ROCK AGAINST MULTIPLE SCLEROSIS FOUNDATION
Helping People Now
Programs and results
What we aim to solve
The main issue is that the Big Wheels for MS have no real assistance for people suffering now. They make millions off of runs, walks, bike races and a very small 10% percent goes to "The Cure." The Big Wheels are mostly pharmaceutical funded. As a person with Primary Progressive MS and a home owner, there was zero help with the exception of a tiny help for a small electric bill and if you need a ramp. This is why we became a non-profit. People suffer now - they are losing their homes, jobs, too many medical bills and getting any form of physical relief that is not covered by insurance is impossible. MS has the highest depression rate over non-MSers. MSers are 50% more likely to attempt suicide and 30% complete the suicide. Feeling like a burden, not knowing how you are going to pay your rent, mortgage, medical or get food. You basically loose your life as you know it. We want to change that feeling of burden into fulfilling, productive lives!
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Holistic Care
Estimates are that at least half the people with multiple sclerosis (MS) use supplements, herbs, and other natural remedies to help manage their condition. If you’re considering natural remedies, especially herbs, talk with your doctor first. A handful of herbs may benefit MS, but hundreds more could be harmful or interfere with medication. If your doctor gives you the green light, consider adding these alternative therapies to your MS treatment plan.
Daily Care
Because fatigue is one of the most common symptoms of MS, everyday activities can become more difficult. Other symptoms include difficulty walking and making small movements, trouble with memory, weakness in arms and legs, and depression. Any or all of those can make it hard to keep up with ordinary routines such as getting to medical appointments, running errands, visiting friends, grocery shopping, simple housekeeping, personal grooming, and preparing meals.
Emergency Funds
-One-time emergency funds to help with basic needs, such as rent, mortgage, phone bill, utilities, etc
-Limited funds for repairs, equipment, or modifications to your home or vehicle
-Items for loan and equipment assistance
-Respite assistance and caregiver support
-Transportation assistance
-Employment assistance
-Referrals to local vendors
-Counseling and support
-Education programs
-Scholarships
-Etc.
Drum Circle
Our Drum Circle Director Stephen Perkins (Jane’s Addiction) leads each group in therapeutic and hands-on percussion and hand-drumming.
Where we work
External reviews
Photos
Our results
How does this organization measure their results? It's a hard question but an important one.
Total number of volunteer hours contributed to the organization
This metric is no longer tracked.Totals By Year
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
Covid hit us hard
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Average online donation
This metric is no longer tracked.Totals By Year
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Number of Facebook followers
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of people on the organization's email list
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of volunteer health care providers
This metric is no longer tracked.Totals By Year
Related Program
Holistic Care
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of high-profile speakers or participants participating
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of advocate or trained spokesperson citations in the media
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of community events or trainings held and attendance
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Number of print, radio, or online ads developed
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of stories successfully placed in the media
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of volunteers
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of participants reporting greater issue awareness
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of testimonies offered
This metric is no longer tracked.Totals By Year
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
ROCK AGAINST MS FOUNDATION is currently raising funds for a brick and mortar facility we will call THE ROCK HOUSE, which is in the planning stages. The ROCK HOUSE will offer free support groups, integrative therapies, creative and educational workshops to all those whose lives have been affected by MS designed to heal the mind, body and spirit of all those whose lives have been affected by MS. These facilities will be built in major cities such as Los Angeles, Seattle, NYC and so on, allowing people to reach them via public transport easily from surrounding areas ..... Additionally, we will build outreach programs to reach people in more outskirt and rural areas. This is where we build relationships with clinicians that can go to the homes to provide services from a three (3) program resource system, which will provide daily care, quality of life needs and emergency funding, while assisting people with multiple sclerosis (MS) to live independent and full lives.
Some of our programs at the ROCK HOUSE
- WATER THERAPY/EXERCISE
- GROUP THERAPY
- HOLISTIC CARE - Yoga, reiki, acupuncture, Pilates, reflexology
- DAILY CARE
- COOKING CLASSES
- HAIR CARE
We will also address and educate the public of the issues of having MS
- Depression/Suicide
- Rebuilding your life
- How to help your loved one
What are the organization's key strategies for making this happen?
Currently we are researching out facilities and how much space is needed. This, plus researching the interior needs, will give us the costs for the first ROCK HOUSE. Once this is finished, we can then project how much money must be raised from our regular fundraisers to grants, and how this will be dispersed. This will create a time line of the build to the grand opening.
What are the organization's capabilities for doing this?
Our Board members are savvy, however we will induct, what we will call Team Leaders, who will be in charge of very specific aspects according to skill and knowledge level. With these amazing people and their abilities we can create a fine tuned machine that can address the needs in different areas at a weekly meeting.
What have they accomplished so far and what's next?
We are new and have been testing waters of the needs, how to have successful fundraisers, how to get the public involved and on board with out Mission. We have been able to assist with a few MSers food and ramps, but this is not enough~ We have outlined our goals and are researching costs, legal needs and other aspects to make this all a reality.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
-
How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
-
Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.)
-
What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
ROCK AGAINST MULTIPLE SCLEROSIS FOUNDATION
Board of directorsas of 01/24/2023
Nancy Sayle
VQPR, Rock Against MS, Fur & Feather Animal Sanctuary
Term: 2012 -
Nathan Dolliver
Nancy B. Sayle
Rock Against MS
Nathan Dolliver
Rock Against MS
Jodie Wilson
Rock Against MS
Jennifer Pryor
Rock Against MS
Stephen Perkins
Rock Against MS
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
We do not display disability information for organizations with fewer than 15 staff.
Equity strategies
Last updated: 09/10/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.