Post-Finasteride Syndrome Foundation
Finasteride: Know the Risks
Mission
The PFS Foundation’s primary mission is to facilitate research on the characterization, underlying biologic mechanisms, and potential treatments of post-finasteride syndrome (PFS). Other goals include generating public awareness of PFS, providing support for patients suffering from the condition, and lobbying for stricter regulation so that fewer unsuspecting men develop the condition. Often life-altering, PFS is characterized by devastating sexual, neurological, and physical side effects that persist in men who have taken the 5-alpha reductase type II enzyme inhibitor finasteride. Finasteride is prescribed for the treatment of hair loss under the brand name Propecia (and generics) and for the treatment of enlarged prostate under the brand name Proscar (and generics).
Ruling year
2013
CEO
Mr. John Santmann
President
Mr. Philip Recchia
Main address
118 Southfield Drive
Belle Mead, NJ 08502-4000 USA
EIN
46-0573960
NTEE code
Fund Raising and/or Fund Distribution (H12)
Specifically Named Diseases (G80)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Clinical Research
The PFS Foundation’s primary objective is to help establish medical consensus and acceptance of PFS by promoting scientific and clinical research. Research initiatives focus on uncovering underlying biologic mechanisms for the syndrome and its persistent side effects at a molecular level.
Public Awareness
Educate members of the public around the globe—with an emphasis on adult males, public health authorities, and members of medical communities and the media—on the potential dangers of finasteride in a subset of men.
Patient Support
Due to an increasing number of inquires from PFS patients around the globe seeking medical advice, in 2015 we added a Patient Support program to our services. Listed on our website are doctors who are aware of PFS and, in some cases, see patients who are believed to have the condition. While none of them professes to know the root cause(s) of PFS, nor claims to have a cure for the condition, they maintain an interest in helping PFS patients manage symptoms as best as possible until clinical research, hopefully, leads to the development of effective therapies. Concurrently, we launched a program to connect PFS patients who live in the same geographic area, and/or speak the same language, with one another, quickly enabling those who are in the early stages of PFS to speak with those who are in the later, more stable stages. In some cases, such patients live close enough to meet in person, for added moral support.
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Operations
The people, governance practices, and partners that make the organization tick.
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Post-Finasteride Syndrome Foundation
Board of directorsas of 04/15/2023
Ms. Rosemary McGeady
Levinson Axelrod
Term: 2012 -
Mr. Philip Recchia
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
The organization's co-leader identifies as:
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Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
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