FASD Network of Southern California
Fetal Alcohol Spectrum Disorders. We get it.
Mission
To empower, through information, advocacy, and service, all persons in Southern California who are affected by prenatal alcohol exposure, in order to enhance their quality of life; and to support those who care for or serve them.
Ruling year
2014
President
Valerie Lipow
Main address
P.O. Box 595
Manhattan Beach, CA 90267 USA
EIN
46-3385695
NTEE code
Services to Promote the Independence of Specific Populations (P80)
Disabled Persons' Rights (R23)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
Communication
Programs and results
What we aim to solve
Fetal Alcohol Spectrum Disorders (FASD) is the leading preventable cause of developmental disability in the world. It is estimated to affect 5 percent of persons in the United States, or one in 20 individuals. This prevalence is greater than the combined incidence of autism, cerebral palsy and epilepsy combined. Effects range from intellectual impairment to over 400 physical and behavioral conditions. As a lifelong condition, FASD is associated with poor academic achievement, psychological disorders, homelessness, and early death. Our organization increases awareness of the effects of FASD on Californians, reduce the stigma that surrounds the condition, and provides information and support for helping people affected by FASD and their families to be as productive as possible.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Information and Support Group Meetings
The FASD Network of Southern California sponsors monthly meetings for persons interested in challenges faced by persons with FASD
Training
The FASD Network of Southern California sponsors training events to inform professional and lay audiences about, and present strategies for addressing challenges faced by persons living with FASD
Facebook Group
The FASD Network of Southern California provides information and support to Facebook users in the region who want to discuss FASD
Advocacy
The FASD Network of Southern California provides advocacy designed to improve access to educational, community, legal, housing, and other services for vulnerable people with FASD and their families
Virtual Outreach and Connection
The network uses Facebook, Twitter, LinkedIn, and Instagram to cast as wide a net as possible to increase awareness about FASD, and about the FASD Network of Southern California in our region.
Virtual Support and Awareness
Use of Facebook, Twitter, Instagram, and LinkedIn to communicate on a daily and weekly basis with the lay and professional communities served by the FASD Network of Southern California.
Outreach
Use of social media to advise, inform, and training our service communities.
Webinar Program
Developing training remotely for individuals and organizations.
Where we work
Photos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of training events conducted
This metric is no longer tracked.Totals By Year
Related Program
Training
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Each year the FASD Network of Southern California sponsors and cosponsors training events to groups and organizations.
Number of members from priority population attending training
This metric is no longer tracked.Totals By Year
Related Program
Training
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of donations made by board members
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Holding steady
Context Notes
100% participation by all 9 Board members. Several made multiple donations in the year
Number of free participants in conferences
This metric is no longer tracked.Totals By Year
Related Program
Training
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The Network grants scholarships to attend its training workshops to financially needy participants
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
1. To improve knowledge among Southern Californians that alcohol use during pregnancy can cause FASD; that FASD can be prevented; and that FASD prevention is a shared responsibility.
2. To Improve timely, affordable, coordinated, and life-long access to individualized supports and services, with particular consideration given to rural, at-risk, and under-served populations, for adults, children and youth in Southern California who have or who are suspected of having FASD, in the following areas: medical, educational, occupational, housing, safety, social, and related fields.
3. To provide training programs to service providers and families/caregivers in Southern California of people with FASD in applicable subjects, with guidelines and strategies that are based on research and leading practices.
4. To support the efforts of Southern Californians who want to influence the planning and delivery of state government programs and services associated with FASD.
What are the organization's key strategies for making this happen?
Promote a coordinated approach to FASD prevention activities.
Encourage regional entities and communities to provide early intervention and harm reduction programming to at-risk populations.
Continue to inform Californians regarding the complex nature of FASD.
Ensure that all women of child-bearing age, their male sexual partners, and the parents/guardians of under-age women, have access to and are educated about the causes and effects of FASD.
Coordinate FASD strategies with agencies and community resources that focus on reducing unplanned and/or at-risk pregnancies.
Facilitate enhancement and integration of coordinated services for FASD-affected adults, children, and teens, as well as for their caregivers.
Ensure access to services for individuals affected by FASD, with a particular focus on youth-in-transition to adulthood; and for caregivers of FASD-affected individuals.
Collaborate with stakeholders to support and facilitate sharing of research findings.
What are the organization's capabilities for doing this?
The FASD Network of Southern California is made up of educated, passionate, and well-connected Volunteers who employ informational resources and collaborative efforts that support the goals and strategies of the Network
What have they accomplished so far and what's next?
We measure progress by the number of outreach, support, training and advocacy-related services scheduled and delivered.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
FASD Network of Southern California
Board of directorsas of 09/10/2020
Valerie Lipow
Annette Kunzman
FASD Network of Southern California
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
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