HealthAdvocateX

Elevating the Patient Experience through Health Advocacy

Seattle, WA   |  http://www.healthadvocatex.org

Mission

We are a national non-profit organization that brings together health advocates, patients, caregivers, health providers, allied health businesses, communities and educational representatives to promote health advocacy with the purpose of helping every person get the care they deserve. We aim to help patients and their families or caregivers struggling to understand and access the health care system. OUR VISION Individuals are actively involved, fully understand, and can make their wishes known to choose the care they want. OUR MISSION We transform people into active participants in their care. We do this by educating, connecting and inspiring people to include advocacy into all aspects of health and healthcare.

Ruling year info

2014

Board Chair

Robin Shapiro

Vice Chair and Board Member

Beth Droppert

Main address

140 Lakeside Ave # A-18

Seattle, WA 98122 USA

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Formerly known as

Washington State Health Advocacy Association

EIN

45-5441201

NTEE code info

Health - General and Rehabilitative N.E.C. (E99)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

HealthAdvocateX is dedicated to promoting health advocacy for everyone across the country by empowering patients and improving health. We seek to revolutionize the way people view their health by transforming patients into empowered and active partners in their health.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Community Conversations

A once monthly discussion of timely issues impacting health and healthcare. In recent months we have focused on the Covid-19 pandemic, leading a conversation aimed at helping constituents manage their health and risk factors.

Population(s) Served
Health
Age groups
Ethnic and racial groups
Family relationships

Join Professional Advocates and other allied professionals in a virtual networking event designed to support your health advocacy business. Be ready to learn and share what is working in terms of business development and practice. Note: You do not have to be a HealthAdvocateX member to attend this event! The objectives of Professional Networking sessions include:

Grow your network of advocates you know and trust
Exchange ideas about advocacy best practices
Learn new information related to health advocacy
Receive peer feedback on challenges and opportunities
Each networking session has a specific focus.

Population(s) Served

Health Advocacy Now: Lessons From The Pandemic

When: November 4-6, 2021
Where: Online via Whova

Every year, we try to tackle a big topic and this year, an obvious area to learn from is COVID-19. We will explore how the pandemic has shown us what has changed and what has not changed in healthcare and health advocacy. Attend the conference to learn and to share your experience!

This is a virtual conference.

Population(s) Served
Age groups
Health
Family relationships

We staff an inquiry program for those members of the public who seek information about health advocacy.

Population(s) Served
Age groups
Family relationships
Health

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goals are to (1) Increase awareness of health advocacy so that the public understands what health advocacy is and how it can benefit health choices; (2) Help individuals, communities and professionals build health advocacy skills and confidence by providing programs, events, services and products; (3) To make it easy to find and use health advocacy resources including professional advocates, specific and timely support, credible and accessible information and tools to make navigating and health care decision-making easier; and (4) To become a nationally recognized leading voice for health advocacy in growing the movement.

We will accomplish our goals through increased paid membership gains, increased membership revenue (with emphasis placed on increasing the ranks of our Professional and Partner members), distribution of our monthly e-news to a broader audience. We will continue to build skills and confidence in our members and will also serve as a Resource Hub through our Inquiry program, annual conference, membership directory and website. Finally, we will become nationally recognized by continuing to help grow the movement towards active health advocacy for all.

We are well on our way towards meeting our goals with current volunteer staffing levels. Recognizing that we must transition to a paid staff model in order to grow as quickly as we would like, we have plans to hire an Executive Director and to staff the Marketing and Communications area within the coming year (2022) to help us serve more of those in need of advocacy services.

Despite the Pandemic we have continued to see growth in our membership over the past two years.

To highlight our positive momentum, during the Pandemic we pivoted our Community Conversations program to focus on the effects of Covid-19 in the Pacific Northwest with focus on our home base of Seattle. These monthly sessions were very well attended, allowing participants to ask questions of our Board member and presenter, Dr. Dale Reisner, Medical Director over Obstetrics and Gynecology, Quality and Safety with Swedish Health Services.

We are a national non-profit organization that brings together health advocates, patients, caregivers, health providers, allied health businesses, communities and educational representatives to promote health advocacy with the purpose of helping every person get the care they deserve.

We host professional networking sessions throughout the year, bringing together advocates from across the country to build relationships, share ideas and learn from each other. This program has grown rapidly and has been recognized as a tool that advocates, both experienced and new to the business, find helpful in their development.

Our Inquiry program, designed to help members of the public find the help they need to get the care they require, has grown rapidly and now serves several hundred members of the public each year.

Our annual conference attended by professional health advocates, family caregivers and patients, will focus on lessons learned from the pandemic in 2021.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    We serve both the general public (patients, family and caregivers) and professional Health Advocates.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), through our website,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We were able to identify the need for a transcription service for our meetings in order to memorialize the session. Additionally, we were able to identify the fact that our time zone (Pacific) made it difficult for people in other time zones to attend our meetings; this recognition propelled us to change the times of day when we offer programs in order to be more inclusive of other regions of the country and to increase participation.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    Asking for and receiving feedback from the people we serve has informed our priorities and has allowed us to provide programming that is most desired by our constituents.

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

HealthAdvocateX
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

HealthAdvocateX

Board of directors
as of 10/25/2021
SOURCE: Self-reported by organization
Board chair

Ms. Robin Shapiro

Shapiro Holdings

Beth Droppert

HealthAdvocateX

Kristen Tollini

PinnacleCare

Bonnie Bizzell

Honoring Choices, Pacific Northwest

Greg Berkman

Consultant, The Horwitz Group, LLC

Gina Culbert

Culbert Law, PLLC

Jessica Kim

UT Austin

Andrew Kreis

Technology Source

Christian Liu

Google

Syreeta Nolan

UCSD

Dale Reisner

Swedish Health

Michael Wood

Michael Wood Health Consulting, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/13/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability