Burn Survivors of New England

Hope, Courage, Community, Acceptance

aka BSONE   |   New Bedford, MA   |  www.bsone.org

Mission

Charitable, educational and financial support and mentorship to burn survivors and their families. Empower and Support burn survivors and their families as they build, active and engaged lives. Soliciting, raising and distributing funds for emotional and financial support of burn survivors and their families Providing financial support , including but not limited to, funding participation in Phoenix World Burn Congress. Providing emotional support and information by creating and sustaining support groups for burn survivors and their families. Providing continuing advocacy of laws and policies that help burn survivors and their families in their recovery process. Providing advocacy, awareness and education in burn injury prevention.

Notes from the nonprofit

We minister to an under-served population of burn survivors and their families/communities. Medical technology developments in the last decade has progressed so that the survival rates of very large burns are at around 99%. However the aftermath of these devastating life-long injuries both, emotionally and physically, in our communities are not being addressed. So many times once the reconstructive treatments are over and we are dismissed from burn unit care, the burn survivor is left to discover their way around their new normal lives. There are life-long conditions that need extra examination and care and that is where Burn Survivors of New England's purpose and mission steps in to help. We also serve in many intertwined organizations i.e. hospitals, advocacy organizations, professional organizations. 2020, BSONE has been involved in the Boston-Harvard-Burn Injury Model Systems (NIDILRR) goal of having burn injury classified as a chronic condition. 2021 ABA Educational Forum.

Ruling year info

2014

President

Diana Tenney Lynn Tenney

Main address

114 Butler St

New Bedford, MA 02744 USA

Show more contact info

EIN

46-2664832

NTEE code info

Health Support Services (E60)

Victims' Services (P62)

Fund Raising and/or Fund Distribution (F12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Burn Survivors have a life-long challenge of battling emotional and physical pain no matter what the size of their burn. Burn injury issues are not limited to the burn survivor alone. They affect the entire family and community emotionally, financially and physically. The pandemic has been particularly challenging for burn survivors and the clinicians we work with. We have adapted as best we can by providing technology to fill in the gaps of in-person peer support and continual interactions virtually with our hospitals. We are also involved heavily in obtaining chronic condition status for burn trauma and finding resources to help families navigate our ever-changing conditions locally and nationally.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

BSONE Peer Support Group

Second Tuesday of each month we hold our Group Support Meeting. Burn Survivors, family/friends and clinicians meet to help give emotional support for our community Held at Spaulding Rehabilitation Hospital In Charlestown. Some of our members are not financially able to afford transportation costs to attend the meetings. BSONE is committed to all burn survivors to be able to attend and we have firmed that commitment by budgeting $1000 per year to help those survivors travel to group, decided on a case by case basis

Population(s) Served
People with disabilities
Families

Trained and Certified Peer Support by burn survivors referred by our New England Hospitals to ensure that every burn survivor/family member receives the emotional support that is needed to socially reintegrate back into life after a burn injury.

Population(s) Served
People with disabilities
Families

In 2018 BSONE assisted over 40 burn survivors/family members and clinicians to attend PWBC including travel, registration and hotel. PWBC provides the basic foundation for burn community members to begin their healing and recovery process. and to fellowship with burn survivors and their families from all over the world. To learn recovery techniques both physically and emotionally so that our survivors can reintegrate back into their new normal lives after the devastating effects of burn injury. We also assist survivors from outside of our geographical area arising from special circumstances.

Population(s) Served
People with disabilities
Families

Providing Equine Therapy for Burn Survivors and their family/friends. Sponsored by The Fraser Burn Clinic at MGH/Azeedad Stables, Pembroke, MA

Population(s) Served
People with disabilities
Families

All of our administration and program/event activities are volunteer-based leaving the majority of our fundraising to go directly for the benefit of burn survivors and their families

Population(s) Served
People with disabilities
Families

Where we work

Awards

Pillars of Excellence 2020

BH-BIMS via MGH Brigham

Affiliations & memberships

Advisory Committee 2018

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Individual Peer Support In-Patient and Out-Patient

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The number of attendees increased from an average of 10 burn survivors to an average of 30 per month. This is directly correlated with an increase in the # of inpatient hospital peer support visits.

