Disease, Disorders, Medical Disciplines

TYLER ROBINSON FOUNDATION INC

#slaycancerwithdragons

aka TRF   |   Las Vegas, NV   |  www.trf.org

Mission

The mission of The Tyler Robinson Foundation, Imagine Dragons' nonprofit, is to strengthen families financially and emotionally as they cope with the tragedy of a pediatric cancer diagnosis by providing grants specifically to offset out-of-pocket life expenses.

Ruling year info

2013

Executive Director

Ms. Kim Gradisher

Main address

823 S. Las Vegas Blvd., Suite 220, Mailbox 7

Las Vegas, NV 89101 USA

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EIN

46-2570835

Cause area (NTEE code) info

Cancer (G30)

Pediatrics (G98)

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

According to a study published in Pediatric Blood & Cancer, nearly one in three families is unable to meet their basic needs while a child is in treatment for cancer. When a child is diagnosed with cancer, parents need to reevaluate childcare, careers, and finances in order to provide the best possible care for their child. They are forced to focus on financial issues that may arise when a parent needs to work less or quit a job to provide care and travel for their child's treatment. Financial pressures, paired with the emotional distress of such a tragic diagnosis affect almost every pediatric cancer family and we are working to reduce these pressures in any way we can.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Triage

Grants up to $19,000 to assist in paying those day to day costs (mortgage, car payments, utilities) which take a second priority to caring for a child with pediatric cancer.

Population(s) Served
Children and youth (0-19 years)
Budget
$2,500,000

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Direction of Success

Increasing

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

TRF’s mission is to assist families whose children have been diagnosed with pediatric cancer through financial assistance and professional financial expertise, as well as emotional and social support. We want to ensure that insecurity in housing, utilities, and medical travel is not part of our families' cancer journeys, and that hope, great memories, and fun experiences will balance the hard times. Parents dealing with a tragic pediatric cancer diagnosis should be able to focus on their families rather than financial issues, and we aim to help them do just this.

TRF provides monetary support in the form of grants for families who are unable to afford essential household expenses while caring for their child. TRF Families receive grants ranging from $12,000 to $36,000 combined with a volunteer financial advisor which helps both the family and TRF allocate each dollar the best possible way. Grants cover everyday expenses that become a challenge when a child has cancer, including mortgage, rent, automobile payments, and medical-related travel. If needed, families can utilize a portion of their grant to assist with tutoring and other educational needs for their child. Our grants include a Financial Relief Grant for families who have suffered financial hardship as a result of a pediatric cancer diagnosis, Travel Grants to cover hotel and travel expenses for treatments, and Family Fun Grants Through our grants, families are able to focus on their families and children rather than the financial pressures that typically ensue when a child is diagnosed with cancer.

The Tyler Robinson Foundation is partnered with 53 children’s hospitals across the United States and several parts of Canada. We also have one partner hospital in each of the following countries: Czech Republic, Germany, Malaysia, Mexico, and Spain. Through these partnerships, families are recommended by their social worker to apply to our program. Our organization is able to provide grants to our family through funding from various sources, including our Team TRF school fundraising program, Ambassador program, and our annual gala.

We know that we are making progress by the comments that we regularly receive from our families. We release quarterly surveys to those receiving grants to keep up to date on their child's treatment and the impact that funding has had on their lives. Bills are paid by TRF on behalf of families with their grant funds to ensure that they do not have to worry about making monthly payments. Furthermore, our volunteer financial advisors help families to manage their finances so that they are in a good financial position both during and after treatment. Here are just a few quotes from families who have received grants from TRF: "Honestly, I don't know where we would be without TRF. It has given us such a positive outlook on a dark time." "TRF has helped us in so many ways, financially and emotionally. Mostly, TRF has allowed us to home to help [our child] during his Chemo treatments, many appointments, and sporadic hospital stays. The organization has helped us to stay focused on improving his mobility and daily life." "TRF has provided a HUGE stress relief in regards to financial stress. When [our child] was diagnosed, we had to take out loans to pay for health care because we didn’t have the money. Our insurance costs have remained the same the last two years and Dylan’s care will continue for a few more years. We are humbled and enormously grateful for what TRF has done for us.

TRF has helped over 1,500 families through our high-level grants program. This year, we will be serving more than 100 families, not including our gift card drive which helps more than 400 families per year. We are proud to say that .85 cents of every dollar goes directly to our families. We plan on continuing to spread the TRF mission and provide grants to even more families at our partner hospitals.

Financials

TYLER ROBINSON FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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This organization has no recorded board members.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Keywords

Pediatric Cancer, Family Assistance, Family Support