FASD Network of Southern California

Fetal Alcohol Spectrum Disorders. We get it.

Manhattan Beach, CA   |  https://fasdsocalnetwork.org

Mission

To empower, through information, advocacy, and service, all persons in Southern California who are affected by prenatal alcohol exposure, in order to enhance their quality of life; and to support those who care for or serve them.

Ruling year info

2014

President

Valerie Lipow

Main address

P.O. Box 595

Manhattan Beach, CA 90267 USA

Show more contact info

EIN

46-3385695

NTEE code info

Services to Promote the Independence of Specific Populations (P80)

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Fetal Alcohol Spectrum Disorders (FASD) is the leading preventable cause of developmental disability in the world. It is estimated to affect 5 percent of persons in the United States, or one in 20 individuals. This prevalence is greater than the combined incidence of autism, cerebral palsy and epilepsy combined. Effects range from intellectual impairment to over 400 physical and behavioral conditions. As a lifelong condition, FASD is associated with poor academic achievement, psychological disorders, homelessness, and early death. Our organization increases awareness of the effects of FASD on Californians, reduce the stigma that surrounds the condition, and provides information and support for helping people affected by FASD and their families to be as productive as possible.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Information and Support Group Meetings

The FASD Network of Southern California sponsors monthly meetings for persons interested in challenges faced by persons with FASD

Population(s) Served

The FASD Network of Southern California sponsors training events to inform professional and lay audiences about, and present strategies for addressing challenges faced by persons living with FASD

Population(s) Served

The FASD Network of Southern California provides information and support to Facebook users in the region who want to discuss FASD

Population(s) Served

The FASD Network of Southern California provides advocacy designed to improve access to educational, community, legal, housing, and other services for vulnerable people with FASD and their families

Population(s) Served

The network uses Facebook, Twitter, LinkedIn, and Instagram to cast as wide a net as possible to increase awareness about FASD, and about the FASD Network of Southern California in our region.

Population(s) Served

Use of Facebook, Twitter, Instagram, and LinkedIn to communicate on a daily and weekly basis with the lay and professional communities served by the FASD Network of Southern California.

Population(s) Served

Use of social media to advise, inform, and training our service communities.

Population(s) Served

Developing training remotely for individuals and organizations.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of training events conducted

This metric is no longer tracked.
Totals By Year
Related Program

Training

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Each year the FASD Network of Southern California sponsors and cosponsors training events to groups and organizations.

Number of members from priority population attending training

This metric is no longer tracked.
Totals By Year
Related Program

Training

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of donations made by board members

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Context Notes

100% participation by all 9 Board members. Several made multiple donations in the year

Number of free participants in conferences

This metric is no longer tracked.
Totals By Year
Related Program

Training

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Network grants scholarships to attend its training workshops to financially needy participants

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. To improve knowledge among Southern Californians that alcohol use during pregnancy can cause FASD; that FASD can be prevented; and that FASD prevention is a shared responsibility.
2. To Improve timely, affordable, coordinated, and life-long access to individualized supports and services, with particular consideration given to rural, at-risk, and under-served populations, for adults, children and youth in Southern California who have or who are suspected of having FASD, in the following areas: medical, educational, occupational, housing, safety, social, and related fields.
3. To provide training programs to service providers and families/caregivers in Southern California of people with FASD in applicable subjects, with guidelines and strategies that are based on research and leading practices.
4. To support the efforts of Southern Californians who want to influence the planning and delivery of state government programs and services associated with FASD.

Promote a coordinated approach to FASD prevention activities.

Encourage regional entities and communities to provide early intervention and harm reduction programming to at-risk populations.

Continue to inform Californians regarding the complex nature of FASD.

Ensure that all women of child-bearing age, their male sexual partners, and the parents/guardians of under-age women, have access to and are educated about the causes and effects of FASD.

Coordinate FASD strategies with agencies and community resources that focus on reducing unplanned and/or at-risk pregnancies.

Facilitate enhancement and integration of coordinated services for FASD-affected adults, children, and teens, as well as for their caregivers.

Ensure access to services for individuals affected by FASD, with a particular focus on youth-in-transition to adulthood; and for caregivers of FASD-affected individuals.

Collaborate with stakeholders to support and facilitate sharing of research findings.

The FASD Network of Southern California is made up of educated, passionate, and well-connected Volunteers who employ informational resources and collaborative efforts that support the goals and strategies of the Network

We measure progress by the number of outreach, support, training and advocacy-related services scheduled and delivered.

Financials

FASD Network of Southern California
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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FASD Network of Southern California

Board of directors
as of 9/10/2020
SOURCE: Self-reported by organization
Board chair

Valerie Lipow

Annette Kunzman

FASD Network of Southern California

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes