The For Elysa Foundation

aka 2011   |   OLATHE, KS   |  http://www.ForElysa.org

Mission

This foundation is dedicated to improving Education, providing Light and promoting Research to help physicians and families prevent another tragic death from sudden cardiac arrest and viral myocarditis. The 3 basic tenets of our organization are derived from Elysa's initials: Education: improving education of healthcare providers and the community about Viral Myocarditis and other causes of pediatric sudden cardiac arrest Light: providing light and hope to other children and families affected by pediatric cardiac conditions Research: promoting and funding research in the field of Viral Myocarditis and enhancing diagnosis and treatment of myocarditis and related cardiac conditions

Ruling year info

2014

Principal Officer

Jana Rojas

Main address

14421 S Alden Ct

OLATHE, KS 66062 USA

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EIN

46-3700138

NTEE code info

Health (General and Financing) (E80)

Human Service Organizations (P20)

Children's and Youth Services (P30)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Letters from Angels

Collection of valentine cards and gifts for distribution to children's hospitals around the country.

Population(s) Served

Ollie's Branch provides mental health support for families impacted by pediatric heart conditions. The program offers up to 8 sessions with a licensed therapist for any parent, grandparent or sibling of a pediatric heart patient. The services are free of charge for the family; the foundation covers the cost and insurance is not billed. All of the sessions are offered virtually so that transportation, childcare and other factors are not barriers to receiving the support. The program is provided in partnership with the Ollie Hinkle Heart Foundation in St. Louis and the THRIVE team at the Children's Mercy Heart Center in Kansas City.

Population(s) Served

The For Elysa Foundation provides education for health care providers and the community on Viral Myocarditis and other causes of pediatric sudden cardiac arrest.

Population(s) Served

The Light program provides support for families that experience myocarditis or pediatric sudden cardiac arrest. This can include holiday gifts, financial assistance related to health care needs, or other forms of assistance.

Population(s) Served

The For Elysa Foundation promotes and supports research in the field of Viral Myocarditis to enhance diagnosis and treatment of myocarditis and related cardiac conditions.

Population(s) Served
Children and youth
Children and youth
Children and youth
Children and youth
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of people trained

This metric is no longer tracked.
Totals By Year
Population(s) Served

Work status and occupations

Related Program

Myocarditis Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Number of healthcare providers trained on diagnosing Viral Myocarditis and supporting families whose children receive a Myocarditis diagnosis.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Myocarditis Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Research studies funded to expand the base of knowledge about diagnosing and treating Viral Myocarditis

Number of families impacted by pediatric heart conditions who receive gift bags, holiday support or financial assistance

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Light for Heart Families

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The primary goal of The For Elysa Foundation is to prevent childhood deaths caused by pediatric sudden cardiac arrest. To accomplish this, the Foundation offers programs under the following three categories:

1. Education: Improving education of healthcare providers and the community about Viral Myocarditis and other causes of pediatric sudden cardiac arrest

2. Light: Providing light and hope to children and families affected by pediatric cardiac conditions

3. Research: Promoting and funding research in the field of Viral Myocarditis and enhancing diagnosis and treatment of myocarditis and related cardiac conditions.

The Foundation funds promising research studies at world-renowned facilities that will increase evidenced-based data available to healthcare providers about viral myocarditis and related conditions, thereby improving diagnosis and treatment of children affected by cardiac conditions.

The Foundation also provides several training sessions per year for healthcare providers, healthcare students and community members on the warning signs of myocarditis and pediatric conditions, and how to treat children presenting with symptoms of myocarditis.

In addition, the Foundation provides support to families impacted by pediatric cardiac diagnoses, including care packages, holiday gifts and financial support related to healthcare treatment.

The For Elysa Foundation founders are healthcare practitioners who have first-hand experience of viral myocarditis and pediatric sudden cardiac arrest in their family. Board members include healthcare providers and professionals with experience in law, marketing, event planning, social work and nonprofit administration.

The Foundation works closely with researchers at the Mayo Clinic and other world-renowned research facilities to improve diagnosis and treatment of viral myocarditis and related conditions. In addition, the Foundation collaborates with the national Myocarditis Foundation to share information and increase resources available to families affected by myocarditis.

Since 2011, the For Elysa Foundation has trained approximately 1,000 healthcare providers on viral myocarditis and pediatric sudden cardiac arrest. The Foundation continues to train 75-100 healthcare providers per year. In addition, the Foundation has funded 3 national studies related to the diagnosis and treatment of myocarditis and is working with its research partners to launch several more.

In addition, more than 1,000 families impacted by pediatric heart conditions receive gift bags or holiday packages form the Foundation each year - reaching approximately 10,000 families since the foundation's launch in 2011.

Financials

The For Elysa Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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The For Elysa Foundation

Board of directors
as of 7/5/2021
SOURCE: Self-reported by organization
Board co-chair

Jaime Rojas


Board co-chair

Jana Rojas

Elizabeth Evers Guerra

Emily Stevens

Anne Hackman

David Correa

Erin Cansler

Kerri Troyer

Erica Kratofil

Organizational demographics

SOURCE: Self-reported; last updated 07/05/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data