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The Healing NET Foundation

Nashville, TN   |  https://www.thehealingnet.org/

Mission

The Healing NET Foundation's mission is to optimize the care of those with neuroendocrine cancer through the education of and collaboration among physicians, health care providers, patients and caregivers.

Ruling year info

2014

Executive Director

Ms. Tracy Rode

Main address

415 Spence Lane

Nashville, TN 37210 USA

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EIN

46-3196096

NTEE code info

Fund Raising and/or Fund Distribution (W12)

Diseases of Specific Organs (G40)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

NET Primer for Healthcare Professionals

This booklet was created in Fall 2015 and updated in April 2019. It is the only "easy to read handbook" developed specifically for health care professionals on the basics of neuroendocrine tumors in the U. S.  It is written in peer to peer language, authored by neuroendocrine cancer physician experts and a select group of neuroendocrine cancer patient advocates to "speak" to general practitioners so they can spot, correctly diagnose, and treat neuroendocrine cancer.  The material is offered free of charge and shipped free of charge. You can request copies or download a PDF at https://www.thehealingnet.org/neuroendocrine-tumors-a-primer.

Population(s) Served
Adults
People with diseases and illnesses

The Healing NET International Summit brings together providers and patient advocates by invitation to debate and collaborate to solve gaps in care for those with neuroendocrine cancer. It has become clear that collaboration and a "meeting of minds" can change decisions that physicians make in their everyday practice of care. This is an important takeaway as Healing NET Foundation seeks to better educate and provide resources to the general medical community about NETs. Since 2016, the Summit has served as a "think tank" to drive future programs.

Population(s) Served
Adults
People with diseases and illnesses

Healing NET maintains a website with downloadable resources and other information for healthcare providers and patients. Healing NET also regularly sends a newsletter to subscribers. See https://www.thehealingnet.org/newsletter.

Population(s) Served
Adults
People with disabilities

Navigating the NET Patient Journey was written by a group of support group leaders, patients, and caregivers, who are on the NET journey themselves, so that fellow patients and caregivers can benefit from their observations of the roads they have traveled. They also invited some experts who are dedicated to the care of people with neuroendocrine cancer to share their perspective. Find more information at https://www.thehealingnet.org/navigating-nets.

Population(s) Served

Healing NET worked with medical experts, patients, and caregivers to write High-Grade Neuroendocrine Cancers: A Guide for Patients and Caregivers. The publication is for people who are diagnosed with Neuroendocrine Carcinoma (NEC) or Grade 3 Neuroendocrine Tumors (G3 NETs) and specifically addresses ways to meet the challenge of a high-grade neuroendocrine cancer diagnosis.

Population(s) Served
Adults
People with disabilities
Adults
People with disabilities

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    Patients with neuroendocrine cancer and their loved ones/caregivers. Physicians and other healthcare providers interested in neuroendocrine cancer.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To inform the development of new programs/projects, To strengthen relationships with the people we serve, to improve resources, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We created a new resource that was reviewed by a constituent focus group. The material was significantly improved based on their feedback.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our funders, Our volunteers,

  • How has asking for feedback from the people you serve changed your relationship?

    Our organization relies heavily on the expertise and experience of medical experts, patient leaders, advisory groups and volunteers. We regularly solicit their guidance as we implement programs or create new resources. We create space for their thinking and provide platforms to share it.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

The Healing NET Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Healing NET Foundation

Board of directors
as of 10/05/2022
SOURCE: Self-reported by organization
Board chair

Mr. Paul Jett, MD

Ballad Health

Term: 2021 - 2022

Cynthia (Cindy) Lovelace

President/Executive Dir Healing NET Foundation

Eric Liu

Surgeon, Rocky Mtn Cancer Centers/Chief Medical Advisor, Healing NET

Tom Annastas

Retired-BMI

Gary Murfin

Retired-Macy's

Ernie Anastasio

Retired, GMAC and Sylvan Ventures

Thomas O'Dorisio

University of Iowa, Endocrinology

Joel Chechik

FEMSelect

Michelle Kim

Mt. Sinai, Center for Carcinoid and Neuroendocrine Tumors

Eve Dryer

Retrophin

Paul Jett

Ballad Health

Roger Jones

Companion Associates, Inc.

John Marshall

Retired, HCA/Adjunct Faculty, Belmont University

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/20/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

No data