PLATINUM2023

SOFIAS HOPE

Helping Children with Cancer & their Families

Miami, FL   |  https://www.sofiashope.org

Mission

Through this organization we hope to be able to:

Raise Pediatric Cancer awareness and the fact that children are dying every day waiting for promising new treatments
Fund pediatric cancer research and advances in treatment, especially as it relates to their long-term effects (including prevention, detection and treatment)
Help fund programs that have been proven to enhance the quality of life of children with cancer (ie, equestrian lessons, art lessons , etc.)

Sofia's Hope, Inc. is dedicated to the over 13,000 children diagnosed each year with cancer and their families!

Ruling year info

2014

President

Marta Blanco

Teasurer

Linda Villena

Main address

10106 Sw 126th St

Miami, FL 33176 USA

Show more contact info

EIN

46-1900752

NTEE code info

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2019.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Problem we try to address is the lack of research funding for childhood cancer treatments as well as the lack of support for families facing a childhood diagnosis. It all stems from a lack of awareness of the cause.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Arts & Crafts w/Local Artist

Local artist spends couple of hours several times a month at two local hospitals in their Hem/onc unit teaching patients various art techniques and helping them forget if even for a little while that they're sick.

Population(s) Served
Children and youth
Families

Welcome kits to pediatric cancer are distributed to families with newly diagnosed child at two local hospitals

Population(s) Served
Children and youth

Research grant is awarded annually to help doctors genetically test patients for genes identifed as markers for anthracycline cardio toxicity

Population(s) Served
Children and youth
Families

Sofia’s Hope in conjunction with Zoo Miami is offering families with a child with cancer an Adopt-an-Animal package which includes the following PLUS a FREE Family Membership:

Stuffed Animal (i.e., American Alligator, Okapi, Otter or African Elephant)
Certificate of adoption
Animal fun facts
Animal photo by Ron Magill
Subscription to Zoo Miami’s e-newsletter “Keepin’ it Wild”

Packages will de distributed for free at Nicklaus, Baptist and UM/Holtz Children’s Hospitals through their respective Child Life specialists.

Population(s) Served
Children and youth
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of grants received

This metric is no longer tracked.
Totals By Year
Population(s) Served

Women and girls, Men and boys, People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of free participants on field trips

This metric is no longer tracked.
Totals By Year
Population(s) Served

Infants and toddlers, Children and youth, Adolescents

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Due to COVID had to cancel in-person camps and zoo visits but in 2021 were only able to go back to in-person horse camps at Whispering Manes for equestrian program.

# of Adopt-an-Animal pkgs given to patients and families

This metric is no longer tracked.
Totals By Year
Population(s) Served

Infants and toddlers, Children and youth, Young adults

Related Program

Zoo Miami Adopt an Animal Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Adopts are given to patients in treatment and have been distributed since 2017 but because of COVID distribution halted for a couple of months as access to patients was limited.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Research Grant

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

This was the year we were to host 1st Int'l Pedi Cardio-Onco Conference but due to COVID was postponed. Some of the funds were re-allocated to fund webinar series instead which was at a reduced cost.

Pt & Family Financial Support

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Thru Treasured Moments program distribute gift cards for pts & families to help with gas, transportation, groceries, miscellaneous items (Amazon/Target), Due to COVID support increased by 115%

Number of chronically ill patients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

But total number is 16,595 in our 10 years.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Through Sofia's Hope we hope to be able to:

1. Raise Pediatric Cancer awareness and the fact that children are dying every day waiting for promising new treatments
2. Fund pediatric cancer research and advances in treatment, especially as it relates to their long-term effects (including prevention, detection and treatment)
3. Help fund programs that have been proven to enhance the quality of life of children with cancer (ie, equestrian lessons, art lessons , etc.)

Sofia's Hope, Inc. is dedicated to the over 17,000 children diagnosed each year with cancer and their families!

Develop a customized fundraising strategy based on past reports and current resources for the next fiscal year as well as to create fundraising manual by analyzing donor and volunteer base and pipeline; reviewing current fundraising streams and opportunities to maximize potential which will highlight where to find new prospects and how to approach them; building blueprints for an Annual Giving Program; determining what is a major gift and how to ask for one; stewardship and how to consistently and genuinely thank our donors.

Work with non-profit consultant

Have been able to award over $55K in research grants, funded meal card program at local hospital for oncology families, helped fund summer onc camp in conjunction with local hospital; developed and continue to run ten programs for local patients and their families which have been positively received; provided toys for new playroom at hem/onc clinic at local hospital; etc.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    B/C of HIPPA don't have access to all we serve but we do obtain feedback from CLS & social workers

  • Which of the following feedback practices does your organization routinely carry out?

    B/C of HIPPA don't have access to all we serve but we do obtain feedback from CLS & social workers

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, B/C of HIPPA don't have access to all we serve but we do obtain feedback from CLS & social workers

Financials

SOFIAS HOPE
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

SOFIAS HOPE

Board of directors
as of 07/13/2023
SOURCE: Self-reported by organization
Board chair

Marta Blanco

Linda Villena

Silvia Stazio

Jamie Doherty

R2 Unified Technologies

Sandra Bruno, MD

Sandra Berenguer

Linda Martinez

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 7/13/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Hispanic/Latino/Latina/Latinx
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 07/13/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.