Open Genomes Foundation

Tucson, AZ   |  www.open-genomes.org

Mission

Our Mission:

* Combine the elements of Open Science and crowdsourcing to enhance basic research, improve public health, and save lives.

* Make genomic sequences and research results freely available to the general public throughout the world.

* Conduct research using genomic sequences obtained through a variety of techniques and technologies to get sequences that are as accurate as possible and more completely aligned and phased, derive more accurate phylogenies and ancestral sequences, and make the results public and freely available to all.

* Provide a means for others to sponsor whole genome sequencing for people from underserved groups, and advocate for the rights of people with genetic disabilities.

* Develop phylogenies of all human non-recombining haploid segments, derive the Reconstructed Ancestral Human Reference Sequence, create population-specific linkage maps, and use the phylogenies to help with population genetics, medical and forensic research.

* Use open genomics to help demonstrate the fundamental unity of all mankind, discover human origins, history, and ancestry using archaeogenetics.

* Refute scientific inaccuracies that use genomic data to support genetic determinism, unscientific myths that divide people, and help oppose the commercial exploitation of closed genomic results for private profit.

Open Genomes is a member of the Global Alliance for Genomics and Health.

http://www.open-genomes.org/tax-deductible_mission.html

Ruling year info

2015

President

Mr. Theodore E. Kandell

Secretary

Nancy H Grossman

Main address

414 E. Glenn St. STE 1

Tucson, AZ 85705 USA

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EIN

46-2725903

NTEE code info

Biological, Life Science Research includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.) (U50)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Open Phylogeny and Ancestry Project

This is a study to use whole genome sequencing to establish human ancestral reference sequences and construct a more accurate molecular clock for dating branches and building phylogenetic trees that will be openly available for public use. We want to ensure these phylogenetic trees are available to help refine sequencing test results and ensure their accuracy, and for use in population genetics, ancestry, forensics, medical research and any other studies to be used for the advancement of science and public good, without being commercialized in a proprietary way or copyrighted and subject to licensing or any other type of user fees. For further details, please see an explanation of this study in the enclosed Open Genomes Foundation Informed Consent Protocol and the summary of the Core Principles of Bioethics.

Participation in this research project is completely voluntary.

Population(s) Served

Where we work

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Financials

Open Genomes Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Open Genomes Foundation

Board of directors
as of 06/06/2016
SOURCE: Self-reported by organization
Board co-chair

THEODORE KANDELL

OPEN GENOMES FOUNDATION, Inc

Term: 2012 -


Board co-chair

NANCY GROSSMAN

OPEN GENOMES FOUNDATION, Inc

Term: 2012 -

BRIAN D HAMMAN

OPEN GENOMES FOUNDATION, Inc

NATHAN J BOWEN

OPEN GENOMES FOUNDATION, Inc

ASA’AH NKOHKWO

OPEN GENOMES FOUNDATION, Inc

KAMEL EL-GAZZAH

OPEN GENOMES FOUNDATION, Inc.

SCOTT L WHITMAN

OPEN GENOMES FOUNDATION, Inc

KEVIN M FRAD

OPEN GENOMES FOUNDATION, Inc