Health—General & Rehabilitative

Teen Cancer America Inc

Empower the Future by Transforming Lives

aka Teen Cancer America Inc.

Los Angeles, CA

Mission

Our mission is to improve the experience, outcomes, and survival of teens and young adults with cancer by providing facilities and programs designed especially for them in hospitals throughout the USA.

Ruling Year

2013

Executive Director

Simon Davies

Main Address

11845 W Olympic Blvd. Ste 775 W

Los Angeles, CA 90064 USA

Keywords

Cancer Teenagers AYA Young Adults Health Who Roger Daltrey

EIN

46-0825676

 Number

5708398522

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (E01)

Cancer (G30)

Alliance/Advocacy Organizations (O01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

Adolescents and young adults are a unique population, with unique needs — especially when they’ve been diagnosed with cancer. But in most American communities today, there’s no such thing as youth-centered cancer care. Instead: -Young patients fall into a gap between pediatric and adult oncology. Hospitalized with children and elders, with no age-appropriate social support — they often experience extreme isolation and psychological challenges. -With no youth cancer standards to guide them, physicians and nurses often must modify pediatric or adult oncology protocols for teens and young adults. -For some cancers that affect this age group, there have been few if any advances in decades. And with little research focused on the youth population, we still don’t know why teens and young adults get often rare, high-mortality cancers.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Hospital Programs and Services

Where we work

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of young people with cancer impacted by partner hospitals

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context notes

This is the amount of young people(13-39 years of age) with cancer who have received care at a TCA partner hospital.

Number of young people with cancer impacted by consulted hospitals

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context notes

This is the amount of young people (13-39 years of age) with cancer who have received care from a TCA consulted hospital.

Number of states TCA programs are in

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of cities TCA programs are in

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of consulted hospitals this year

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of grants gifted to TCA partner hospitals developing AYA spaces and/or programs

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of AYA program staff partially or fully funded

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Pledged funds (committed by contract, including future stage payments) over all years

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Program spending outside of grants over all years

TOTALS BY YEAR
Population(s) served

Adolescents (13-19 years),

Adults,

Young Adults (20-25 years)

Related program

Hospital Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

Team Cancer America is a movement to empower and improve the lives of young people with cancer. No other enterprise in the nation does what we do: We create youth-centered ecosystems that support young people with cancer, their families, and healthcare professionals. Teen Cancer America integrates everything required to champion a comprehensive youth-centered approach to cancer in hospitals and health systems throughout America.

-We partner with hospitals and philanthropists across the country to activate strategies, create needed facilities, and develop services that meet the special requirements of teens and young adults with cancer. -We build youth-friendly environments — real and virtual — that enhance the care experience for patients, families, and care teams, facilitating connections and cultivating a sense of community. -We enhance standards for age-targeted care, accelerate collaboration between pediatric and adult specialists, and stimulate dedicated research to improve outcomes and survival for our young people.

Although Teen Cancer America has officially operated in the USA since 2012, we have a much longer history with teen and young adult cancer and a track record for success that has reached tens of thousands of young people. TCA is an independent organization, but our story begins in the United Kingdom with the Teenage Cancer Trust, launched in 1989. Before Teenage Cancer Trust opened its first teen and young adult-focused hospital unit in 1990, there was no specialized cancer care for young people offered within the UK’s National Health Service — or anywhere in the world. Today, 28 specialist units and teams of expert nurses and youth support staff in NHS hospitals across the UK offer young people the very best care and support from the moment they hear the word “cancer.” Here in America, led by the former CEO of TCT, we are a focused, highly effective team that is providing expert consultancy and funds for hospitals throughout the country.

-Health professionals tell about the difference TCA ecosystems make in their work. “I never realized it could be this way.” “Now I realize we haven’t been addressing teen and young adult cancer in the right way.” -Families see the difference in their access to resources and support, and in the quality of life and care for their teens and young adults. -Philanthropic supporters speak of the often-personal transformation they experience when they witness the impact of their generosity. In the words of our Founder Roger Daltrey of The Who, “Supporting young people with cancer won’t just change their lives. It will change yours.” -The feedback we’re most proud of comes from young people. They tell us Teen Cancer America “gets it.” Young people say TCA empowered them to be themselves. They want every young person with cancer to experience this. -We measure our impact with every grant, requiring a schedule of deliverables that must be achieved before each staged.

In six years we have developed 17 programs, supporting over 5,000 young people and raised over $15,000,000 to provide grants. A further 67 hospitals engage with TCA to develop future programs. Yet there are still vast regions of the country without access to youth-appropriate cancer care. We are ready to replicate our model for change across the US. Every day, more hospitals and healthcare systems reach out to work with us. We can provide the expertise and resources they need to: -Build and equip youth cancer care units. -Create facilities where young people and their families can connect with each other and with vital resources. -Support integrated care teams — oncologists, nurses, psychologists, program managers, nurse/patient navigators. -Launch youth-centered care programs, including emotional therapy, fertility counseling, survivorship support, and end-of-life care. -Develop and share best practices and advance research.

How We Listen

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

Source: Self-reported by organization

the feedback loop
check_box We demonstrated a willingness to learn more by reviewing resources about feedback practice.
check_box We shared information about our current feedback practices.
How is the organization collecting feedback?
We regularly collect feedback through: sms text surveys, electronic surveys (by email, tablet, etc.), case management notes.
How is the organization using feedback?
We use feedback to: to identify and remedy poor client service experiences, to identify bright spots and enhance positive service experiences, to make fundamental changes to our programs and/or operations, to inform the development of new programs/projects, to strengthen relationships with the people we serve.
With whom is the organization sharing feedback?
We share feedback with: our staff, our board, our funders, our community partners.
What challenges does the organization face when collecting feedback?
It is difficult to: we don't have any major challenges to collecting feedback.

External Reviews

Photos

Financials

Teen Cancer America Inc

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

Who works and leads organizations that serve our diverse communities? This organization has voluntarily shared information to answer this important question and to support sector-wide learning. GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

SOURCE: Self-reported; last updated 02/27/2020

Leadership

The organization's leader identifies as:

Race & Ethnicity
White/Caucasian/European
Gender Identity
Male, Not Transgender (Cisgender)
Sexual Orientation
Heterosexual or Straight
Disability Status
Person without a disability

Race & Ethnicity

Other

Gender Identity

Sexual Orientation

No data

Disability

No data