FPIES FOUNDATION
Educate. Support. Empower
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Global FPIES Patient Registry
The purpose of this Patient Insights Network (PIN) is to create a global database where doctors, researchers and families can connect to better understand food protein induced enterocolitis syndrome (FPIES). The goal is to spark improved diagnosis, management and treatment options, as well as the empowerment of patients and families through knowledge, connections and continued support. The FPIES Foundation is partnering with Invitae to bring you this registry, the first of its kind globally.
Registered families will have opportunities to participate in research and informational surveys and immediately see the results of those surveys. All patient information is kept confidential and FPIES families will always own their information and be able to opt-in or opt-out of participation.
Knowledge is power. By joining the FPIES Foundation PIN, you enhance knowledge of FPIES and provide information for doctors to research and understand this rare condition.
Medical Provider Locator
http://fpiesfoundation.org/find-a-healthcare-provider/
Awareness and Educational Outreach
The FPIES Foundation respects the difficulties faced by a family affected by FPIES and dedicates itself to helping families living with FPIES today by supporting their multifaceted needs. It is Our Vision to provide tools for families & patients managing FPIES every day.
Your most powerful contribution to The FPIES Foundation is your family’s voice.
Where we work
Awards
Top-Rated Nonprofit Award 2020
GreatNonprofits
Certification 2019
HonCode - Health on the Net Foundation
External reviews
Photos
Videos
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
-
How is your organization using feedback from the people you serve?
To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
-
Which of the following feedback practices does your organization routinely carry out?
-
What challenges does the organization face when collecting feedback?
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
FPIES FOUNDATION
Board of directorsas of 06/03/2023
Mrs. Joy Meyer
The FPIES Foundation
Ms. Amanda LeFew
The FPIES Foundation
Amanda LeFew
The FPIES Foundation
Joy Meyer
The FPIES Foundation
Jen Hertsch
The FPIES Foundation
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 04/21/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.