Dementia Society of America
We Know You Matter®
Programs and results
What we aim to solve
In the world today, and the U.S. specifically, there is a tremendous need for basic information regarding Dementia. Besides, individuals and families are looking for local resources to help provide care, services, products, and planning. The need to get practical Dementia advice and insight is almost without limits. Our inquiries increase in direct proportion to our outreach. People are looking for Dementia answers. Lastly, we seek to create opportunities and moments of joy for those most in need - those living lives of isolation in nursing homes and other Dementia communities.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Know Dementia®
Dementia & Brain Health Awareness education, campaigns, materials, and web-based resources.
Ginny Gives®
Life-enrichment programs are provided to those typically living within secure Dementia Units (and their caregivers) within nursing homes and assisted living communities. Our programs are oriented towards music, the arts, sensory stimulation, and movement.
Dementia SMART®
Recognition is provided to those acting as caregivers. We also recognize those who have passed away with Dementia through no-cost online memorials for the families.
Dementia QUEST®
Recognition is provided to researchers and institutions, as well as to persons or organizations that perform basic to advanced research intended to benefit those in the Dementia community through possible cures and meaningful medical therapies.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of new clients within the past 12 months
This metric is no longer tracked.Totals By Year
Population(s) Served
Women and girls, Men and boys, Families
Related Program
Know Dementia®
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The number of people/families to whom we provide valuable Dementia education information and/or local resource help.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The Dementia Society of America aims to make the national conversation around Dementia a natural, honest, and inclusive one. We seek to: (1) Empower people, no matter their situation, by helping them listen, learn, and take action to better the world for themselves or those in their care. (2) Be inclusive of all Dementias by expanding knowledge and creating a "big tent" community. (3) Provide life-enhancing programs that respect, stimulate and connect to the person within. (4) Recognize and promote exemplary caregiving and creative and innovative entrepreneurship, as well as advancing research through seed funding and spotlighting the best and the brightest ideas in possible cures, therapies, testing, and treatments - both medical and non-medical.
What are the organization's key strategies for making this happen?
A central component of the Dementia Society of America's strategy is to make Dementia a less-threatening discussion in this country. We do that by employing open and honest dialogue; using positive and uplifting language to the degree possible; spreading messages of hope through action, using social media; having an easy-to-use web presence, and creating accessible awareness campaigns that make it simple to participate and contribute.
An example of our strategy is to make our 1-hour educational TV show, The Dementia Action Plan: 7 Steps to Take in the Face of Dementia, available to thousands across America. We have organized events around the country for the public to virtually (and in-person as able) participate in the learning process. The "Aha" moments that people experience during these programs are life-changing.
What are the organization's capabilities for doing this?
The Dementia Society of America's capabilities for delivering on its promised mission exists in its ability to leverage technology. When we work virtually as volunteers, we utilize state-of-the-art conveniences to connect and manage the organization's day-to-day needs, and we deploy the power of the Internet to reach thousands, if not tens of thousands of people.
Our organization's biggest capability is a hidden gem: a volunteer-driven commitment across all of the leadership. It all starts at the top. Organizations and individuals need personal grit and determination to overcome obstacles and naysayers. That's exactly what the Dementia Society of America strives to do. Capability, perseverance, and the tenacity of leadership are infectious, and triumphs over efforts flush with cash but with no burning desire. We have lived with, and alongside Dementia, we know who and how it affects the lives of millions; we are determined to make a difference... today.
What have they accomplished so far and what's next?
As the Dementia Society of America's founder's wife entered hospice in 2013, her Dementia had led the both of them through years of struggle and emotional pain, but it also had brought them closer in a way that made clear that life with Dementia was not the end of the road, but the beginning of a fantastic journey- where love conquered fear and knowledge begat calm.
Since those days, when the seeds of the Dementia Society were sown, it has been one advance after another in the development of a real and effective mission-based organization dedicated to the betterment of all in the Dementia community and beyond.
We've been cited in national publications, been asked to speak and represent ourselves at major conferences, and have garnered the respect and collaboration of other nonprofits in the Dementia community. We have, by sheer force of will, created and successfully completed a national awareness campaign that many in our "world" thought was not possible in the time frame we envisioned. We have stood in the same rooms, and sat at the same tables as the biggest players in the Dementia nonprofit community, and we will continue to be questioners of the status quo and plain-spoken champions for an all-inclusive Dementia conversation.
And despite the accomplishments we've seen, we have not even scratched the surface of the demand for services, programs, and support needed by the over 9 million people living with Dementia and the vast numbers more that care for, and about them.
In order to meet the growing demand, it's an all-hands-on-deck imperative for each and every organization that benefits the Dementia community. It's a global crisis that must elicit the best in all of us to rise to the occasion and to create the best possible tomorrows by taking the most meaningful actions today.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Dementia Society of America
Board of directorsas of 02/24/2023
Mr. Kevin Jameson
Dementia Society of America
Term: 2013 -
Blaine Greenfield
Retired
Ann Redfield
Merck
Lilly Roth
AMM
Jeffrey Moyers
PNC
Kevin Jameson
DSA
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 01/10/2020GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.