The Susie Foundation

Inspired by a patient. Founded by a caregiver. Dedicated to fighting ALS.

aka The Susie Foundation   |   West Hartford, CT   |  www.thesusiefoundation.org

Mission

Our mission is to provide families living with Amyotrophic Lateral Sclerosis with compassionate and enduring support services that help them overcome the adversities of the disease and access richer, fuller, and more meaningful lives. We envision a future where all families living with Amyotrophic Lateral Sclerosis are able to readily access the support they need in order to effectively navigate the various physical, medical, psychological, financial, and emotional complexities that accompany diagnosis.

Ruling year info

2015

Founder & Executive Director

Ryan Matthews

Main address

15 Carleton Rd

West Hartford, CT 06107 USA

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EIN

46-2687969

NTEE code info

Health - General and Rehabilitative N.E.C. (E99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

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Flex Grant Program

The Flex Grant Program offers financial support through reimbursements to help cover the costs of respite care, adaptive devices not covered by medical insurance, certain medical expenses and equipment, as well as home modifications.

Eligible applicants include all residents of Connecticut, Massachsetts, and Rhode Island who are homebound and have a definitive diagnosis of Amyotrophic Lateral Sclerosis (ALS). Grants will be awarded biannually and based, in part, on the availability of funds. First time applicants, as well as those exhibiting dire and/or debilitating personal, psychological, familial, medical, or financial circumstances may be given priority.

Population(s) Served
People with disabilities

Where we work

Financials

The Susie Foundation
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Operations

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The Susie Foundation

Board of directors
as of 2/26/2021
SOURCE: Self-reported by organization
Board chair

Aaron Smith

Aetna