Human Services

Sweet Julia Grace Foundation Inc

Helping children dance in the rain

aka SJGF

Manasssas, VA

Mission

To fill in the gaps, grant wishes, and meet the non-medical needs of children who are seriously ill, have special needs, or are in the midst of a medical crisis.

Ruling Year

2014

Founder & President

Mrs. Sara Jane Knight

Main Address

9000 Mike Garcia Drive, #140

Manasssas, VA 20109 USA

Keywords

Nonprofit, Children, Special Needs, Advocacy, Grant Wishes, Pediatric Cancer, Pediatric Illness, Resources

EIN

46-4766027

 Number

8243450605

Cause Area (NTEE Code)

Children's and Youth Services (P30)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2017, 2016 and 2015.
Register now

Social Media

Programs + Results

What we aim to solve

We have faced quite a few challenges since our creation in 2014. One of the challenges faced by SJGF, has been to make sure SJGF doesn’t grow faster than our team can handle. Since SJGF was founded in 2014, our mission has been to ensure individualized, long-term support, that creates a sense of family and community for the families we serve. Balancing the feeling of a local, grass-roots, non-profit while serving as many people as possible is a constant and intentional balancing act. As a non-profit that has experienced exponential growth, SJGF has also faced the challenge of how to transition from the ‘creation’ of a non-profit to the ‘sustaining’ of a non-profit.  We are constantly addressing this problem by surrounding ourselves with guidance and support from mentors and valuable members in our community who are willing to help SJGF.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Raindancers

Ipad Program

PICU 'Take Care' Program

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

The Sweet Julia Grace Foundation aims to become the 'go-to' for families in our areas of service who have a chid, between the age of 0-18 who have special needs, are seriously ill or who are facing a medical crisis. We want to be able to grant wishes that bring joy and change lives, fill in gaps other services are unable to fill, and provide support with day-to-day needs for families going through the unimaginable with their child. Along with this mission, SJGF also strives; to provide emotional support and guidance to parents who are facing the stress of having a medically fragile child; to serve as a resource center for the family by connecting them to other forms of assistance available in the community; to provide support to families within their home on a regular basis. When they have no where else to turn for help, we want them to turn to SJGF, and when they reach out to SJGF for help, we want to be able to say 'yes'. In addition, SJGF strives to create a 'community within our community' for families who experience isolation and loneliness because of their child's diagnosis.

We are creating new programs for our families so that we can mobilize our volunteers and match them with the families who need their help on a regular basis, through the SJGF Family Care Program. This program will match vetted volunteers to families currently in crisis who need a hand at home. Along with this program we are also developing support groups for mothers of the children we serve, and also for the bereaved mothers who have lost a child we have served. We are also collecting valuable information that will serve as a resource center for our families. This wealth of information will be provided to our families so that they can learn about, and access other services in the community as needs arise. If there are services available that will benefit our families, we want to know about them, do the research and then provide the information in simple terms to our families who are already overwhelmed. Having a child that is medically fragile or seriously ill can be very isolating, stressful and lonely for the entire family. Our families crave ‘community’ with other families who ‘get it’ so this past year we are proud to say we created two new annual traditions for our families to enjoy. SJGF partnered with local businesses to host both a Fall party and a Christmas celebration for over 75 families. Both events catered to all the children we have served, regardless of the severity of their needs. These events will now be annual traditions for every family that we serve, both old and new. Not only do these new family events create a sense of community, belonging, and togetherness, they also provide moments in time where kids can just be kids, and parents can set aside their worries and fears and just live in the present moment with their children. Our team puts so much thoughtfulness into every tiny detail, to make sure our families feel like the VIP’s that they are and to create memories that will last a lifetime. We plan on adding a summer party on to our family event schedule in 2020.

The support we receive from our community blows us away. When we have a need for a location, a resource, a partnership, or even a helping hand, our community shows up, and shows up big. With the fundraising efforts we have in place we will be able to say yes to families as needs and wishes arise. With the community support we have in place, partnership opportunities are increasing year after year. And as we mobilize the amazing group of volunteers that are committed to helping the families we serve, we will continue to be able to grow with the challenges we face, meet the needs that come our way, and fill in the gaps that other resources are unable or unwilling to help families with.

We are making progress daily, but the true evaluation comes year after year. We are steadily increasing our annual budget, annual donations and most importantly the amount of families we serve and programs we provide. As we grow, we are not only able to help more families, but also provide support to families who we have already served, by providing them with annual events they can attend with each other.

We have touched the lives of almost 150 families, and countless family members since our founding in 2014. Volunteerism in our community has increased as thousands of volunteer hours have been given to the community through The Sweet Julia Grace Foundation. We have developed unique programs and services for families going through the unthinkable with their child, that have never been offered in our area before. Our fundraising efforts not only help us raise money to further our mission, but also provide the area with events that bring the community together. What's next? There is no other SJGF, and we know how desperately families in crisis with their child need what we offer. So we hope to be able to continue to grow and expand so we can help more families.

External Reviews

Financials

Sweet Julia Grace Foundation Inc

Need more info on this nonprofit?

Need more info on this nonprofit?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

See what's included

Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Sexual Orientation

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Disability

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Diversity Strategies

close
We track retention of staff, board, and volunteers across demographic categories
close
We track income levels of staff, senior staff, and board across demographic categories
close
We track the age of staff, senior staff, and board
close
We track the diversity of vendors (e.g., consultants, professional service firms)
close
We have a diversity committee in place
close
We have a diversity manager in place
close
We have a diversity plan
check_circle
We use other methods to support diversity
Diversity notes from the nonprofit
We support diversity in the services we provide.