National Foundation for Syndactyly Research Support and Education

aka NFSUS   |   Mascoutah, IL   |  http://nfsus.org

Mission

The National Foundation for Syndactyly Research, Support, and Education is a charitable, tax-exempt, 501(c)(3) organization organized to fund research, support, and education. The foundation serves as a resource to connect families touched by Syndactyly and other related hand abnormalities with other families, facilities for treatment, and board certified hand physicians who specialize in Syndactyly treatment. We provide research grants to investigate the causes and best practices in treatment as funding permits.

Ruling year info

2014

President

Linwood Nile Gray

Treasure

Tim Boyce

Main address

P.O Box 159 42 W Main Street

Mascoutah, IL 62258 USA

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EIN

46-1582659

NTEE code info

Birth Defects, Genetic Diseases Research (H20)

Nonmonetary Support N.E.C. (E19)

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Syndactyly Research Study Washington University

Dr Chuck Goldfarb and his team are studying the prospective outcomes of patients who used various surgical treatments to determine best practices, techniques, and new innovative treatments.

Population(s) Served

Facebook Closed Group of parents touched by Syndactyly and other Congenital Hand Birth defects who help each other by sharing experiences.

Population(s) Served

Where we work

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Financials

National Foundation for Syndactyly Research Support and Education
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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National Foundation for Syndactyly Research Support and Education

Board of directors
as of 6/28/2017
SOURCE: Self-reported by organization
Board chair

Linwood Nile Gray

President, National Foundation for Syndactyly

Term: Dec 2010 -

Karen Gray Secretary

National Foundation for Syndactyly

Kelly Meyer Family Member at Large

National Foundation for Syndactyly

Linwood Gray President

National Foundation for Syndactylyoo

Brent Berheger Vice-President

National Foundation for Syndactyly

Tim Boyce Treasure

National Foundation for Syndactyly