Pacific Pediatric Neuro-Oncology Consortium Foundati

Lose no child to brain cancer

aka PNOC Foundation   |   SAN RAFAEL, CA   |  https://www.pnocfoundation.org

Mission

Our mission is to lose no child to brain cancer. We raise resources and influence to support the PNOC Consortium as they provide access to personalized treatment strategies and ultimately improve overall outcomes for children with brain tumors.

Ruling year info

2014

President / Director

Colin Bruce Campbell

Secretary

Allyn Campbell

Main address

1005 Northgate Drive #224

SAN RAFAEL, CA 94903 USA

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EIN

46-3152273

NTEE code info

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Fundraising to support pediatric brain cancer research and clinical trials

PNOC Foundation supports the work of the Pacific Pediatric Euro-Oncology Consortium (PNOC), an international consortium with study sites within the United States, Canada, Europe and Australia. PNOC are dedicated to bringing new therapies to children and young adults with brain tumors. PNOC's goal is to improve outcomes by translating the latest findings in brain tumor biology into better treatments for these children.

Patients with brain tumors that cannot be treated with standard therapy, or that have recurred following standard therapy, are often eligible for clinical trials. Clinical trials provide access to promising new treatments that may not be available outside specialized centers.

Population(s) Served
Children and youth
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Fundraising to support pediatric brain cancer research and clinical trials

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To find cures and improved therapies for children fighting brain cancer by funding and supporting the research and clinical trials of the PNOC Scientific Consortium www.pnoc.us

The Foundation will Focus on 4 Key Pillars;

1. Fundraising Events - Including the Annual Gratitude Gala

2. Building an international patient family community - through the development and access to unique and valuable information and content

3. Strategic Collaborations and Partnerships - With Corporations, Foundations and other Non Profits

4. Best In Class Donor Relations, Cultivation and Development

To date the organization has achieved remarkable results through the efforts of a largely volunteer board and workforce together with a mosaic of high quality outside resources. In 2022 the Foundation will recruit and appoint a Director of Development to drive the Fundraising goals followed by the appointment of an Executive Director to ensure execution of the newly adopted strategic plan over the next 3 - 5 years. Administrative and support staff will be added as required with the goal of administrative and fundraising expenses not exceeding 25% of total contributions.

In 2021 the foundation grew contribution income by 195% and exceeding budgeted income by 13% . Total Expenses were just 15.5% of contribution income down from 26.6% and 32.2% in the two prior years.

This enable a 99% in grants to support programming over the previous year.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
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Financials

Pacific Pediatric Neuro-Oncology Consortium Foundati
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Pacific Pediatric Neuro-Oncology Consortium Foundati

Board of directors
as of 4/18/2022
SOURCE: Self-reported by organization
Board chair

Bruce Campbell

Vionic

Amy Cunha

Big Picture Pr

Darren Tucker

Tendenza

Linda Hartig

Heather Pilar Cunha Davis

Highline Sciences

Allyn Campbell

Richie Goldman

Barbara Karski

Angela Caltagirone

Vionic

Chris Gallagher

Organizational demographics

SOURCE: Self-reported; last updated 2/23/2022,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

The organization's co-leader identifies as:

Race & ethnicity
Asian American/Pacific Islanders/Asian
Gender identity
Female

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

No data