Number of advocacy contacts with government leaders

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Administration of Programs and Activities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We've become more active reaching out to government officials both for resources for burn survivors and advocacy efforts on burn prevention

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Related Program

Administration of Programs and Activities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Includes, BH-BIMS, BFFBF, other trauma disability organizations, governmental departments, burn prevention organizations, private concern's health and safety organizations, and 5 hospitals.

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

BSONE Peer Support Group

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Includes number of group (burn survivors/family/clinicians) attending virtual support groups, individual virtual peer support, webinars etc.

International Outreach

This metric is no longer tracked.
Totals By Year
Population(s) Served

Economically disadvantaged people, People with disabilities

Related Program

Administration of Programs and Activities

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Association with Face Equality International - all physical differences (trauma/disease) Individual assistance for international burn survivors coming to the US for surgery. Other outreach.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Burn Survivors of New England is comprised of burn survivors who have been through the pain and suffering of a burn trauma; who help and counsel each other as well as working with our medical community to ensure that all burn survivors and their families are socially reintegrated into their new-normal lives and can become productive and helpful members of society. Collaboration and participation with our medical research partners is bringing about dramatic change to ensure that no burn survivor is alone in their recovery and that they have the necessary resources to thrive.

Our number one goal is to make peer support available through in-patient, out-patient, phone support, Our all-volunteer membership provides their own time to ensure that no burn survivor in the New England area and beyond is alone in their recovery.
We utilize help and support from our medical community and many other aligned organizations for advocacy, education, information dissemination and knowledge translation.
We are dependent on individual and corporate donations with all monies benefitting our constituents directly.

We have a dedicated team of leaders representing our burn survivor and medical communities, firefighters association and long-time supporters. We also have wide-spread volunteerism from our burn survivor community

Our organization has progressed from one burn survivor offering to help another beginning in 1983. We now have an average of 25 burn survivors in attendance for our monthly group peer support meetings.
We do in-person and phone peer support with over 200 "visits" per year
We were instrumental in a ground-breaking national research study (BH-BIMS- LIBRE) on social reintegration for burn survivors to be used as a tool for assessing recovery curves.
We have an equine therapy program (Healing Hoofs) where burn survivors can go free of charge whether they want to ride or just feel the serenity of being around those magnificent animals or justPrograms in development (collaboration) are an equine therapy program and an With the help of the Boston Firefighters Burn Foundation we are developing an "Out and About" activity program for adult burn survivors.
Our Leadership has grown from 5 in 2014 to 14 members in 2021. These board members consist of community leaders from the medical, law, firefighter, private and corporate business fields as well as burn survivors.
In 2019 we joined together with an international non-profit organization to promote the fair treatment of people with physical differences like many burn survivors.

Volunteerism has risen by giving burn survivors a chance to build self-esteem and a sense of purpose.
We are fiscally responsible with an all-volunteer staff.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Burn Survivors/Family and Friends/Clinicians

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Community meetings/Town halls, Group Support Meetings,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We adjusted to pandemic conditions immediately in April of 2020 by switching our means of communication and support to virtual. We dispersed information to our constituency on how to use electronic media and did one-on-one consultations with those who needed it. We purchased tablets and i-pads for 4 hospitals in our area to allow virtual visits between peer supporters and in-patients and family/friends.

  • With whom is the organization sharing feedback?

    The people we serve, Our board, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    We have gained access to many burn survivors across the country and have involved them in participating in one-on-one and group support. We were the link that they didn't have before for self-help and mutual burn trauma issues.

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

Burn Survivors of New England
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Burn Survivors of New England

Board of directors
as of 3/15/2021
SOURCE: Self-reported by organization
Board chair

Diana Tenney

Burn Survivor

Term: 2018 - 2022

George Pessotti

George Pessotti and Sons

David Vogel

Elaine Devine

Brigham and Women's Hospital

Kevin Fitzgerald

Jacob Wirth's

Jeffrey Schneider

Spaulding Rehabilitation Hospital

John Schulz III

Massachusettes General Hospital

Lewis Kazis

Boston University Dept of Public Health

Timothy Lynch

Swartz and Lynch Law Offices

Steve Turley

Boston Firefighters Burn Foundation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 3/15/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Native American
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 03/15/2021

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.