Tighten the Drag Foundation Inc

Improving Quality of Life for Spinal Cord Injured

Mission

To extend the OPPORTUNITY for recovery and a better quality of life for those who have suffered a life changing paralyzing Spinal Cord Injury as a result of a catastrophic accident.

Ruling year info

2014

President

Amanda Marrero

Vice President

Catherine Schmidt

Main address

3959 VAN DYKE RD #108

LUTZ, FL 33558 USA

Show more contact info

EIN

46-1427712

NTEE code info

Fund Raising and/or Fund Distribution (E12)

Fund Raising and/or Fund Distribution (N12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Insurance does not assist a Spinal Cord injured individual with extremely costly post-injury rehabilitation. Very few specialized facilities exist to help someone with paralysis recover and gain strength and independence. The key to their success is accessible therapy, adaptive sports programs that allow them to benefit both physically and mentally from activities they enjoyed prior to their accidents. Maintaining support for the Caregivers and family members who care for their loved ones 24/7 without compensation are also a priority. Healthy, strong, positive minded Caregivers improve the quality of life for a disabled individual immensely. Our goal is to seek corporate funding to sponsor individuals with Spinal Cord Injuries to allow for recovery rehabilitation straight from the hospital setting and continue to support them as they improve after their injuries. Corporate and small business can make a huge difference as well as benefit from the tax deductible donation.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Quality of Life Recovery Therapy

Supporting Activity based rehabilitative therapy for Spinal Cord Injured

Population(s) Served
Adults
Children and youth

Supporting Tuitions for adaptive outdoor activities for Spinal Cord Injured

Population(s) Served
Adults
Children and youth

Caring for the Family Caregivers of Spinal Cord Injured

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of rallies/events/conferences/lectures held to further mission

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health, Work status and occupations

Related Program

Quality of Life Recovery Therapy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Successful tournament events held to raise funding for Scholarships.

Average number of dollars per person served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health, Work status and occupations

Related Program

Quality of Life Recovery Therapy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

With continuing expansion of more Injured in need of funding, we continue to raise more to give more.

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health, Work status and occupations

Related Program

Quality of Life Recovery Therapy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We continue to support Injured who continue to need ongoing therapy as well as newly injured individuals who need support.

Number of participants who would recommend program to others

This metric is no longer tracked.
Totals By Year
Related Program

Quality of Life Recovery Therapy

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Each of our Injured Scholarship recipients have given testimonies about how beneficial our support has been. They attend our events to insure that our Supporters hear from them first hand.

Number of returning volunteers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health, Work status and occupations

Related Program

Quality of Life Recovery Therapy

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

We have the most loyal and dedicated Volunteers who have made a personal connection to the cause and the Injured we serve. They attend time after time without hesitation.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health, Work status and occupations

Related Program

Quality of Life Recovery Therapy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Facebook and Social media followers tends to grow as new Supporters are made aware of our cause.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1) Corporate sponsorship of individuals and event funding to allow ongoing specialized activity based exercise therapy and training for those who have suffered a catastrophic spinal cord injury leaving them paralyzed.
2) Raising awareness about the possibilities of recovery so that medical personnel change their perspective on advising newly injured that they will "never" walk again. There is too much evidence that it is possible naturally with intense training following injury. The success rate is tainted due to the number of injured who never have the chance to recover due to lack of funding for therapies costing in excess of $100 per hour or upwards of $50,000 a year.
3) Sponsorships for Adaptive Sporting activities that stimulate the mind, spirit and body allowing for a more productive outlook on the future.
4) Acknowledgement and encouragement for family Caregivers working around the clock without compensation to keep them from Caregiver burn out by providing hope of recovery for their loved one. The road ahead must have a light at the end of the tunnel to work towards, not just for the injured but for every family member affected by their accident.

1) Raising awareness through events that we host. Awareness creates support.
2) Being active on social media, front and center for public relations opportunities, promoting the stories of our Injured and letting the public know how the resources we provide enable them to have a better quality of life.
3) Soliciting companies for support and networking whenever possible with all the resources available to us.
4) Grants and donations from businesses that offer them.
5) Grass roots marketing by Volunteers who grow a caring community of supporters. One by one.

1) We continue to increase our reach to bring in more supporters at our annual events that are continuing to grow.
2) We continue to increase awareness to our cause through social media marketing.
3) We continue to include our Injured Scholarship Recipients in our events to show our supporters that they are making a difference. There's no greater advertising than to have someone who has benefited from your support to testify to that.
4) We continue to be more involved in events, activities that will help us draw more support.

We have continued to double our Scholarship funding year to year working hard to reduce any overhead by achieving sponsorship dollars to cover costs. We started as a very small group of people on a mission to help others to supporting as many Injured as we can. Our youngest injured is three years old now and our organization was instrumental in affording him the ability to go to therapy after a year of non existent exercise and no progress after injury. He is now excelling in therapy with movement ocurring with great hope of recovery. We know it is possible if Injured and their families have access to the right therapy and funding to cover it.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Disabled Paraplegic and Quadriplegics, Their direct Caregivers and families

  • How is your organization collecting feedback from the people you serve?

    Suggestion box/email, Person to person,

  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    Constantly listening to feedback on fundraising events and the needs of individuals who need assistance. A recent change was the Hardship Policy which assists families who are in dire need of temporary financial assistance during a health or employment emergency.

  • With whom is the organization sharing feedback?

    Our board,

  • How has asking for feedback from the people you serve changed your relationship?

    They are always heard and the changes made benefit all.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Tighten the Drag Foundation Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Tighten the Drag Foundation Inc

Board of directors
as of 01/11/2022
SOURCE: Self-reported by organization
Board co-chair

Amanda Marrero


Board co-chair

Catherine Schmidt

Chad Burney

GTE Financial

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/11/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Disability status
Person without a disability

The organization's co-leader identifies as:

Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.