Sweet Julia Grace Foundation Inc
Helping children dance in the rain
Programs and results
What we aim to solve
We have faced quite a few challenges since our creation in 2014. One of the challenges faced by SJGF, has been to make sure SJGF doesn’t grow faster than our team can handle. Since SJGF was founded in 2014, our mission has been to ensure individualized, long-term support, that creates a sense of family and community for the families we serve. Balancing the feeling of a local, grass-roots, non-profit while serving as many people as possible is a constant and intentional balancing act. As a non-profit that has experienced exponential growth, SJGF has also faced the challenge of how to transition from the ‘creation’ of a non-profit to the ‘sustaining’ of a non-profit. We are constantly addressing this problem by surrounding ourselves with guidance and support from mentors and valuable members in our community who are willing to help SJGF.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Raindancers
The children served through Sweet Julia Grace are lovingly given the name “Raindancers,” because just like Julia Grace, they are not waiting for the storms to pass before they “dance in the rain.” SJGF builds ramps, buys all-terrain wheelchairs, modifies homes to give more independence, sends children on DREAM trips, fulfills ‘bucket list’ wishes, arranges celebrity meet-and-greets, creates outdoor spaces for children to enjoy, reveals room makeovers, contributes therapy-related gifts, throws parties to celebrate birthdays and ‘end of chemo’... and so much more.
Ipad Program
SJGF knows the obstacles our Raindancers face each and every day. The iPad Program keeps children connected, inspired, and in touch. The gift allows Raindancers to remain connected with family and friends, provide entertainment while they undergo treatments or experience hospital stays, and offer educational assistance while they are homebound and unable to attend school with their peers.
PICU 'Take Care' Program
PICU stands for Pediatric Intensive Care Unit and for many parents, the walls of the PICU can feel like they are closing in on them. Time seems to pass unnoticed, days seem to be gone and unaccounted for, and some parents don’t remember when they have last eaten. This is the life of a PICU parent. Our PICU ‘Take Care’ Program is a way for our community to do something SWEET for those who find themselves in this world.
Once a month, SJGF visits our local children’s hospital to deliver the PICU parents a catered lunch and all the necessities from home they never had time to pack ‒ leggings, razors, adult coloring books, face wipes, hair ties, snacks and more. We have truly thought of everything!
Where we work
External reviews

Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The Sweet Julia Grace Foundation aims to become the 'go-to' for families in our areas of service who have a chid, between the age of 0-18 who have special needs, are seriously ill or who are facing a medical crisis. We want to be able to grant wishes that bring joy and change lives, fill in gaps other services are unable to fill, and provide support with day-to-day needs for families going through the unimaginable with their child. Along with this mission, SJGF also strives; to provide emotional support and guidance to parents who are facing the stress of having a medically fragile child; to serve as a resource center for the family by connecting them to other forms of assistance available in the community; to provide support to families within their home on a regular basis. When they have no where else to turn for help, we want them to turn to SJGF, and when they reach out to SJGF for help, we want to be able to say 'yes'. In addition, SJGF strives to create a 'community within our community' for families who experience isolation and loneliness because of their child's diagnosis.
What are the organization's key strategies for making this happen?
We are creating new programs for our families so that we can mobilize our volunteers and match them with the families who need their help on a regular basis, through the SJGF Family Care Program. This program will match vetted volunteers to families currently in crisis who need a hand at home. Along with this program we are also developing support groups for mothers of the children we serve, and also for the bereaved mothers who have lost a child we have served. We are also collecting valuable information that will serve as a resource center for our families. This wealth of information will be provided to our families so that they can learn about, and access other services in the community as needs arise. If there are services available that will benefit our families, we want to know about them, do the research and then provide the information in simple terms to our families who are already overwhelmed.
Having a child that is medically fragile or seriously ill can be very isolating, stressful and lonely for the entire family. Our families crave ‘community’ with other families who ‘get it’ so this past year we are proud to say we created two new annual traditions for our families to enjoy. SJGF partnered with local businesses to host both a Fall party and a Christmas celebration for over 75 families. Both events catered to all the children we have served, regardless of the severity of their needs. These events will now be annual traditions for every family that we serve, both old and new. Not only do these new family events create a sense of community, belonging, and togetherness, they also provide moments in time where kids can just be kids, and parents can set aside their worries and fears and just live in the present moment with their children. Our team puts so much thoughtfulness into every tiny detail, to make sure our families feel like the VIP’s that they are and to create memories that will last a lifetime. We plan on adding a summer party on to our family event schedule in 2020.
What are the organization's capabilities for doing this?
The support we receive from our community blows us away. When we have a need for a location, a resource, a partnership, or even a helping hand, our community shows up, and shows up big. With the fundraising efforts we have in place we will be able to say yes to families as needs and wishes arise. With the community support we have in place, partnership opportunities are increasing year after year. And as we mobilize the amazing group of volunteers that are committed to helping the families we serve, we will continue to be able to grow with the challenges we face, meet the needs that come our way, and fill in the gaps that other resources are unable or unwilling to help families with.
What have they accomplished so far and what's next?
We have touched the lives of almost 150 families, and countless family members since our founding in 2014. Volunteerism in our community has increased as thousands of volunteer hours have been given to the community through The Sweet Julia Grace Foundation. We have developed unique programs and services for families going through the unthinkable with their child, that have never been offered in our area before. Our fundraising efforts not only help us raise money to further our mission, but also provide the area with events that bring the community together. What's next? There is no other SJGF, and we know how desperately families in crisis with their child need what we offer. So we hope to be able to continue to grow and expand so we can help more families.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Sweet Julia Grace Foundation Inc
Board of directorsas of 12/01/2021
Sara Knight
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as: