Health—General & Rehabilitative


Caring for the Caregiver

Manlius, NY


Our mission is to provide respite, resources and support for parents and guardians of children with special needs or life threatening medical conditions where they will be refreshed, restored and renewed in their role as caregivers.

Ruling Year


Executive Director

Kate Houck

Main Address

8195 Cazenovia Road

Manlius, NY 13104 USA


Respite care, Caregivers, Special needs parents





Cause Area (NTEE Code)

Patient Services - Entertainment, Recreation (E86)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2018, 2017 and 2016.
Register now

Programs + Results

What we aim to solve

Add a problem overview to your profile.

Update now

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Overnight Respite Services

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

Our vision is to become a community nationally recognized for empowering caregivers to lead their families with strength and grace. Our goal is to continue to expand our reach so that more caregivers are restored and refreshed annually. In the next 5 years, we will grow from serving hundreds to thousands of caregivers and have a larger geographic presence including staff and extensive volunteers in each of our markets. We will grow our programs outside of Respite Weekends so that parents can participate at any stage in their journey of caregiving.

- Grow a base of support in Rochester NY to begin to develop our presence in this community. - Start a legacy/endowment program to encourage large level giving that will lead to long term sustainability. -Develop our Board of Directors and other committees to include diversity and skill. - Develop our staff and empower team members to think creatively about serving caregivers. - Continue to increase our annual services so that more parents will feel loved and supported. This will happen with the continued success in our philanthropy.

With our current Board and Staff we have the ability to continue our slow and steady growth. One of our organizations largest strengths is our ability to plan and then implement these plans. Our Staff is on the same page as our board so we are all moving together in the same direction. There is great communication between the board and the Executive Director so we have consistent messaging going to our staff, volunteers and donors. We excel at keeping our donors informed and are transparent. The community continues to learn more and more about the impact of our services and trust is built. We are confident in our abilities to meet our goals in the next 5 years and beyond with the support of a consistent and dedicated donor base.

We complete an annual survey with the parents we serve to gauge efficacy in our programs. The survey asks questions that determine the efficacy of our programming and how close we are to meeting the goals of our organization to empower caregivers. We also have an extensive budgeting process to plan for the coming year and to ensure we are in line with the services we can offer, our staff expenses and new programming goals. We know that each year our goal is to stay within our means and honor our donors with responsibility. For the past 8 years we have been successful in this process and have been able to see steady growth and progress.

In the past 8 years we have accomplished so much! We have moved from a small start-up organization in 2012 serving 43 parents each year to what we are today- serving 350 couples each year, and offering extensive year round programming and support. We have a well developed Board of Directors and a healthy committee structure to ensure we look at all parts of our business effectively. We have also started an endowment fund to support our vision for long term growth and sustainability. We have worked on our systems and internal structure to ensure we have a well developed and secure system to maintain our records for both the families we serve and our donors. As stated above, our plans will continue to point us towards further growth and sustainability!

How We Listen

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

Source: Self-reported by organization

the feedback loop
check_box We demonstrated a willingness to learn more by reviewing resources about feedback practice.
check_box We shared information about our current feedback practices.
How is the organization collecting feedback?
We regularly collect feedback through: electronic surveys (by email, tablet, etc.), focus groups or interviews (by phone or in person), community meetings/town halls, suggestion box/email.
How is the organization using feedback?
We use feedback to: to identify and remedy poor client service experiences, to identify bright spots and enhance positive service experiences, to make fundamental changes to our programs and/or operations, to identify where we are less inclusive or equitable across demographic groups, to strengthen relationships with the people we serve.
With whom is the organization sharing feedback?
We share feedback with: the people we serve, our staff, our board, our funders, our community partners.
What challenges does the organization face when collecting feedback?
It is difficult to: we don’t have the right technology to collect and aggregate feedback efficiently, staff find it hard to prioritize feedback collection and review due to lack of time.
What significant change resulted from feedback
After our 2019 guest survey results were assessed, we identified a direct need for the increase in our Inclusion and Diversity initiatives. Our mission is and has always been open and available to ALL caregivers however we have not been serving a diverse population of caregivers. We have taken immediate action including the creation of an Inclusion and Diversity committee who will keep these organizational growth goals front and center. The committee will work with our staff and Board to strengthen our recruitment efforts and ensure that we are serving a more diverse population of caregivers.

External Reviews


Best Places to Work in Central New York 2019


Best Places to Work in CNY 2020

CNY Business Journal

Affiliations & Memberships

Best Places to Work in Central New York 2020



Need more info on this nonprofit?

Need more info on this nonprofit?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

See what's included


The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization


Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?



Has the board conducted a formal, written assessment of the chief executive within the past year?



Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?



Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?



Has the board conducted a formal, written self-assessment of its performance within the past three years?