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The Healing NET Foundation

Nashville, TN   |  https://www.thehealingnet.org/

Mission

The Healing NET Foundation's mission is to optimize the care of those with neuroendocrine cancer through the education of and collaboration among physicians, health care providers, patients and caregivers.

Ruling year info

2014

Executive Director

Mia S. Tepper MBA

Main address

415 Spence Lane

Nashville, TN 37210 USA

Show more contact info

EIN

46-3196096

NTEE code info

Fund Raising and/or Fund Distribution (W12)

Diseases of Specific Organs (G40)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

NET Primer for Healthcare Professionals

This booklet was created in Fall 2015 and updated in April 2019. It is an overview of the basics of neuroendocrine tumors developed specifically for health care professionals in the U. S.  It is written in peer to peer language, authored by neuroendocrine cancer physician experts and a select group of neuroendocrine cancer patient advocates to help practitioners spot, correctly diagnose, and treat neuroendocrine cancer.  The material is offered free of charge and shipped free of charge. You can request copies or download a PDF at https://www.thehealingnet.org/neuroendocrine-tumors-a-primer.

Population(s) Served
Adults
People with diseases and illnesses

The Healing NET International Summit brings together providers and patient advocates by invitation to debate and collaborate to solve gaps in care for those with neuroendocrine cancer. It has become clear that collaboration and a "meeting of minds" can change decisions that physicians make in their everyday practice of care. This is an important takeaway as Healing NET Foundation seeks to better educate and provide resources to the general medical community and patients about NETs. Since 2016, the Summit has served as a "think tank" to drive future programs.

Population(s) Served
Adults
People with diseases and illnesses

Healing NET maintains a website with downloadable resources and other information for healthcare providers and patients. Healing NET also regularly sends a newsletter to subscribers. See https://www.thehealingnet.org/newsletter.

Population(s) Served
Adults
People with disabilities

Navigating the NET Patient Journey was written by a group of support group leaders, patients, and caregivers, who are on the NET journey themselves, so that fellow patients and caregivers can benefit from their observations of the roads they have traveled. They also invited some experts who are dedicated to the care of people with neuroendocrine cancer to share their perspective. Find more information at https://www.thehealingnet.org/navigating-nets.

Population(s) Served

Healing NET worked with medical experts, patients, and caregivers to write High-Grade Neuroendocrine Cancers: A Guide for Patients and Caregivers. The publication is for people who are diagnosed with Neuroendocrine Carcinoma (NEC) or Grade 3 Neuroendocrine Tumors (G3 NETs) and specifically addresses ways to meet the challenge of a high-grade neuroendocrine cancer diagnosis.

Population(s) Served
Adults
People with disabilities
Adults
People with disabilities

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals, to improve resources

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

The Healing NET Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Healing NET Foundation

Board of directors
as of 04/07/2023
SOURCE: Self-reported by organization
Board chair

Mr. Roger Jones

Companion Associates

Term: 2022 - 2023

Cynthia (Cindy) Lovelace

Retired/Co-Founder, Healing NET

Eric Liu

Surgeon, Rocky Mtn Cancer Centers/Founding Medical Director, Healing NET

Paul Jett

Ballad Health

John Marshall

Retired, HCA/Adjunct Faculty, Belmont University

Karen Metz

Healthcare Executive/Consultant

Lorne Polger

Real Estate Private Equity/Pathfinder Funds

Pamela Gaytan

Executive Director, Clinical Nurse Educators and Patient Advocacy/TerSera

Ken Ertel

Ohio Neuroendocrine Tumor Society/CH Steel Solutions, Inc.

Heloisa Soares

Medical Oncologist/Huntsman Cancer Institute, University of Utah

Mia S. Tepper

Interim Executive Director/Healing NET

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 4/7/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Gender identity
Female, Not transgender

Race & ethnicity

No data

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data