Association for Creatine Deficiencies

Carlsbad, CA   |  www.creatineinfo.org

Mission

To provide patient, family, and public education, to advocate for early intervention through newborn screening, and to promote and fund medical research for treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS).

Ruling year info

2013

Executive Director

Heidi Wallis

Board Chair & Director of Research

Laura Trutoiu

Main address

6965 El Camino Real Suite 105-598

Carlsbad, CA 92009 USA

Show more contact info

EIN

46-2133007

NTEE code info

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2019, 2018 and 2017.
Register now

Communication

Blog

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Community Outreach & Support

This program is designed to help support families as they receive a CCDS diagnosis to receive educational materials and emotional support​ and to help existing families find answers for their everyday questions of how to raise a child with CCDS and what to expect for their future.

Population(s) Served
Families
Caregivers

Where we work

Financials

Association for Creatine Deficiencies
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Association for Creatine Deficiencies

Board of directors
as of 10/24/2022
SOURCE: Self-reported by organization
Board co-chair

Laura Trutoiu

Association for Creatine Deficiencies

Term: 2022 -


Board co-chair

Randy Allen

Association for Creatine Deficiencies

Term: 2022 -

Erin Coller

Association for Creatine Deficiencies

Dan Coller

Association for Creatine Deficiencies

Celeste Graham

Association for Creatine Deficiencies

Kim Tuminello

Association for Creatine Deficiencies

Mikelle Law

Association for Creatine Deficiencies

Jenny Lin

Association for Creatine Deficiencies

Organizational demographics

SOURCE: Self-reported; last updated 10/21/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data