LILY GRACE FOUNDATION

Lutz, FL   |  www.lilygracefoundation.org

Mission

Providing children & families diagnosed with autism spectrum disorders with education, resources, research and scholarships for medical and integrative therapies.

Notes from the nonprofit

AWARDS
Awarded the Great Nonprofits Top Charity, a charity review organization supported by the Gates and Forbes Foundations. Less than 1% of nonprofits receive this honor.

September 22, 2015
Colorado Governor John Hickenlooper authorized flags to be flown over the Colorado State Capitol in honor of the Lily Grace Foundation, and those affected by autism and neurological disorders.

TRUSTWORTHY
​LGF is consistently ranked as a non profit in good standing with the State of Colorado.
We are proud to achieve Platinum Status, the highest ranking with GuideStar, an independent charity review organization. LGF is a member of the Colorado Non Profit Association.

Ruling year info

2014

Founder / President

Ms. Amanda Shannon

Main address

156-B Whitaker Rd.

Lutz, FL 33549 USA

Show more contact info

EIN

46-4368547

NTEE code info

Philanthropy / Charity / Voluntarism Promotion (General) (T50)

Mental Health Disorders (F70)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Mindfulness Rooms

Creating a mindfulness room at Pepin Academies in Tampa, Florida which is a school for children who have learning disabilities. The room will be a designated space that provides a place to relax and destress. This allows the children to be more successful within their learning environment.

Population(s) Served

Scholarship funding for ASD integrative therapies.

Population(s) Served

Whether a family is searching for medical or alternative treatments, wanting to connect with support groups, or take an Autism 101 class free of charge, you can browse our online resource library.

Population(s) Served

We created a sensory based yoga program called Relaxation Station and was initially implemented into Jeffco County Public School system in Denver, CO. Currently, we are fundraising to create a video to be offered online through our website to the ASD community.

Population(s) Served

Respite Care is crucial to support the caregivers and teachers who care for children diagnosed with neurological differences. For this reason, we are creating a mindfulness room for teachers and staff at Pepin Academies in Tampa, Florida. This space will be designated for them as a place to relax and destress for their day of teaching a population made up entirely of the learning disabled.

Population(s) Served

Where we work

Awards

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children and families who have received free respite care events.

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Mindfulness Rooms

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Respite plays an important factor in the well being of caretakers. Thanks to our partnership with Kroenke Sports Charities, LGF is able to provide respite tickets year round to our families.

Number of children who have received free therapeutic yoga services through the Relaxation Station Program implemented in public schools and therapeutic settings.

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our research based integrated approach to yoga therapy for autism spectrum disorders is available in select Colorado Public Schools.

Number of families who have received Child Development & Parent Engagement Education and Child Language Intervention.

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We connect families with free parent engagement programs and child development programs, with a three step program for newborn- 12 months, 12-24months and 24-36 months.

Number of families who have received scholarship funding for ASD integrative therapies.

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Scholarships for Integrative Therapies

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Scholarship funding for ASD integrative therapies.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Providing children & families diagnosed with autism spectrum disorders to education, resources, research and scholarships for medical and integrative therapies.

We provide education, resources, scholarships to children, and families affected by Autism Spectrum Disorders. All of our services are provided free of charge.

Our Services
Child Development & Parent Engagement Education: We connect families with free parent engagement programs and child development programs, with a three step program for newborn- 12 months, 12-24months and 24-36 months.

Program Details: Part A: Prenatal-12 months: Focuses on age-appropriate physical activity and talking to and reading with children from birth. Part B: 12-24 months: Emphasizes speaking to children and exposing them to language to stimulate early literacy. Part C: 24-36 months: Addresses developmental milestones, language and effective and positive discipline methods. Home visits: are also available thanks to our partnership with Bright by Three.

Child Language Intervention: We connect families with an intensive language intervention that utilizes the LENA digital language processor device. thanks to our partnership with Bright by Three and Colorado talks back, LGF and Parents receive extensive Data on participants outcomes.

The LENA program enables a family to track their child's language development process. The LENA system can also be used as a bio-marker for ASD.

Relaxation Station - Children's Yoga Public School Project: Our research based integrated approach to yoga therapy for autism spectrum disorders is available in select Colorado Public Schools.

​​Resource Library: Whether you are searching for medical or alternative treatments, looking to connect with support groups, or interested in research, you can browse our resource library.

Respite Events: Respite plays an important factor in the well being of caretakers. Thanks to our partnership with Kroenke Sports Charities, LGF is able to provide respite tickets year round to our children and family clients to sporting events to the Colorado Avalanche, Denver Nuggets, Colorado Mammoth, and Colorado Rapids and various entertainment events.

Scholarships for Integrative Therapies: Scholarship funding for ASD integrative therapies.

We provide education, resources, scholarships to children, and families affected by Autism Spectrum Disorders. All of our services are provided free of charge.

Our Services
Child Development & Parent Engagement Education: We connect families with free parent engagement programs and child development programs, with a three step program for newborn- 12 months, 12-24months and 24-36 months.

Program Details: Part A: Prenatal-12 months: Focuses on age-appropriate physical activity and talking to and reading with children from birth. Part B: 12-24 months: Emphasizes speaking to children and exposing them to language to stimulate early literacy. Part C: 24-36 months: Addresses developmental milestones, language and effective and positive discipline methods. Home visits: are also available thanks to our partnership with Bright by Three.

Child Language Intervention: We connect families with an intensive language intervention that utilizes the LENA digital language processor device. thanks to our partnership with Bright by Three and Colorado talks back, LGF and Parents receive extensive Data on participants outcomes.

The LENA program enables a family to track their child's language development process. The LENA system can also be used as a bio-marker for ASD.

Relaxation Station - Children's Yoga Public School Project: Our research based integrated approach to yoga therapy for autism spectrum disorders is available in select Colorado Public Schools.

​​Resource Library: Whether you are searching for medical or alternative treatments, looking to connect with support groups, or interested in research, you can browse our resource library.

Respite Events: Respite plays an important factor in the well being of caretakers. Thanks to our partnership with Kroenke Sports Charities, LGF is able to provide respite tickets year round to our children and family clients to sporting events to the Colorado Avalanche, Denver Nuggets, Colorado Mammoth, and Colorado Rapids and various entertainment events.

Scholarships for Integrative Therapies: Scholarship funding for ASD integrative therapies.

Large scale black tie fundraising event - this is in planning stages for Spring 2018.

Financials

LILY GRACE FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

LILY GRACE FOUNDATION

Board of directors
as of 3/13/2020
SOURCE: Self-reported by organization
Board chair

Ms. Amanda Shannon

Lily Grace Foundation

Term: 2014 -

John Reid, BA

Debby Hamilton, M.D., MSPH

Amanda Shannon

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes