Aphasia Access

Until Every Voice is Understood

Moorestown, NJ   |  www.aphasiaaccess.org

Mission

Aphasia Access: Transforming services and environments so people with aphasia can participate more fully in life.

Ruling year info

2014

Executive Director

Todd Von Deak

Main address

405 North Stanwick Road

Moorestown, NJ 08057 USA

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EIN

46-5220980

NTEE code info

Professional Societies, Associations (W03)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Leadership Summit

Held every other year, this event is the only educational conference focused solely on the LIfe Participation Approach to Aphasia.

Population(s) Served
Adults

Aphasia Access has launched a distinguished speakers series, bringing together an international collection of thought leaders in both aphasia research and aphasia care to create a line-up that could be the envy of any aphasia-focused event the world over.

What makes these events remarkable is that they are not a traditional lecture. They are each intimate conversations that start with the speaker's observations on the day’s topics, then turning into an open and free-flowing conversation.

Population(s) Served

Aphasia Access' Virtual Brag and Steal events are an opportunity for Aphasia Access members to share ideas and programs that are working in their communities. Colleagues are encouraged to "steal" those ideas for benefit of the populations they serve. Held quarterly, each event is an opportunity to receive new ideas for immediately use.

Population(s) Served

Multiple times a year, Aphasia Access holds a public town hall on current key issues and challenges. Past topics have included ways to succeed in transitioning to a virtual program delivery in light of the COVID-19 pandemic along with a celebration of the 30th anniversary of the Life Participation Approach to Aphasia featuring the authors of the seminar article on the LPAA.

Population(s) Served
Academics
Activists
People with other disabilities

Aphasia Conversations brings the latest aphasia resources, tips, and aha moments from Life Participation Approach to Aphasia professionals. The podcast series goes beyond far beyond typical stroke and aphasia facts to include aphasia group treatment ideas, communication access strategies, plus ways for growing awareness and funds for group aphasia programs.

Population(s) Served
Academics
Activists
Emergency responders
People with other disabilities

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

AphasiaAccess seeks to provide cooperative exchange of programming knowledge, research collaboration, and best practices in governance, fundraising, and promotion to further the Life Participation Approach to Aphasia.

We are actively engaged in a number of strategies towards our goals.

- Online Presence: we continue to expand and enhance our website, AphasiaAccess.org, to create a meaningful knowledge exchange amongst members of our community and give members the opportunity to have a supportive dialogue with colleagues worldwide.

- Speakers Series: Aphasia Access hosts three distinct speakers series (Distinguished Speakers, Virtual Brag & Steal, Public Town Hall) designed to foster knowledge sharing and dialogue on key issues of the day and to foster new collaborations amongst members.

- Podcast Series: Aphasia Access Conversations has now published nearly 70 episodes (April 2021) in its ongoing dialogue with thought leaders and front-line clinicians making an impact in aphasia care.

- Tavistock Trust for Aphasia Distinguished Scholar in the United States: Aphasia Access supports the work of the UK-based Tavistock Trust for Aphasia by administering a special award focused on recognizing and growing the work of aphasia researchers who are in the early stages of their career.

- International Partner: Aphasia Access has been selected to host the prestigious International Aphasia Research Conference (IARC) which will be held in Philadelphia, PA in June 2022.

Aphasia Access capabilities start with a robust board and committee structure that includes over 50 active professionals in care. This group of volunteers conceives, strategies, and implements the major initiatives of the organization. Supporting this committed group of volunteers is a management team that has been with the organization since its inception, resulting in a collaboration that is rooted is shared goals and objectives along with mutual trust to carry out each other's part in the organization's success.

April 2011. Inaugural gathering of LPAA aphasia leaders at the Adler Aphasia

Center, Maywood, NJ.

 April 2013. Aphasia Center West Texas hosts aphasia community program

leaders from 15 U.S. cities and two Canadian in Midland Texas. Decision made

to officially create a North American resource for LPAA providers.

 Summer 2013. Organizational name decided and founding board of directors

elected.

 January 2014. Board Strategic Planning Retreat held.

 March 2014. Founders join working committees: Education & Research,

Membership & Communications, Governance, and Finance & Development.

 June 2014 AphasiaAccess database created.

 July 2014. $60,000 total 3-year Abell-Hanger Foundation challenge grant.

 501(c)(3) tax-exempt status achieved.

 August 2014. Executive Director hired.

 October 2014. Website, Membership Offerings, and Leadership Summit

Registration launch.

 November 2014. Educational series production begins (if funded)

 March 14-15, 2015. AphasiaAccess Leadership Summit held at Boston

University.

Building on the Information Above which was shared during our initial filing with Guidestar, other highlights of the organization to date have included:

Membership: The organization has grown from approximately 200 at its inception to over 400 in 2021.

Leadership Summit: Aphasia Access has hosted a successful leadership Summit in 2017 (Orlando, Florida), 2019 (Baltimore, MD), and 2021 (virtual, due to COVID-19). The attendance has grown at each subsequent Summit, surpassing 300 in 2021.

Teach-In: In 2020, Aphasia Access held a 24 virtual global teach-in bringing together 58 presentations (71 presenters) for a full day (including overnight) of continuous programming. Participation was over 200 with more than 10 countries represented.

Podcast Series: The Aphasia Access Conversations Podcast series has delivered nearly 70 episodes (April 2021) and had over 70,000 downloads to date. The series shares conversations with leading researchers and clinicians on the front lines of aphasia care on topics of key importance.

Medicare: Aphasia Access spoke out in light of potential Medicare reimbursement changes which would have negatively impacted Aphasia Access, advocating on behalf of the organization to ASHA and collaboratively to key agencies within the Federal Government.

Financials

Aphasia Access
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Aphasia Access

Board of directors
as of 4/23/2021
SOURCE: Self-reported by organization
Board chair

Ms. Elizabeth Hoover

Boston University

Term: 2020 - 2021

Elizabeth Hoover

Boston University

Ruth Fink

Moss Rehabilitation Research Institute

Katarina Haley

University of North Carolina - Chapel Hill

Thomas Sather

University of Wisconsin - Eau Claire

Sarah Wallace

Duquense University

Jodi Morgan

Brooks Aphasia Center

Melinda Corwin

Texas Tech University

Linda Worrall

University of Queensland

Jytte Isaksen

University of Southern Denmark

Nidhi Mahendra

San Jose State University

Wendy Greenspan

Temple University

Nina Simmons-Mackie

Southeastern Louisiana Unviersity

Michelle Armour

Northwestern Medican Aphasia Center

Karen Castka

Adler Aphasia Center

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 04/19/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data