BRONZE2023

ROCK AGAINST MULTIPLE SCLEROSIS FOUNDATION

Helping People Now

aka Rock Against MS   |   Chatsworth, CA   |  www.rockagainstms.org

Mission

ROCK AGAINST MS FOUNDATION is currently raising funds for a brick and mortar facility we will call THE ROCK HOUSE, which is in the planning stages. The ROCK HOUSE will offer free support groups, integrative therapies, creative and educational workshops to all those whose lives have been affected by MS designed to heal the mind, body and spirit of all those whose lives have been affected by MS #HelpingPeopleNOW Additionally, once we have the resource centers up we, will work to fund assistance programs. We will provide services from a three (3) program resource system, which will provide daily care, quality of life needs and emergency funding, while assisting people with multiple sclerosis (MS) to live independent and full lives. - WATER THERAPY/EXERCISE - GROUP THERAPY - HOLISTIC CAR

Ruling year info

2016

Founder & CEO

Nancy B. Sayle

Main address

9206 Franklin St

Chatsworth, CA 91311 USA

Show more contact info

EIN

46-3290801

NTEE code info

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The main issue is that the Big Wheels for MS have no real assistance for people suffering now. They make millions off of runs, walks, bike races and a very small 10% percent goes to "The Cure." The Big Wheels are mostly pharmaceutical funded. As a person with Primary Progressive MS and a home owner, there was zero help with the exception of a tiny help for a small electric bill and if you need a ramp. This is why we became a non-profit. People suffer now - they are losing their homes, jobs, too many medical bills and getting any form of physical relief that is not covered by insurance is impossible. MS has the highest depression rate over non-MSers. MSers are 50% more likely to attempt suicide and 30% complete the suicide. Feeling like a burden, not knowing how you are going to pay your rent, mortgage, medical or get food. You basically loose your life as you know it. We want to change that feeling of burden into fulfilling, productive lives!

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Holistic Care

Estimates are that at least half the people with multiple sclerosis (MS) use supplements, herbs, and other natural remedies to help manage their condition. If you’re considering natural remedies, especially herbs, talk with your doctor first. A handful of herbs may benefit MS, but hundreds more could be harmful or interfere with medication. If your doctor gives you the green light, consider adding these alternative therapies to your MS treatment plan.

Population(s) Served
People with physical disabilities

Because fatigue is one of the most common symptoms of MS, everyday activities can become more difficult. Other symptoms include difficulty walking and making small movements, trouble with memory, weakness in arms and legs, and depression. Any or all of those can make it hard to keep up with ordinary routines such as getting to medical appointments, running errands, visiting friends, grocery shopping, simple housekeeping, personal grooming, and preparing meals.

Population(s) Served
People with physical disabilities

-One-time emergency funds to help with basic needs, such as rent, mortgage, phone bill, utilities, etc
-Limited funds for repairs, equipment, or modifications to your home or vehicle
-Items for loan and equipment assistance
-Respite assistance and caregiver support
-Transportation assistance
-Employment assistance
-Referrals to local vendors
-Counseling and support
-Education programs
-Scholarships
-Etc.

Population(s) Served
People with physical disabilities

Our Drum Circle Director Stephen Perkins (Jane’s Addiction) leads each group in therapeutic and hands-on percussion and hand-drumming.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of volunteer hours contributed to the organization

This metric is no longer tracked.
Totals By Year
Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

Covid hit us hard

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Average online donation

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of volunteer health care providers

This metric is no longer tracked.
Totals By Year
Related Program

Holistic Care

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of high-profile speakers or participants participating

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of advocate or trained spokesperson citations in the media

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of community events or trainings held and attendance

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of print, radio, or online ads developed

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of stories successfully placed in the media

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of participants reporting greater issue awareness

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of testimonies offered

This metric is no longer tracked.
Totals By Year
Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

ROCK AGAINST MS FOUNDATION is currently raising funds for a brick and mortar facility we will call THE ROCK HOUSE, which is in the planning stages. The ROCK HOUSE will offer free support groups, integrative therapies, creative and educational workshops to all those whose lives have been affected by MS designed to heal the mind, body and spirit of all those whose lives have been affected by MS. These facilities will be built in major cities such as Los Angeles, Seattle, NYC and so on, allowing people to reach them via public transport easily from surrounding areas ..... Additionally, we will build outreach programs to reach people in more outskirt and rural areas. This is where we build relationships with clinicians that can go to the homes to provide services from a three (3) program resource system, which will provide daily care, quality of life needs and emergency funding, while assisting people with multiple sclerosis (MS) to live independent and full lives.

Some of our programs at the ROCK HOUSE
- WATER THERAPY/EXERCISE
- GROUP THERAPY
- HOLISTIC CARE - Yoga, reiki, acupuncture, Pilates, reflexology
- DAILY CARE
- COOKING CLASSES
- HAIR CARE

We will also address and educate the public of the issues of having MS
- Depression/Suicide
- Rebuilding your life
- How to help your loved one

Currently we are researching out facilities and how much space is needed. This, plus researching the interior needs, will give us the costs for the first ROCK HOUSE. Once this is finished, we can then project how much money must be raised from our regular fundraisers to grants, and how this will be dispersed. This will create a time line of the build to the grand opening.

Our Board members are savvy, however we will induct, what we will call Team Leaders, who will be in charge of very specific aspects according to skill and knowledge level. With these amazing people and their abilities we can create a fine tuned machine that can address the needs in different areas at a weekly meeting.

We are new and have been testing waters of the needs, how to have successful fundraisers, how to get the public involved and on board with out Mission. We have been able to assist with a few MSers food and ramps, but this is not enough~ We have outlined our goals and are researching costs, legal needs and other aspects to make this all a reality.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.)

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

ROCK AGAINST MULTIPLE SCLEROSIS FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ROCK AGAINST MULTIPLE SCLEROSIS FOUNDATION

Board of directors
as of 01/24/2023
SOURCE: Self-reported by organization
Board co-chair

Nancy Sayle

VQPR, Rock Against MS, Fur & Feather Animal Sanctuary

Term: 2012 -


Board co-chair

Nathan Dolliver

Nancy B. Sayle

Rock Against MS

Nathan Dolliver

Rock Against MS

Jodie Wilson

Rock Against MS

Jennifer Pryor

Rock Against MS

Stephen Perkins

Rock Against MS

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 9/10/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Native American/American Indian/Alaska Native/Indigenous
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 09/10/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.