the needs of their diverse learners through presentations from well-known experts in the field.

Population(s) Served

In partnership with ArtStream, Positively Speaking teaches, supports, and empowers our teens and adults with Down syndrome. Workshops focus on communication and social skills using innovative theater arts techniques.

Population(s) Served

DSNMC offers social and educational programs to teens with Down syndrome and other intellectual and developmental disabilities. Activities include dances, independence skill building, a weekly virtual hangout and activities that foster friendships and building social skills.

Population(s) Served

Launched in 2023, this adult Self-advocate run program is designed to enhance leadership and advocacy skills, plan and engage in social activities and foster healthy relationships.

Population(s) Served

From research, developmental skill building, adult medical guidelines to kindergarten transition, the IEP process, and funding opportunities to creating legal and life care plans, we offer monthly presentations to parents and caregivers on topics specifically related to people with Down syndrome and other intellectual disabilities.

Population(s) Served

DSNMC's Latino group, Grupo Latino, comprises more than 65 families of Montgomery County and its surroundings areas. The group meets every month, alternating Spanish-only activities with the DSNMC whole group events. The meetings are both social and educational, and create a network of support among the families and DSNMC. Grupo Latino has been invited to the major Spanish local media including Telemundo and El Zol Radio.

Population(s) Served

Our program strives to empower parents and caregivers with personalized mentoring and support. This program provides access to the latest resources and opportunities to help families thrive and support their loved one with Down syndrome. The Parent to Parent Mentor Program will connect families wanting assistance and connection with a "seasoned" parent (mentor) who will guide and support you through the unique journey of raising a child with Down syndrome. The Parent to Parent Mentor Program’s main goal is to provide long-lasting support to parents in the DSNMC community in an array of areas such as social, educational, medical, emotional support and more. Our mentors will serve as a reliable resource and friend who will offer guidance, accurate and valuable information to mentees. Further upholding DSNMC’s value of building a supportive community centered on trust and advocacy for individuals to reach their full potential.

Population(s) Served
Children and youth
Adults
Ethnic and racial groups
Caregivers
Men
Women
Stepparents

Where we work

  • District of Columbia (United States)

  • Maryland (United States)

  • Montgomery County (Maryland, United States)

  • Washington (Washington, D.C., United States)

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

21 new babies with Down syndrome welcomed into the DSNMC Community

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Context Notes

In 2023, our Outreach Coordinators worked to strengthen our connections with families throughout Montgomery County, MD and surrounding areas. This year, our Outreach Team: Connected with 51 new families and welcomed them into our Down syndrome community Welcomed 24 new babies with Down syndrome Hosted 2 New Family breakfasts and 2 playgroups for families to connect

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The selection of DSNMC’s strategic priorities reflects a collaborative and inclusive effort involving staff and board members. Through a series of discussions, breakout sessions, and consensus-building activities, the team identified key objectives: enhancing communication to foster community belonging, supporting adults and transitioning youth, diversifying and strengthening resources, and evolving internal operations to meet future challenges. These priorities, collectively referred to as the CARE model—Communication, Achievement, Resources, and Evolution—form the cornerstone of DSNMC's mission to empower individuals with Down syndrome and their families.

Communicate:
Building a sense of belonging is at the heart of our mission, and effective communication is key to achieving it. This priority focuses on engaging less involved subpopulations within our community through enhanced communication strategies, intentional outreach efforts and a stronger and more cohesive brand identity. By fostering deeper connections, we aim to create a more inclusive and welcoming network for all.
Achieve:
Supporting individuals with Down syndrome throughout their transition to adulthood and beyond is essential. This priority emphasizes creating pathways for housing, employment, post-secondary education, and lifelong supports, while also recognizing the unique needs of transitioning youth. By providing resources and guidance during the critical period of youth transitioning to adulthood, we can bridge the gap between childhood services & programs and adulthood, ensuring individuals with Down syndrome and their families are empowered to navigate this stage with confidence. A holistic approach that addresses both immediate and long-term needs fosters independence, inclusion, and a fulfilling quality of life.
Resources:
A strong and sustainable future requires diverse and reliable funding streams. This priority focuses on broadening our financial base through grant development, endowments and trusts, expanding partnerships with business sponsors, and increasing revenue generation from program fees and fee-for-service programs. By building robust and varied resources, we can ensure long-term financial stability and continued support for our programs and services, while also enhancing our capacity to grow and innovate.
Evolve:
To meet the growing needs of our community, our organization must evolve. This priority centers on enhancing formal staff structures and processes, improving the employee value proposition through better compensation packages & benefits (both paid and unpaid), and refocusing the board’s efforts on strategic governance, fundraising, and oversight. By strengthening our internal framework, we can better serve our community with efficiency and purpose.

Key Strategies
Key Priority Area: Communication
C1. Develop and Implement an Outreach-Oriented Communication Strategy
C2. Expand Community Outreach Initiatives
C3. Elevate and Strengthen Organizational Brand Identity

Priority Area: Achieve
A1. Build a Vibrant Social and Community Network for Self-Advocates
A2. Create a Hybrid Ecosystem for Employment and Career Support
A3. Enhance Housing Independence with Technology and Community Support

Priority Area: Resources
R1. Expand Board Engagement in Donor and Sponsorship Recruitment

R2. Increase Corporate Partnerships to Diversify Revenue Streams
R3. Establish a Focus on Strategy-Aligned Grants
R4. Expand Fee-Based Revenue Opportunities

Priority Area: Evolve
E1. Clarify Board and Staff Responsibilities for the Future
E2. Formalize Organizational Processes and Policies
E3. Enhance the Employee Value Proposition to Improve Talent Acquisition and Retention

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We take steps to ensure people feel comfortable being honest with us,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

Down Syndrome Network of Montgomery County Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Down Syndrome Network of Montgomery County Inc

Board of directors
as of 8/20/2025
SOURCE: Self-reported by organization

Amuthan Kannan Treasurer

Manager, Information System, International Union of Bricklayers and Allied Craftsmen

Asha Pinkney Director

US HR Director Pathfinder International

Christine Fleming

Sunshine Project Spirit CLUB

Denise Dombay

Finra SwimLabs

Hari Kannan Director

Adult Self-advocate

Isabel Van Isschot Secretary

La Clinica del Pueblo, Director of the Language Access Department (retired)

Keight Kennedy President

Partner and Executive Search Consultant at Isaacson, Miller

Kikelomo Ayorinde Director

JOY Cheer & Cheer Extreme Allstars Coach, Paraeducator for Children’s Playhouse

Manny Bramble

Medstar Doctor

Manuel Brown Director

Internal Revenue Service, Management Analyst

Nancy Forsythe Board President

University of Maryland, College Park

Shannon Thomas Vice President

St. Patrick’s Episcopal Day School, Third Grade Teacher

Thelma Salmeron Director

El Andariego Restaurant

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability