GOLD2024

HealthTree Foundation Inc.

Supporting and educating blood cancer patient communities with tools that help advance a cure

aka CrowdCare Foundation Inc.   |   Draper, UT   |  https://www.healthtree.org

Mission

The HealthTree Foundation is a 501(c)3, non-profit organization that empowers patients with rare diseases at each step of their disease journey - from diagnosis, through education, care and on to a cure. The Foundation was founded in 2012 by multiple myeloma patient Jenny Ahlstrom.

Ruling year info

2014

President, Founder

Jennifer Ahlstrom

Main address

PO Box 1286

Draper, UT 84020 USA

Show more contact info

Formerly known as

CrowdCare Foundation

EIN

45-5354811

NTEE code info

Cancer Research (H30)

Cancer (G30)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Patients with rare and terminal diseases like cancer need faster cures and better tools to navigate their disease. Using deep expertise in technology, we set out to first support patients with unique and helpful tools - a disease "university" taught by experts, a news feed written in patient-friendly language, a mentoring/coaching platform, a live and virtual event platform for live and virtual events, a disease specialist online directory, disease community forums and an online journaling tool. We knew that the tools would need to be integrated for easier patient use. We believe that patients are key stakeholders in finding a faster cure, but inviting patients to share their disease stories and data requires trust. We created the HealthTree Cure Hub to build a patient data portal that not only helps patients navigate their disease, but also allows them to contribute to academic research by facilitating surveys and studies inside the portal. It is a wholistic view to find cures.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

HealthTree Patient Advocacy Programs and Tools

The HealthTree programs and software suite provide patient support for blood cancers and other diseases. This includes:
- A news portal with an ad manager
- An online disease specialist directory
- A live and virtual events platform
- A coach/mentoring platform
- A disease "university" learning management system (LMS)
- Community forums
- A clinical trial finder that personalizes trial options
- A journaling tool (text, audio, video journaling)
- A disease portal that helps patients track their disease markers, navigate treatment options and facilitates academic research surveys and studies

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies conducted

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goals are to:

1. Simplify disease education by providing it in patient-accessible ways: We provide disease news, educational events, meetups with disease experts, a disease university, a disease library and other resources in understandable language.

2. Provide support tools and services to help patients navigate their disease: a coach/mentoring platform, a patient customer service team, tools to find clinical trials and personalized treatment options, a disease specialist directory and a portal to track labs and evaluate side effect solutions.

3. Accelerate research: We provide a patient data portal with deep data sets to academic disease researchers. These portals shorten the time and reduce the cost of disease research. We additionally fund academic research.

Our strategy is to first build patient communities, then to invite those patients to contribute to research to accelerate a cure.

We have created an integrated suite of patient advocacy software tools that provide the following:

- A news portal with an ad manager
- An online disease specialist directory
- A live and virtual events platform
- A coach/mentoring platform
- A disease "university" learning management system (LMS)
- Community forums
- A clinical trial finder that personalizes trial options
- A journaling tool (text, audio, video journaling)
- A disease portal that helps patients track their disease markers, navigate treatment options and facilitates academic research surveys and studies

Our expertise in tech startups is unique in patient advocacy. We approach the curing of disease like we would a startup. What programs will truly move the bar? What do patients truly need? Our internal software development team facilitates continued development of a complete suite of software tools that can provide comprehensive and cohesive support to any disease community.

To date we have provided a full suite of software tools to the multiple myeloma patient community. We have the largest online presence of any foundation in the myeloma space and we have developed a data portal for myeloma patients that hosts over 10,000 patients who share their myeloma information to further a faster myeloma cure. We provide quick recruitment for researchers into surveys and studies.

We are currently expanding to other blood cancers including AML and others.

Our approach supports each stakeholder of the disease community.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

HealthTree Foundation Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

HealthTree Foundation Inc.

Board of directors
as of 06/26/2024
SOURCE: Self-reported by organization
Board chair

Jennifer Ahlstrom

HealthTree Foundation

Term: 2014 - 2024

Owen LeGare

Glen Mella

Rozalynn Hite

HealthTree Foundation

Brian Bertha

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 6/26/2024
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 02/22/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.