PLATINUM2023

Pacific Pediatric Neuro-Oncology Consortium Foundati

Lose no child to brain cancer

aka PNOC Foundation   |   SAN RAFAEL, CA   |  https://www.pnocfoundation.org

Mission

Our mission is to lose no child to brain cancer. We raise resources and influence to support the PNOC Consortium as they provide access to personalized treatment strategies and ultimately improve overall outcomes for children with brain tumors.

Ruling year info

2014

President / Director

Colin Bruce Campbell

Secretary

Allyn Campbell

Main address

1005 Northgate Drive #224

SAN RAFAEL, CA 94903 USA

Show more contact info

EIN

46-3152273

NTEE code info

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Pediatric brain cancer is the most deadly childhood cancer. For a lot of pediatric brain tumor diagnoses, there is no standard of care. Without the development of clinical trials a lot of pediatric brain cancer patients don’t have access to any potential therapies. Current treatments when available often severely reduce the quality of life for those fighting and surviving pediatric brain cancer. With these diagnoses often having a grave outcome, it is so important for families that they at least are given an opportunity. Clinical trials investigate promising new treatment strategies. By raising critical research funds for the PNOC Consortium - an innovative global research collaboration of the world's leading pediatric brain tumor experts, we aim to improve the quality of life for those fighting and surviving pediatric brain cancer, and by pioneering breakthrough treatments eventually reach a future where to lose no child to brain cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Fundraising to support pediatric brain cancer research and clinical trials

PNOC Foundation supports the work of the Pacific Pediatric Euro-Oncology Consortium (PNOC), an international consortium with study sites within the United States, Canada, Europe and Australia. PNOC are dedicated to bringing new therapies to children and young adults with brain tumors. PNOC's goal is to improve outcomes by translating the latest findings in brain tumor biology into better treatments for these children.

Patients with brain tumors that cannot be treated with standard therapy, or that have recurred following standard therapy, are often eligible for clinical trials. Clinical trials provide access to promising new treatments that may not be available outside specialized centers.

Population(s) Served
Children and youth
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Fundraising to support pediatric brain cancer research and clinical trials

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

7 New clinical trials started in 2022 at 29 locations

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Fundraising to support pediatric brain cancer research and clinical trials

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To find cures and improved therapies for children fighting brain cancer by funding and supporting the research and clinical trials of the PNOC Scientific Consortium www.pnoc.us

The Foundation will Focus on 4 Key Pillars;

1. Fundraising Events - Including the Annual Gratitude Gala

2. Building an international patient family community - through the development and access to unique and valuable information and content

3. Strategic Collaborations and Partnerships - With Corporations, Foundations and other Non Profits

4. Best In Class Donor Relations, Cultivation and Development

To date the organization has achieved remarkable results through the efforts of a largely volunteer board and workforce together with a mosaic of high quality outside resources. In 2022 the Foundation recruited and appointed a Director of Development to drive the Fundraising goals. In 2023 we plan for the appointment of an Executive Director to ensure execution of the newly adopted strategic plan over the next 3 - 5 years. Administrative and support staff will be added as required with the goal of administrative and fundraising expenses not exceeding 25% of total contributions.

In 2021 the foundation grew contribution income by 195% and exceeding budgeted income by 13% . Total Expenses were just 15.5% of contribution income down from 26.6% and 32.2% in the two prior years.

This enable a 99% in grants to support programming over the previous year.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Pacific Pediatric Neuro-Oncology Consortium Foundati
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Pacific Pediatric Neuro-Oncology Consortium Foundati

Board of directors
as of 02/27/2023
SOURCE: Self-reported by organization
Board chair

Bruce Campbell

Vionic

Amy Cunha

Big Picture Pr

Darren Tucker

Tendenza

Linda Hartig

Heather Pilar Cunha Davis

Highline Sciences

Allyn S Campbell

Richie Goldman

Barbara Karski

Google

Angela Caltagirone

Chris Gallagher

Dr. Sung Poblete

FARE

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 2/15/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

The organization's co-leader identifies as:

Race & ethnicity
Asian/Asian American
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data